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My wife, 71 has lost all interest in anything other than walking up and down our street. She has wandered on 2 occasions when I had to call the police to find her. I have recently placed an air tag on her shoe that shows her location, but still, I cannot keep her home, and I cannot assure her safety.
She refuses to shower, wash her hair or take any meds. I am at my wits end and cannot see this continuing. Placing her would break my heart, but I tell myself that she may be better off and even happier with activities and other people around her.

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You wouldn't be human if you didn't find it heartbreaking to place her, but there comes a time in the dementia journey for some that placing their loved one is not only best for their loved one but best for them as well. And yes, it sounds like you are at that point where you now must do what is best for you both.
I know that you want your wife safe and well cared for, and at this point memory care is your only option. There she will receive the 24/7 care she requires and you can get back to just being her advocate and husband. It's a win win for you both.
Will it be hard? Of course it will, but knowing that your wife is now safe and will be bathed and getting her needed medications will bring you great peace of mind.
God bless you both.
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This is what happened with my Mother. Everything you mentioned. I was trying to run the family store and watch her at the same time. As soon as I got her home she stayed mixed up. I had to chase her down a few blocks away all the time. I came here looking for answers. She was always trying to walk"home" to her family and the house she grew up in. She was always a walker so she enjoyed it but could not at this point know what she was doing. I finally put her in a nice Memory Care. She has been there for about six years. She walks with a walker now. At first she was more confused but I relaxed knowing she was safe. She also has WAY more stimulation than she ever got with just me! She had all these other people to look at and talk to! At first it is hard but a couple of years down the road you will see this was a great blessing to you both. I watched her when she didn't know I was there and she was doing all kinds of activities. Exercise in chairs, painting etc. She does not do all that much more because it has been 6 years now. But she has dinner partners at her table and still watches everyone. I was at my wits end and it is so exhausting to keep up with the walker type. Strangers were bringing her back to her home in cars because I put tags on her outerwear. I found her in the cemetery behind her house, in a park several blocks away, at the grade school and everywhere else. I just visited yesterday at the Memory Care. She was sitting with a bunch in a circle playing a balloon game. She was laughing. At home she would have just sat there and watched birds out the sliding glass window. It has been a long long road but Memory Care was the one great thing that our family did for her and for myself. Because I was going crazy. You can read some of my old posts and I see this very plainly now. It takes a village and this forum is a dang good one! Good luck and you can do this this.
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When her care is beyond what you can do then it is time to place her in Memory Care.
It sounds like it is no safe for her to remain at home and it is not safe for you.
Tour a couple Memory Care facilities and find out what is involved to get her in residence. She may have to have a physical if she does not have a current one. She may have to have a TB skin test or blood test. (blood test might be easier, it can be grouped with other tests)
This is going to be more difficult for YOU than it will be for her.
But she will be safe
She will be cared for
You can become her husband again and not her "warden".
She will be able to walk the halls, she will have activities, socialization that she may enjoy.
((hugs))
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No, I haven’t faced memory care. We did face NH for my mother, quite suddenly and sadly. Your wife isn’t safe, not your fault, you’ve done your best. I can’t imagine how frightening to have her wander and need to involve the police to find her. I hope you’ll find a good memory care place and become her advocate and cheerleader in her new, safe setting. I wish you peace
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Hard, hard, hard decision to ever make. But you are now thinking about it. I had to make that decision with my Daddy. I loved him soooo much but placing him gave me the ability to just love him and visit with him and I didn't have to be the bad guy anymore. He lived 12 years longer than my beloved Mama and I hated having to place him. He didn't like it but the days I visited were much more pleasant because we could love each other, watch tv with each other and talk about old times with each other. Taking care of someone with a memory problem is not easy. Just make this time pleasant for you and them and let the other guy do the hard stuff.
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Think of it this way: you're setting your wife up in a safe, warm, friendly environment in her own private apartment where she'll have familiar items from home surrounding her. She'll have others to socialize with, 3 hot meals a day served to her, 3 snacks a day, games, movies, events to attend outside the Memory Care she'll be taken to, and YOU to go visit her and take small gifts and treats for her to enjoy. You can go daily and stay as long as you like, too. You can take her out to dinner if she's amenable to such a thing (many residents are, some are not so easy to get back TO the Memory Care afterward; you'd have to play it by ear on that), or join her for dinner in the dining room.

