My mom has been sick for four months and I have moved in for two months to care for her. She had surgery and her muscles have pretty much died from being in bed with pain. She has started physical therapy but refuses to do the exercises on her own. She won't do them on the days the p t doesn't come. She wants me to wait on her hand and foot if I refuse she pouts and cries. She is very negative demanding and impatient I am to the point of resenting her and the guilt is overwhelming me.
But I did set up appt for my mother to go see a MS doctor...maybe he will find something wrong with our living arrangements because I cant take the stress anymore.
Did your doctor ever contact her doctor to tell that doctor that you are pregnant? Who died and made her your baby doctor?
If anyone ever deserved and undiagnosed diagnosis for being narcissistic, it is her! I wish you well with your efforts to get her out to a nursing home before the baby is born.
This mess is not even happening to me, but I feel anger over it!
And you should change doctors!!! Do not risk that precious baby for anything!!! Shows how far gone your mom is to be a danger to her grandchild...Do you have a primary care person? Try them. Try your mom's PCP and be honest about her need for full time care....maybe he/she can order visiting nurse services to evaluate her (these are covered by medicare) and they will see how bad the situation is and get her some help...but her doctor needs to order it.
Best wishes!
I written about things with my dad as I'm sure many of you have read, so I'll try to keep this much shorter.
He had his chances living independantly and we had soo many arguments over him just pressing a simple button for help. He'd asked me for ONE month on his own and that he'd prove to me that he could do it.
Again, he fell going to the bathroom on his own, hit his head hard on the toilet..and here we are while he recovers from a subdural hematoma.
I don't know how many discussions I had with him regarding just following a few simple rules like taking his meds when he was supposed to (which started this whole thing as he has a major seizure from not taking his meds), and ended up in the hospital for three days and into a rehab facility.
Medicare would no longer pay for that so he begged to go back to his apartment; telling me to give him just one month there..that I should trust him and he promised to be good.
Don't know again, how many times I cried while I argued with him to just please use his call button; otherwise he'd end up in a nursing home and I'd have no power over where he was. Told him that I'd have to move him and if he ended up in a nursing home..I wouldn't have any say whether he went back to his apartment or not.
Well he's at that place now..in a nursing facility because he just wouldn't listen. I have to hire a mover to move him out of his apartment and find a place for all of his things. It's so very tiring and sometimes I get really angry with the whole situation as if he'd just listened..he wouldn't be where he is.
Now he sits there everyday depressed. Some days he'll get out of bed for staff and others he just wants to lay in bed and feel sorry for himself. I visit him often but he doesn't even seem happy to see me sometimes and will sit in his recliner with this mad look on his face.
I think he's more angry with himself than anything else and there's not a single thing I can do about it. He brought it on himself. Staff tells me how pleasant he can be at times, and then other times he's really ornery.
I used to visit him everyday but he just seems to get angrier and in a worst mood when I'm there, so I've gone to visiting him a few times a week.
I've asked him if he's angry that I had to move him out of his apartment, while bringing in all kinds of pictures and things from his apartment to his room to cheer him up. As I put them up, he just sits there with this angry look on his face like he doesn't even care.
Definately not the Dad I knew. The nice kind man that was always so glad to see me. I know it's partly his dementia..and being angry with himselt while there are days he just wants to lay in bed and feel sorry for himself.
I give him all the love I can in the meantime, while doing everything I can to put his lift back together. He'll have to go on Title 19 which is a lot of paperwork, and in addition, spend down all his savings and life insurance policies.
I can't tell you how tired I am going in to see him and half the time he really doesn't care whether I'm there or not; moving him out of his apt; muddling through all the paperwork needed for Title 19 Medicaid, etc.
Is it normal to sometimes feel so angry with a parent that, had he just listened, he wouldn't BE in a nursing facility? Okay to be angry that he did this to himself??
I love my dad to pieces and would do absolutely anything for him, but I am sooo tired. Doing everything on my own..keeping my sister that lives States away in the loop; moving my dad; getting every piece of paper in order..etc.
I had a bad cold one week and couldn't see him for that long. Went to see him and he acted like he didn't even care. Sat with him all morning and we talked. He told me that it wasn't that he wasn't glad to see me as he missed me all the time, but there was just a part of him that just didn't care anymore.
He hates staff coming in all the time, having to keep his door open as people "gawk" in looking at him, hates someone sitting with him while he eats, hates that he can't get up on his own, etc.
I told him that it wouldn't have had to be that way had he just listened; and then he goes into silent mode. He knows he's there because he wouldn't listen..
