My grandmother is 90 years old, lives at home, and no longer drives. Her house is organized, but it is horribly infested with termites and roaches (to the point that the termite wings are gathered along the baseboards, the window sills, etc) but she will not allow the house to be tented or an exterminator to come. We have attempted to reason with her but to no avail. She says it is terrible for her health and that those chemicals can't be sprayed in her house. (A Dr. told her that some 40 years ago and his words are coming back to haunt us)
She is no longer very steady on her feet and falls easily, which is a source of fear for all of us. However, she refuses to use any assistance. There is even a walker that sits in the corner of her living room.
Her eyesight is a mess, and the lenses from her glasses fell out but we cannot get them repaired because she will not come off those d*mn glasses even for a few minutes! She been walking around with only one lense in her glasses for almost a year.
She is fixated on laxatives and is constantly asking for them. She chugs milk of magnesia, prune juice, etc. because she claims she is constantly constipated. however, this has caused her bowels movements to be almost uncontrollable and, dare I say, explosive. She wears depends now, thank goodness, but the laxative abuse is NOT healthy. I've tried to alter her diet so that she is eating things with fiber and healthy stuff, but she turns up her nose at them. Her diet now mostly consists of white bread, some lunch meat, boiled eggs, apple juice, zebra cakes, and oatmeal cream pies.
Almost the entire top row of her teeth is rotted out at the gum line, but she will not seek dental care. They've been like this for years.
My grandmother has some form of dementia, but she is not a wanderer, in fact she refuses to leave her house. It's horrible to watch her fall apart one piece at a time, and refuse to cooperate to get any medical care or additional assistance in the home.
Last Tuesday we hit our breaking point. We had a Dr. Appt. scheduled, which she has known about and we've been discussing for almost two months. She'd been whining about needing to go to the Dr. My mother drove 6 hours to get down here so that we could all go together, and when we get to my grandmothers house, she announces that she is NOT going. She used several different crazy lies, excuses, etc, and when we refused to give in, she flipped her lid. She screamed, hollered, tried to hit me, threatened to throw a TV remote at my face, said she wanted to kill herself, etc. this went on for over an hour. Then a few days later, she whine AGAIN about needing to see a Dr. She fully remembered the hissy fit and cancelled appointments from two days before. What the h*ll????
So what steps do we take (my mother and I) in order to get her what she needs and ease our own peace of mind? After the tantrum last Tuesday, we feel that she is no longer capable of making healthy choices for herself. My Mom would like to see her go somewhere that would monitor her diet and keep a watchful eye on her, considering her lack of balance. Or at the very least, we would be very happy with a home health aide. But how do we get get ball rolling?
There is no POA or legal paperwork that would enable us to force her hand at this point, and deeming her incompetent would be tricky, at best. She still is aware of how much money she has, what bills are due, who we are, etc. etc. She is not completely "out to lunch" And we would like to approach this while preserving as a much of her autonomy as possible.
In a nutshell, we feel that we are being careless by standing by as we are and bearing witness to her self neglect. It's heart breaking. Any ideas or suggestions are much appreciated.
We are poor and did it without any attorneys. I was able to get my mom to sign a free durable POA document ($1 fee for the town hall clerk to notarize) because she had stopped paying bills and didn't seem to mind me taking that part over first. That was the first thing I did to get her money untangled. I got the form online from the state website. Then you file that document at the bank, doctor, pharmacy, hospital, insurance agent, anybody who will listen to you with half an ear needs their copy of that document. I still walk around with it to this day.
Mom was living as a hoarder 1800 miles from me, neglecting her diabetes, with dementia, and had alienated every family member there is. I moved her to my state by just taking charge. She didn't want to move, but it happened and there was literally nothing she could do to stop it. Yelling at me didn't stop anything. Movers came, put all her mess on a truck, and I put her in the backseat of my car and drove her to my state, and set her up in an assisted living facility. I scheduled my time off, the movers, and everything entirely without her because she was not capable or willing to participate.
You are going to have to take charge and make decisions about what is safest for mom, regardless of what she says she wants or likes. When it becomes dangerous for them, it's past time for somebody to step in and take action. It does creep up on family, and it's hard for a lot of family to admit it's "that bad" and really time to get serious.