I worked in a Memory Care ALF in 2019/2020 as a front desk receptionist and met with lots of spouses who had NO other choice but to place their loved one with us, for safety reasons. They'd come by all the time to visit their spouse and spend time with them, or take them out for a meal or ice cream, etc. It's not the house of horrors you've conjured up in your mind, or a heartbreaking situation except from the disease perspective. Dementia/Alzheimer's is a terrible thing to endure for ALL concerned. Nobody escapes the burden that comes with the disease; not you, not your wife, nobody.

My mother lived in regular AL for 4 years and then had to segue into Memory Care for the last nearly 3 years of her life. She received wonderful care there by a team of truly loving people, and I'd do it again in a heartbeat if I was put in the same position again. There are situations we simply cannot deal with alone at home, and that's when Memory Care is the only option (or Skilled Nursing, depending on the finances). Don't let 'guilt' play a part in your decision making, either, b/c in reality, were your wife to wander off, fall down and die from a resulting head injury, THEN the guilt would be far worse than it would be from placing her in a safe and warm environment. I used to care for a man with AD who did that very thing; fell in the street at 3 am and died of a subdural hematoma the next day in the hospital. His daughter felt he 'wasn't ready' for Memory Care and that he should be left to 'age in place' in his home......with advanced Alzheimer's going on!

Wishing you the best of luck with all the decisions you have to make.
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Aj2152 Dec 2022
where is this memory care home that gives snacks, allows you to take them out for a meal, and socializes with others.
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Of course she would be better off where trained people take care of her! It’s beyond your expertise now, and she is at risk. Do it before something terrible happens to her. Good luck!
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Your description of her behavior are all signs it’s time for placement. Her wandering makes her very vulnerable on many levels, especially leaving the house at night. My wife’s wandering (to the extent of involving the local police and fire dept) was a major issue for me along with medication management, her unpredictable behavior and my lack of sleep. I knew that I couldn’t properly care for her at home anymore.

As lealonnie posted don’t let the guilt of having to place your wife in MC delay your decision. I suspect you’re already feeling a sense of grief for anticipating your separation from her. This grief is a normal emotion. And after placement you’ll long to be with her and wonder if she’s being cared for with the compassion, love and care you gave her. But I suspect, like me, you’ll also feel a sense of relief, knowing she will be cared for and that you can take a breath. Don't think that by placing your wife in MC that you're no longer taking care of her. I assure you that by placing her in a care facility you ARE taking care of her as best you can.

Placing my wife in MC was emotionally the hardest thing I ever did, but there was no Plan B. And the word “hard” doesn’t begin to describe what you have to do for both her and your wellbeing. So take that deep breath and make the commitment to find her a caring MC facility. I wish you well.
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In addition to all the other positives listed here for going the Memory Care routet is that you'll now be freed up to just love her. You can visit anytime you'd like, you can spend all day or skip some days, and she'll always be safe and cared for, and mentally stimulated which is huge.

Your work is not done when you place her. You'll merely have made a decision that's in her best interests. What could be more loving than that?
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Bless you for taking good care of your wife. You obviously love her very much. #1 While you are making this decision, try to get a little help. Whether its a caregiver agency, friends, family, a church or senior services volunteers. Neighbors even. This has gotten a little beyond you. You may then find that she can stay hone, with that extra help. 24/7 if you can afford it. You would have to determine that.

For a memory care facility: You would have to choose wisely. Most memory care places I've seen leave them alone all day or they put them in a room with others, but don't make sure there is interaction. Also, your wife sounds like she still has some spark. Memory care could take her downhill quickly. Do a pop in visit at different times of the day without telling them, to see what they are like. I am sure there are good ones out there. Maybe ask around with friends, at senior services or church etc.

Find somewhere close that you can visit often!! It will be crucial to her happiness and yours.

Adult Family Homes might be a good option. Again, choose wisely, pop in without notice. I have seen great ones and also terrible ones. I recently saw one where the spouse could live there too! And the spouses enjoyed being there it was so great a place! I am near Seattle, but check your area.

