This MUST be a common situation and thus there MUST be a well worn procedure, but I can not find anything online about to do it! My dad has significant memory loss and refuses to admit it. We need to get him in a memory care home very soon and it will be done against his will. Would someone PLEASE point me in the right direction!
Carol
Here is what caused this placement: FT Dementia.
You did not cause it.
The son/guardian did not cause it.
The care facility did not cause it.
The dementia caused the need for this level of care.
In the US we have a very strong culture of "Can-Do." We strive for perfection, even while acknowledging we can't reach it. We still want to get as close as we can. We expect it of ourselves.
And then we feel guilty when we can't live up to our impossible expectations.
Please, forgive yourself for becoming older and finding it more difficult to provide the necessary care. You did your best, and for a long time. That is as close to perfect as it is going to get.
Not always, but in most cases of dementia the patient reaches a point where he or she cannot be cared for by a single person in a private home. Not Your Fault.
I hope you will continue to visit him, perhaps do some of the same activities that you did with him at home. Try to distract hime when the subject of "why am I here" comes up.
Dementia is a hideous, heart-breaking disease. But it is nobody's fault.
My experience is that trying to let them make the choices just doesn't work. I think it could when you are dealing with active, health and financially very well-off elderly in their 80's it can work. But there are very few of those out there. When you are dealing with those with dementia and other chronic illnesses who are aging, they have no reality of their cognitive state and what 2011 expenses and their fiances are, then there aren't alot of options out there.
Their safety,health and security should be what it is all about. If you have to forcibly make them move and legall can, then do it.
These have 3 meals a day in dining rooms, they have nurses on staff (make sure of each place) med are given, there are things to do. You can come in anytime.
Mom really got to like it, but really I waited too long to get her into one so she could enjoy the people and activities. She was failing faster than I thought!
Assisted Living accepts those with memory loss. That is usually why they are assisted. From there they will transfer them to Memory Unit when it is needed, when the person becomes a danger to him/her self. MAKE SURE you have fully visited their Memory Unit and approve of it. My mom is in a wonderful place now, having to of taken her out of two Emeritus's for lousy care. She is now in Brookdale's Freedom Inn. Professional care. And they listen to me, and we have meetings all the time to address anything I have concerns or input about. Emeritus threw us out because I demanded they do what they promised, we lost our $5000 deposit. Brookdale's Freedom Inn has bent over backwards and has brought in Hospice care, not for end of life, but for her needs which are so great now. Now my only guilt is if I don't think I visit her enough, but have gotten freedom now!! And know she has a team attending to her, I am not a team, I am one person.
Medicaid Diversion is available to cover a good $1000 worth of care needed (have to get on the list and have funds reduced to receive it) I retained an Elder Lawyer for mom's larger funds, we are working on that now for nursing home care) , the rest is rent and food, which the resident pays. And VA pays $1000 (we don't have that).
Many different facilities and many different prices.
Good luck, get him into an Assisted Living facility. When he needs it, They will put him into Memory Care. See, Memory care is for those who are Forgetting how to eat, and to the bathroom, or wandering, outside, down the road and getting lost, over and over, etc. Assited living most have memory problems, but physical stuff they are still able to do, and it is so streamlined, they can follow it.
Hope this helps.
And, um, what is this about taking them there and never checking up on them? Is there any earthly clue that buggerman or igloo are talking about that? We really can't assume that everyone who needs to place their loved one in a long term care facility is just trying to get rid of them and won't continue to care for them. Yes, what you say about it is valid, but putting it in this thread seems a little out of place to me.
Are there things that would make it better? Picking out a new bedspread or sheets, taking favorite photos, assuring them their belongings will be safe and not thrown away.....just reassuring and also letting them help with decisions. I know that isn't always possible but to feel absolutely like they are loosing control is scary!
Put yourself 30 yrs down the road and what do you want....how do you want to be treated. I don't like it when my spouse tells me what to do! My kids?! I hope they are learning from my example with my dad.
Just some thoughts to put yourself in their shoes.
Just some thoughts.
A gentle reminder here and there. I think there is room for kind persuasion. Just like a child, 'which shirt would you like to wear, this red one or this blue one'. If they feel like they have some control, life is better all around. I know it is not the answer for everyone but let's remember they have feelings too.
My grandmother was told by her daughters that she was moving out of her home and into a facility and she had a nervous break-down. All she really needed was somebody to check on her daily. They had already picked it out without her knowing. They were loving daughters, but after that I learned my lesson.
And....just because it is a facility doesn't mean you can take them there and never check up on them. I know of a woman living in an assisted living facility. She didn't show up for breakfast. The staff never checked on her to find out why. Her 2 children came by to visit that afternoon. She had fallen in her room several hours earlier. Terrible.
Another friend's mother is in another facility. The room is never really clean. My friend had to discuss this with the staff. Just be aware and if something is out of place, take it seriously.
Sorry this is so long.
Small simple choices go along way in the "moment" as that is what these people only have. I see the caregivers at my mom's Memory unit do exactly that. They are very experienced there.
Forcing a move is traumatic. When they put my mom into Memory it was horrible. It should of been transitioned slowly. Mom pulled the fire alarms 5 times, causing the fire department to come out 3 of those. I can't tell you the pain I still endure from this. But she has been failing so fast it is the best place. Just done harshly.
I am glad, Newtonjoyce, that you brought up the serious need for family to visit often. I have caught problems of every nature as many never have enough caretakers. It is easy to put off visiting for a week or two, but not a good idea. Caretakers at Mom's facility tell me many children live far away. Who watches over these people, I always wonder? As I said, I now have Hospice on board, I work closely with home health care nurses, and I keep a strong communication with the management and the caretakers, in house physical therapy and especially the Nurses! Even those who clean and cook. Every time my mom falls they call me with a report. If she is off to the ER I am immediately contacted and I meet her there.
Good places want you involved, want your feedback, questions, and ideas.
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