And thus he's depressed...and seems to get more depressed when I go to visit, so I've stopped visiting for a bit and just call staff to see how he's doing.
He was doing great today so I guess that's all I need to know.
Because his mood changes the minute I get there, trying to be happy around him and cheer him up..he just doesn't care.
This coming again, from a Dad that used to love seeing me and spending as much time as he could with me.
I don't want his mood to change, and thus..I visit a few times a week for a few minutes. Breaks my heart that he can't stand me right now, but he's told me that it's not that..he's angry that he's lost all his indepedence, etc. He hates his life right now and told me that he's sorry to take it out on me..but evertime he seems me..it reminds him of my Mom (who passed away 10 years ago from Cancer)..and that I look too much like her for him to stand sometimes...and how long is he going to have to stay in this place before God will take him to see her.
That's when we cry together..sing together, etc.
I really stinks when your parents get to the point where they can't enjoy all the things they used to do; make up for it by playing Bingo, etc., so to bed early..only to wake up to the same thing the next day..
A nurse waking you up..getting you to the bathroom in a walker..getting you dressed; and then down to the dining room where they feed you, whether you're hungry or not.
I can't even imagine, but with Dad...he could be in a much better place had he lsitened. And now he's where I warned him he'd be if he didn't listen.
It's tough..really tough. Thank God for my meds or I'd be crying my eyes out every day.
Thanks for listening.
Love you guys!!
Helpme, I think your Mom might still think you are 16 years old instead of 32, and that is why she feels embarrass that you are pregnant. Plus, Helpme, I cannot believe that an OB-GYN would tell you it is ok to lift an adult while you are pregnant, that could lead to a miscarriage.
Anyway, my situation has many of the same elements here. I appreciate all of the responses. I do have help from my daughter, my brother and his 2 daughters. But the system did break down over the Thankgsiving holiday, and I had a nervous breakdown. I am considering therapy, as mentioned in one post. I'm 50 in Texas with my 13 year old visiting from New York, and my brother was supposed to be there Saturday but couldn't. So here comes the text from mom at 10am on Saturday, during the time when I was supposed to be enjoying my visiting 13 year old daughter. I already work 20 hours with them, helping every night after work and on weekends, plus grocery shopping and errands. My brother does 10 hours on Saturday, and my daughter does 20+ hours during the weekdays. So doing this alone is really impossible, even for 1 parent.
APS is also coming to visit my parents this week (they both have issues and caregiving for BOTH at their home). This added to the stress because my parents were trying to make me clean the results from the hoarding. I just told them "No, I want to spend time with my daughter. If this was any other weekend, I would happily do it".
Their doctors are supportive (they're the ones who called Adult Protective Services). They are trying to get them into SNF or ALF. They refuse. But, I will continue to do the best I can. I like the list idea. I kind of have that in my head, only it's a plan, or a vision. I can see things happening, and try to stay a step ahead. I have already visited several Independent Living places because that's where they would agree to go. I have confirmed that they can afford it plus have savings. It's outrageous to see them living the way they do, and that they could thrive and have a much better lifestyle in a place like that. But it has to be their decision.
I go in and out of guilt and anger and then compassion and empathy. They are very appreciative of our help, but sometimes I feel manipulated. Then I get angry. Then I feel guilty. Then I drive over and happily clean up the Gatorade that mom just spilled all over the place in her room. Then I help shower her, floss her teeth, and put her deodorant on her. And dad is ranting about APS invading their lives and I have to calm him down. Then I laugh because they are both in diapers, dad is throwing a toddler-like tantrum and mom needs a sippy cup with a lid. This is how I cope.
I don't want to fight with my parents. I see people's posts where there is fighting and yelling. I can't do this. The stress level is already high and that would not help matters at all. This mother who is physically abusive to her daughter is not someone I would want to help. She needs someone who is not a family member who can handle the overweight mom. Abuse is where I would draw the line. Even if it's the disease or illness that's causing it. Someone who has proper training for that kind of behavior caused by the illness needs to be the caregiver.
I continue to read posts and find answers. I hope I help people too. I'm waiting to go on that 2 week long all-inclusive beach vacation when this is over. In the meantime, I will do the 1 hour vacations mentioned. Thanks.
Let's hope that APS will intervene and insist on their placement somewhere. I'd have my statement ready as to what supervision and care that I could provide. They may want a family member to step in. I'd make it clear that it wasn't possible, if that is something you cannot do. Removing them from the environment may be physically safer for them too.