If you already know of a good place and are just trying to decide if it is the right thing to do, I would say you are at the fear stage and overwhelmed and worried about her safety and then yes it is the right thing to do. If she is uncertain let her know you feel she will be safer and might enjoy new surroundings for her walks. Maybe tell her she can try it out for awhile. Something like that might help her transition.

God bless you and lead you to the right option, and quickly!!
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ckds52 Dec 2022
My husband is 10 years into his Alzheimer's journey, and while we have been coping at home together so far with the help of adult daycare, the time seems to be approaching that we will need a memory care residence for him. We live in the Seattle area, and would like to know where is this Adult Family Home you mentioned where the spouse can live there too?
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Yes, I have made this decision and I will attest that it was the hardest thing I’ve ever done. I researched MC facilities, selected one and placed him six weeks ago. It’s just 20 miles away; close enough to visit regularly but far enough that I will gradually settle into a semiweekly schedule as he becomes comfortable.

I will tell you that leaving him there on the first day was wrenching. I was not prepared for the look of pure sadness and abandonment. I thought he might be angry but he was just lost. I had to force myself to reason as those here have advised and to offset that expression with the terrifying images that led to this decision: lying on the street at 4:00 AM surrounded by police and EMTs because he had wandered; covered in his own waste because he had tried to cope with his own incontinence; his fury at the smallest slights and his confusion.

It hasn’t been an easy transition but we are at a point where he is accepting his new situation. Is he happy? I think there are times when he feels some degree of control and appreciation for the kind and competent people around him. He eats well, gets PT and speech therapy, sleeps well, and showers three times a week in his own apartment. Our next goal is acceptance on his part that this is his home.

I wish you strength and luck. Every response here is spot on, I now know from experience.
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RM11446 Dec 2022
Hi Carelyn73, may I ask how you specifically researched facilities to find the best fit? How do you even start to filter out the bad vs good, other than reading reviews online? I don't even know where to start, although I will be working from someone on mom's healthcare team it seems overwhelming :( Any insight is greatly appreciated and thank you for sharing your situation.
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Extremely difficult decision to make. It’s heartbreaking, but you are doing it FOR her, not TO her. If her needs have grown beyond your ability to meet them then you have your answer. It’s time for placement.
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Did u even try hiring a caregiver to assist u and set up an alarm so she can’t leave the room. It sounds like u forgot through thick or thin. Did u get her tested for brain test, blood, nutrition diet u could change did u do ur very very best before sending her on her way. Also, u said she maybe better with others u can hire a caregiver to take her to programs or daycare and bring her home. If it were the other way around I’m quit sure she would do her very best for u. Most of us women do yo the very end. I think for anyone u go that extra mile until u know it’s just not working so quilt won’t set in.
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Lakelife Dec 2022
obviously, you have never cared for someone that is completely dependent on you, otherwise you would have more empathy.
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IF you are comfortable caring for her, and if you have some help and support, she is better off at home. No one will ever care for her they way you do.
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truppecantele Dec 2022
If a person is a wanderer she has to have 24 hours supervision ,
we moved into an assisted living place, wife at time would leave the bedroom in the night and wander trying to go home, she could not leave because was locked, but I did not worry like when we were living in our home , some time I would look for her, but most of the times the caretakers would take her back to our apartment, l did not like to live here but it was best for us,
more peace of mind.
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My heart breaks for you: my husband is 59 and I am starting to look. I get anxiety thinking about it. I cry at the thought! He is in stage 6 pushing stage 7. He is urinating everywhere but the toilet and I keep saying to myself it’s time. Once I find a place I have asked his brother and sister to take him when the day comes. I will set up his room as close as I can to our room. I think I will then stay away for a couple days as I know I will start crying seeing him so we can’t have that. Maybe I will get on some anxiety meds as well to help me. I know this is the best for my husband and sounds like the same for your wife. Do what you feel is best for her and yourself. I wish you all the luck!! Oh maybe some outside help if you don’t have any? Professional help that is. It does make it easier as I get 9 hours a week and know he’s taken good care of.
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Lymie61 Dec 2022
khouse, you might consider going to visit family or friends somewhere, a trip of some sort when he is moved. It might help your transition not to be in the home you shared just as it might be an easier adjustment for him not seeing you for a couple of weeks. As I understand it many facilities suggest loved ones not come to visit for a period of time to help the transition. I just want you to remember this will be as much a transition for you as it will be for him and you need your time to grieve.
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The decision will have to be what's best for her and you. If her care is getting to be too much for you to handle, and if in-home caregivers to take her for walks, help her bathe and dress, make sure she is fed and takes her medications, etc. is not an option, then a memory care facility might be best. There will be professional staff, other residents who might become friends, and they will organize appropriate activities for her abilities. They will also handle her meals, housekeeping and laundry. Only pack functional clothing for her to to take there that is comfortable, easy to get on and off, and can be washed in hot water and dryer (no fancy clothes that need dry cleaning). All the best to you. This is a difficult decision. But also remember that her condition is likely to decline, it won't get better.
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Yes, I placed my husband in memory care last July. It was a very difficult decision for me but I realize that it was for the best. He is a retired airline pilot and thinks he can get his license renewed and fly again. He would become very angry with me because I wasn’t able to help him do so. He was determined to take the car and do on his own. There were a couple of frightening moments when he almost managed to do so. I could no longer keep him safe so made the decision to place him. He thinks that they are helping him to get well so that he can fly again. This makes him happy and he is no longer angry with me. I visit almost every day, if not I call and talk to him. I still question myself at times but overall think I made the best decision for both of us.
hopefully you will be able to make a decision that will keep your wife safe and leave you with peace of mind.
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SusanDon Dec 2022
I think we are married to the same man! My Air Force pilot is the same. Sending blessings your way.
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I placed my spouse July 5, 2022, into an assisted living facility. My family and I toured seven facilities and selected our top two favorites. My husband and I had lunch at the two favorites and my husband chose the facility he preferred, and I moved him in. Placing my spouse of 57 years who suffers from Alzheimer's into Assisted Living was one of the most difficult decisions of my life, but it was one of the wisest. He has thrived physically and emotionally. In his mind, my husband is "home."

