I know this sounds horrible, but I spent the last 4 years of my life tending to the needs of my elderly mom (who never took care of me) who is now in a county run assisted living home, and I am contemplating bowing out of my responsibility.
Mostly I am fed up with how her social worker seems to be more concerned with the needs of the group home owner, than my mom's interests, and she keeps telling/reminding me that the program is not an "entitlement" program--it makes me feel as if she's saying I should be chipping in more of my own money to cover my mom's expenses.
First off--I stepped up to help my mom when her husband's sons evicted her the moment they put their dad into a nursing home. No one else would have helped her. If I hadn't, the county would have had to collect her off the street. I have never been close to my mom at all. She wasn't a good mother, but I felt I owed her at least a way to have a roof over her head, so I got her to sign a POA, and I made sure she had a home, food, Rx's and doctors visits. She has nothing but Social Security so when her dementia got worse she was able to qualify for the group home subsidy.
I signed a document, that was also signed by the home owner that stated they got her entire SS check except for $60/mo. I use the $60 to go toward her doctor visits, Rx's, vitamins and sundries that the home won't cover, but I still end up spending money out of my own pocket. After a few months, the home wanted her to chip in an additional $70 every 45 days for the required nurse's visits. Despite what the contract stated, the social worker encouraged me to pay it, basically saying the owner would boot my mom out if I didn't because she was "losing money" on her.
The social worker is annoying me, but I doubt the county has another person to assign to my mom, as I believe there is only one who covers the group homes. I suppose trying to find out who her supervisor is would be one option, but I am also feeling very resentful with having to do so much still, and wondering what is involved with turning her care completely over to the government. Just because we are related by blood, should I have to continue to supplement her needs until she dies?? Sorry this was so long. Any advice is appreciated.
Whatever you decide to do, don't let anyone make you feel guilty. You need to take care of yourself and prepare for your future. Good luck!
Good luck - definitely contact Council on Aging or whatever it's called in your area, the website will have lots of info to start with.
I hope you do give up this burden, especially since your mother wasn't good to you.
I could not again place daddy or mommie in a home like that,nope.I just couldn't.But may God bless you,in doing what is right/best for you,and your mother.adios.
You are not alone; your mother is not alone!
1. There is an ombudsman with whom you need to speak as soon as possible. Please read this article from Elder Law Answers.
https://www.elderlawanswers.com/ombudsmen-front-line-advocates-for-nursing-home-residents-1105
Elder Law Answers will be a great help to you in other ways, too.
2. It sounds as if this social worker and/or assisted living facility should be reported to the state. Social workers are professionals who are licensed by the state. If she is truly a social worker, her license must be displayed on the wall of her office, along with the contact information of the governing board which licenses social workers in your state, where reports must be made. Call them; they will welcome your call, listen to your story of your history with her and suggest how you may proceed. If she is not licensed but is practicing within the bounds of your state's Social Work Practice Act, this is illegal; it has serious consequences for her and for the patients/clients and family members she is or could be hurting – "fundraising" for her employer, a.k.a. extortion, better not be in her job description; it is illegal.
The same thing holds true for the owner/administrator and/or the facility itself. The licenses for the Director of Nurses, if s/he is involved, and for the facility are posted somewhere. Take a photo with your camera to avoid any obvious lingering while you take notes or other actions they may consider threatening. Or take a "group photo" or "selfie" where the documents on the wall are the real subjects of the photos.
In both my personal and public experience, the agency will gently ask you questions, then undertake their investigative steps from there. In one personal experience, I was shocked when the state found that the provider had violated 16 of my 23 rights as a patient when I expected 2 or 3 had been! What I experienced afterward was a significant change in staff and a complete change in operational policies which benefitted patients and staff alike; it was a turning of the institutional culture upside down, or more correctly, right side up. Two of the new management staff came alongside me for the long term, gave me their direct and private numbers with instructions to call at any hour– that sort of thing. Perhaps it was to safeguard me from any retaliation, as I think about it now, but I only detected real concern for what HAD happened to me, not for what might happen to me.
Regarding turning your mother's care over to the government, I think what you are talking about is legal (Power of Attorney [POA] and/or POA for Health Care [POA/HC] or some similar designation) and financial. Ideally, our elder parents and all the children would have conversations before the needs arise, resulting in a completed or updated Last Will and Testament and a Living Will with Advance Directives about how each parent wants the end of their lives to play out from the health & medical perspective, and arrangements made for handling bills and other disbursements of funds should the parent become incapable of managing their affairs.
But "ideal" seldom happens. What is available in your situation is the court system. Your mother would, and should, be declared non compos mentis and someone or some agency would be assigned by the judge to take responsibility for her affairs, including her care. In one personal example, a lifelong family friend, an "honorary niece" who lived locally to my dear uncle came alongside him when his behavior became erratic. She oversaw the creation of those end of life documents with him; I was appointed POA/HC, probably because I was his eldest niece and a healthcare professional. She admitted him to one facility but his dementia soon outpaced their ability to care for him. Together, we found an excellent memory care facility, and she bowed out as she was also helping another elderly friend in the same ways. Whew!
The court also appointed a nonprofit agency in the county where he lived to manage his funds. In practice, we worked hand-in-hand. As I knew how his dementia progressed through our phone conversations, the time came when he could no longer call me in the midst of his times of panic and incoming calls from phone banks preying on seniors, so I informed the agency and asked to stop his phone service.
Ask the professionals as you pursue these services and avenues to gain great improvement in your mother's circumstances, Steppedup, if there are other services you are missing. I hope that when her circumstances are better and your workload is lessened, you will find that you now have choices about how much time, if any, you will be spending with her and for her. I'm praying that you will find peaceful nights and healing in your relationship with her.
I have a similar relationship with my mother. When I moved back to my hometown, I set boundaries. For example, we would never live together and I would never provide personal/nursing care. My resolve is being tested right now and the guilt can be debilitating.
You are not alone. Best wishes for a speedy resolution.
In terms of overseeing an older person's long-term care, there's being financially responsible and then there's making the decisions (which usually requires being general durable power of attorney or being a guardian/conservator).
Some states have filial responsibility laws, and an older person's children can be held financially responsible. I read that historically these laws haven't been enforced but that now some facilities are trying to use this route to help get paid.
https://www.agingcare.com/articles/filial-responsibility-and-medicaid-197746.htm
Otherwise, if you're unable or unwilling to keep overseeing your mother's care as POA, then she would presumably need to be referred to the state for guardianship proceedings. I am not sure who would initiate that petition or pay associated court fees.
As someone else noted, the best would be to speak to a good elder law attorney, but you can certainly start by calling your local area agency on aging and trying to do some more research on your own.
Good luck!
"An attorney-in-fact may resign by any of the following means:
(1) If the principal is competent, by giving notice to the principal.
(2) If a conservator has been appointed, by giving notice to the conservator.
(3) On written agreement of a successor who is designated in the power of attorney or pursuant to the terms of the power of attorney to serve as attorney-in-fact.
(4) Pursuant to a court order.
I'm assuming the OP doesn't live in California. Before talking to a lawyer, might be useful to look up the relevant statutes for one's own state.
You may have mentioned it but I didn't see it, is Mom on Medicaid? If not u need to file for it, if yes this facility is being paid for this nurse to come in. I would bet she is a state nurse since they are a county run facility. As a government facility they are probably a charity facility. As POA you r not responsible financially for her care. Unless, you signed something saying u were taking financial responsibility. Think, if she had no one who could they go after? I would do what Jane suggested. I would also start looking for another facility. Mom will eventually need more care than an AL can give.