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I have been trying to understand the recent triggers, changes and reactions in my 75 yr old mother. I don’t think she has AD but I have recently came across FTD or frontotemporal degeneration. Most of the clinical symptoms in this are what I see in her.



I tried to reach out to her doctor but she cut me off from talking to him. My dad, kids and husband see it too.



I was just wondering if anyone has dealt with this diagnosis?

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FTD is one of the many hundreds of different dementias out there, and really can only be diagnosed by a neurologist. However it is often misdiagnosed as a psychiatric problem or Alzheimer's disease, so another reason to have her see a neurologist.
It is the most common form of dementia for people under the age of 60, but can also occur later in life.
Because there are literally hundreds of different dementias, often times people don't get an exact diagnosis, other than they have Alzheimer's/dementia. And truthfully that's all one really needs to know, as they are all bad, and the one with any of the dementias, will only continue to get worse, and more than likely die from it, that is if something else doesn't take them first.
So the best thing you and your family can do at this point is to educate yourselves on dementia and all it entails(as they all share things in common). Teepa Snow has some excellent videos on YouTube about it along with several great books. One of them being Understanding the Changing Brain: A Positive Approach to Dementia Care is a great read along with The 36 Hour Day by Nancy L. Mace and Peter V. Rabins.
I wish you and your family the very best as you take this hard journey with your mother.
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Here is a great link on FTD.

https://www.theaftd.org/living-with-ftd/managing-ftd/

In reading your previous posts I see why you would be very concerned.
Did you write your mothers doctor a letter? Please know that although the doctor can’t talk with you, you can give the doctor detailed information, regardless of what mom may have tried to block.

You need to see a CELA level elder attorney. Perhaps with dad. Unless mom has hidden assets from dad, at least he may be able to protect himself and his finances. He needs to understand the situation and it is a lot to understand. He and/or you may have to file for guardianship.

Sometimes there is nothing you can do to protect a person from themself but wait until the situation spirals out of control.
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