Every situation is unique. Telling someone else what they should do or not do when life decisions are being made is beyond my scope of expertise. However, you asked if someone had placed their spouse in Assisted Living and I did. Placing my husband improved his quality of life and saved my life.
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My wife (born in 1955) had dementia issues and I kept her home as long as I could.  She would wander and refused to wear any sort of tracker (such as project lifesaver) saying she was not a criminal. I retired early to be able to care for her. The local police got to know her from wandering issues. She was erratic in driving but I let her do some for short periods (before her driving issues would kick in and under supervision).  Finally, the police that found her reported this to DMV and DMV required a medical form completed by her doctor and sent directly from the doctor to DMV. That ended her driving when the DMV revoked her driving privileges.
 
I had purchased long term care insurance years ago and started some in-home assistance. However, at one point she started acting aggressively. When I no longer felt safe sleeping in the same house with her we started looking for memory care facilities. After she attacked us twice within 2 hours the police took her in and she was sent to a state hospital for evaluation. They determined that she needed to be in a controlled memory care facility and agreed to release her as long as she was taken directly to the memory care facility we had settled on. But when she did come out from the state hospital it was like she was a different person.
 
For me putting her in memory care was a very difficult decision but in retrospect it was the right thing to do. Lesser options such as the adult care facility were not available due to Covid shut downs until her condition was so bad that they could not allow her in the program once they re-opened.. My life is emptier as when visiting she really does not seem to recognize us and it is hard to see my wife in her. She cannot assemble a sentence to communicate with us. All that comes out is gibberish. She had been the true love of my life (we have been married for over 43 years) and that makes it hard to continue without her as she was.
 
And as a later shock I got a call from Adult Protective Services. I had always been concerned that they may be second-guessing how I handled my wife through this process. However, they said that I was the one that they saw as at risk and since she was now in the memory care facility they were closing the case as I was now safe.
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My wife (born in 1955) had dementia issues and I kept her home as long as I could.  She would wander and refused to wear any sort of tracker (such as project lifesaver) saying she was not a criminal. I retired early to be able to care for her. The local police got to know her from wandering issues. She was erratic in driving but I let her do some for short periods (before her driving issues would kick in and under supervision).  Finally, the police that found her reported this to DMV and DMV required a medical form completed by her doctor and sent directly from the doctor to DMV. That ended her driving when the DMV revoked her driving privileges.
 
