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My cousin was actually the person who invented the eye writing computer program. His mom had Lou Gerhrigs disease and couldn't talk any longer. It's out there, you just have to look around and find things. My husband has had 2 massive strokes at the age of 45 but luckily he's recovered very well and has just lost the use of his right arm now. I worry for the next time though so I was interested in this question.
Try a basic one, when technology didn't exist or not suitable: Handshake the hand of the patient and tell him/her that squeeze your hand for YES, and let it loose for NO. Also, try blinking eyes for EYES, close eyes for NO. It's easy and you don't need anything else. Try any of them and spread the word with the caregivers.
Hello, My name is marie.. I am here to talk about my father.. he had stroke and TBI. umm.. he cant write or type.. I am trying to find a way to communicate with him. he used to blink but not anymore. he start to say words but not really clear.. like he said no, yes, ok, and others. The plm is i am hard of hearing.. its hard for me to get what he is trying to say.. sometime i have to bring someone with me who can hear him more than i am.. I know they do have the machine that copy the voice and translate to people what he is trying to say.. I swore i saw it somewhere at college.. it was really cool. I am trying to think of that name.. but couldnt remember. i did tried to use the paper but it seems might be too much for his brain to read.. i dont want to burn out his brain.. please help and thanks have a nice weekend..
Having similar problem with Mom, with the new caregiver we were assigned. She is from the Phillipines and has a very heavy accent. I cannot understand her when she talks on the phone to me. So when I leave, Mom (whose ears are also filling with wax) gets kinda lost. I will type up common needs and wants so the caregiver can offer her the list and Mom can point. Mom doesn't converse anyway, hasn't really in the eight years I've been here (and if you've been reading my posts, you know how brainy I am!) so lucky to get an honest yes or no from her. She can't even follow "choice" answering yes or no to both, similar to the scene in "Rainman."
there are these ten inch portable netbooks that are very cheap, or get larger used notebook with larger keyboard. Stephen Hawkins the physicist is totally strapped into a wheelchair, cannot speak, nor do much more than move his eyes. He still has career, writing books, got married in the last few years, hosts tV documentary just on last night, even going on live tour, thanks to computer assisted devices. There are eyetracking programs I've seen as well, for computer, but guess he can use his hands. There are programs that will do speech from written words, and I'll be there can be shortcut commands like F1, F2, control A, to speed things along.
For common needs, like Hungry, Bathroom #1, bathroom #1, you could make up chart and have him point. Sure you'll be amazed at what people have come up with to handle this problem.
Check with your state's Assistive Technology project (you'll find a list at http://www.resnaprojects.org/nattap/at/statecontacts.html). They can tell you about communication aids: everything from computer programs to flash cards. They should have an equipment loan program so you can try various products.
He could use either or. Is there something small and portable he can carry around with him? He gets so aggravated when we don't understand what he is trying to talk about. He can't write the letters to make the words he wants to say.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
My name is marie.. I am here to talk about my father.. he had stroke and TBI. umm.. he cant write or type.. I am trying to find a way to communicate with him. he used to blink but not anymore. he start to say words but not really clear.. like he said no, yes, ok, and others. The plm is i am hard of hearing.. its hard for me to get what he is trying to say.. sometime i have to bring someone with me who can hear him more than i am.. I know they do have the machine that copy the voice and translate to people what he is trying to say.. I swore i saw it somewhere at college.. it was really cool. I am trying to think of that name.. but couldnt remember. i did tried to use the paper but it seems might be too much for his brain to read.. i dont want to burn out his brain.. please help and thanks have a nice weekend..
I think you're pretty 'brainy'!
lovbob
You caregivers are geniuses.
lovbob
For common needs, like Hungry, Bathroom #1, bathroom #1, you could make up chart and have him point. Sure you'll be amazed at what people have come up with to handle this problem.
ABLEDATA has a great list of communication aids.