I had purchased long term care insurance years ago and started some in-home assistance. However, at one point she started acting aggressively. When I no longer felt safe sleeping in the same house with her we started looking for memory care facilities. After she attacked us twice within 2 hours the police took her in and she was sent to a state hospital for evaluation. They determined that she needed to be in a controlled memory care facility and agreed to release her as long as she was taken directly to the memory care facility we had settled on. But when she did come out from the state hospital it was like she was a different person.
 
For me putting her in memory care was a very difficult decision but in retrospect it was the right thing to do. Lesser options such as the adult care facility were not available due to Covid shut downs until her condition was so bad that they could not allow her in the program once they re-opened.. My life is emptier as when visiting she really does not seem to recognize us and it is hard to see my wife in her. She cannot assemble a sentence to communicate with us. All that comes out is gibberish. She had been the true love of my life (we have been married for over 43 years) and that makes it hard to continue without her as she was.
 
And as a later shock I got a call from Adult Protective Services. I had always been concerned that they may be second-guessing how I handled my wife through this process. However, they said that I was the one that they saw as at risk and since she was now in the memory care facility they were closing the case as I was now safe.
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Daughterof1930 Dec 2022
I’m so sorry for all you and your wife have been through. I’m glad you had the wisdom to see to it that she’s now in a safe place and are still her advocate. I well remember my dad’s loneliness and feelings of loss while mom, his beloved wife was in a nursing home. He definitely missed the wife he had. Your wife is blessed to have you, and though it appears she may not know you, I’m confident that she knows your love and care
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My wife (born in 1955) had dementia issues and I kept her home as long as I could.  She would wander and refused to wear any sort of tracker (such as project lifesaver) saying she was not a criminal. I retired early to be able to care for her. The local police got to know her from wandering issues. She was erratic in driving but I let her do some for short periods (before her driving issues would kick in and under supervision).  Finally, the police that found her reported this to DMV and DMV required a medical form completed by her doctor and sent directly from the doctor to DMV. That ended her driving when the DMV revoked her driving privileges.
 
I had purchased long term care insurance years ago and started some in-home assistance. However, at one point she started acting aggressively. When I no longer felt safe sleeping in the same house with her we started looking for memory care facilities. After she attacked us twice within 2 hours the police took her in and she was sent to a state hospital for evaluation. They determined that she needed to be in a controlled memory care facility and agreed to release her as long as she was taken directly to the memory care facility we had settled on. But when she did come out from the state hospital it was like she was a different person.
 
For me putting her in memory care was a very difficult decision but in retrospect it was the right thing to do. Lesser options such as the adult care facility were not available due to Covid shut downs until her condition was so bad that they could not allow her in the program once they re-opened.. My life is emptier as when visiting she really does not seem to recognize us and it is hard to see my wife in her. She cannot assemble a sentence to communicate with us. All that comes out is gibberish. She had been the true love of my life (we have been married for over 43 years) and that makes it hard to continue without her as she was.
 
And as a later shock I got a call from Adult Protective Services. I had always been concerned that they may be second-guessing how I handled my wife through this process. However, they said that I was the one that they saw as at risk and since she was now in the memory care facility they were closing the case as I was now safe.
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My dad was my mom’s primary caregiver. She was diagnosed in 2006, and her needs exceeded his ability to keep her safe in early 2010. As much as we wanted her to be able to stay home, her safety was paramount, and we all knew it. We (my sis, my dad and me) all toured MC places and found a lovely one.

My point is her best interests had to come first - health and safety are paramount. It doesn’t mean it’s not difficult emotionally, because it is. The thoughts - are we abandoning, failing, etc. Failure would be failing to recognize when the situation exceeds our abilities. Heck, we would move heaven and earth, if we could… but the point is, we can’t.

Health and safety. Her’s and yours, too. If she is wandering, finding a great place where she is safe, in the right environment with the right care, and you can visit, is going to benefit her the most. Plus you need your rest in order to advocate for her in other ways, and for you to stay healthy.

My best to you both.
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Yes. My husband moved to an AL/MC residence in July. Heartbreaking and I miss him very much but can no longer maintain a safe and healthy environment for him despite a team of aides, nurses and therapists coming to our home. He continues to show great improvement with 24/7 care and loves his classes, meals, and socialization. I visit every day. It is extremely difficult but the right thing for his well being and mine. God bless everyone going through this stage of life.
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Candy22 Dec 2022
How old was your spouse?
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I believe you understand the dilemma of trying to have a relationship with a person who has become a stranger. I also commend you for understanding her need for socialization and relationships (even if that's not the goal, she just needs to be heard and for people to watch over her 24/7). If you place her very close to your home or place her in Memory Care where Independent Living is available to the spouse, then you can keep a watch over her daily care): it's called, "Continued Care or Life Care."

We've all heard of the nightmares that some facilities provide, so it's wise to stay close or hire a "Visiting Angel" for daily visits (remember President Reagan's famous quote, "Trust, but verify." You do have options and an Elder Law Attorney can be a great asset to have as you navigate old age: I've come to realize that we all have to make choices for ourselves, too, or we will be old and lost just like our demented loved ones.
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I also had to make this decision
she did not like it but we could not make the stairs, so we moved in an assisted home care , she also had dimmentia , we were well taken in care, she passed away after 2.5 years at age 88.
here we were taken care , we did not like to leave the home that we built and lived there for 62 years.
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Absolutely, it's necessary for their wellbeing and YOURS too. I had to place my sister in memory care when she became unable to care for herself. I went through a lot of guilt over it but it turned out to be a real blessing. I visited several times a week and always on different days and times, in order to be sure she was being taken care of properly. You WILL have guilt, no way around it but you are doing the right thing.
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You have already gotten some wonderful advice. Placing them in MC is one of the hardest things you will do. If her safety is being jeopardized and your health is suffering because you are trying to manage her, it is time. I placed my husband of 48 years in an excellent MC facility. We set up the room so that it was nice and homey. While it was so so difficult to put him there then walk away, it was the most compassionate and loving thing that I could do for him. Soon, he began to think that it was his office and that the people were his agents (we owned a real estate office years ago). He also thought he was back in the military. I go to see him almost every day and that has helped both of us a lot. Sometimes I take him out to spend time with our grandchildren, which he absolutely loves. At times, he will say that he wants to go back to our home, but that is not possible since he probably wouldn't want to leave. While I have peace of mind because I know that he is safe 24/7, it is still hard for me to live without him. The journey is tough. All you can do is navigate the best that you know how.
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Dear Newtothis22:

Yes, I did it for my wife of 55 years. It is selfish to hang on to something that is gone and you know it is gone yet your heart sees the physical person and not the reality of someone that is no longer occupying the physical body you know so well. You have to learn it.

My wife has been in MC for 6 weeks now and I visited her everyday for the first 4 weeks and have learned to try every other day but will also cut that back. I was her full time caregiver for approx. 4+ years and the disease finally stole her from me.

Like everybody told me but I didn't believe it, she has made new friends and may not even know there names but the attachment transfer is definitely there. You will be amazed at what the inner self finds to compensate for the loss of memory. It is a way and despite the incredible cost, it has saved my life and sanity for the remaining family I have and love.

I often say that dementia is a fate worse than death and it is....but who would choose that? Not me....I have my love and my memories and just hope and pray that my wife will be comfortable, satisfied and happy for as long as she is able to find compensation in what has been placed on her. With death, it is definitely over....with dementia, you are in a fight that you are going to lose. You can't help your loved one (other than MC) but you can and should help yourself.

If you just can't stand it, you can always take her out of MC care. But you will be signing your own extended misery.

I wish you luck!
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As far as visiting your wife in MC, you will have to do what feels right. I absolutely love both the pictures of my Mom before and after dementia, even though they are very different people. Why? I loved both of those special angels. Many days in her dementia, she did not know who I was. It did not matter to me. Before it got to that point, I wondered what it would be like, if as bad as everyone said. Not at all, to me. I was honored when she called me "a good friend". Her friends loved her unconditionally, not like us kids. So I understood her confusion. I was sweet to her now. Lol I was just so glad that in her dementia she trusted me. That was a hard earn, they are so scared. In the end, when we learned to clear up her infection, she did know us! It was all a gift. There is an old story. Friend to man: "why do you bother to visit your wife every day, when she hasn't known you for two years?" Man: "I know who She is."
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All I have to say is research the facility and make sure it is a place you would be happy in. I had a bad experience with one. There are small places and large ones each has a different feel. Good luck.
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