My plan-B was to hog tie her, stun her with a cattle prod, and throw her in the car with a paper sack of underwear, but fortunately, it didn't come to that.
Guardianship is a lot more strict than durable power of attorney, so I'd recommend reading up on the difference between the two. Guardianship has a lot of requirements.
Until an accident forces her hand, that is, and sends her willy-nilly into hospital, then rehab, from where she'll have her work cut out to get released back to her own home. And that would be a shame.
Reading between the lines, your grandmother is terrified of admitting to any weakness for fear it'll be the thin end of the wedge, do you agree? So she's ruling out even things she, and any other person, would routinely need like regular medical and dental care. And fewer cockroaches. Shudder.
I agree with Pam S that APS would send a social worker round - just wondering what social workers have ever done to Pam that she'd wish it on them :) They would do that; whether or not they'll get very far when a lucid old lady tells them in regrettable detail what they can do with their kind offers of help is a different question. But, still, worth a try. Good social workers know how to walk softly. Take care, though, because what you don't want is the whole thing getting horribly out of hand and your grandmother's house being declared unfit and her being carted off to the nearest facility… DON'T PANIC. This won't happen as long as you keep communications and aims very clear and focused.
Or, could your mother telephone your grandmother's doctor and explain the situation to him? She could contact him ostensibly to apologise for the cancelled appointments, and take it from there. If he's the kind who'll do home visits, he might be able to slip an initial assessment of competence past your grandmother while he's checking her over physically - that might be worth a try, too. And if he's known her for years and she trusts him, maybe she'll listen to his advice?
Best of luck, keep us posted. You're doing your best in a terribly difficult situation.
There are no siblings or family who would dispute anything. I am literally the only person on the planet who is willing to deal with this woman on any level.
Whatever way you get there- with or without an attorney or guardianship- you need to get somebody someway to step in and help. I was just appalled that nobody in mom's circle - family, doctors, pharmacist - saw through her coverups and lies and genius ways of compensating for her debilities, but she used anger and aggression to run people off and out of her business . I want to go back and shake every one of them - especially her sisters - for letting it go. I guess they figured she'd either die and get out of the way, or I'd figure something out, which is what happened.
The message that somehow has to get through is that if everyone works together she can stay SAFELY and healthily independent, in a house that's been de-infested and repaired. At the moment she's scared to give in, so she has to be persuaded that it's not an either/or situation. It's a ticklish diplomatic mission, quite a challenge but worth the effort.
My grandmother would not have any justification to feel livid, should we force her hand at this point. For the past 6 months, my mother and I have bent over backwards to accommodate her, respect her independence and authority, etc. etc. Before this, she was primarily depending upon my Uncle, who passed away recently. We've discovered that my Uncle was making cash withdrawals from her account with her ATM card, buying a good deal of his beer and groceries on her ATM card when he would go shopping for hers, and he was also horribly rude and hateful to her. Perhaps some of her defensiveness is due to being around that for so long? I don't know.
She will complain that she can't stay by herself anymore; that she wants to sell her house, etc. however when we ask her to go into detail, she back peddles. We've made it clear that we will do whatever we can to make her happy and keep her safe. Our only prerequisite for her IF she wanted to go to a nursing home/ assisted living is that the facility is a quality place with a great reputation.
It's very hard to not take control when you are watching your loved one neglect themselves and wallow in despair. We are trying, really really, trying, to work WITH her, but she's making it almost impossible. At this point, should something happen to her, I would worry that I would get in trouble for elder neglect.
As far as Baker Acting her, if I would have been there by myself with her when she threw a fit, tried to hit me and throw a tv remote @ my face, and repeatedly threatened to kill herself, h*ll yes I would've baker acted her. I would never have forgiven myself if she actually followed through with it and I chose not to take action. However, with my mother there, I yielded to her choices. I trust Mom's judgement and I also want to not get between her and my grandmother.
Side note- the healthcare facility my uncle had been taking my grandmother to was not a great place, and I would venture to say that the Dr had no relationship with either of them. So getting their assistance would be an exercise in futility.
Once again, I just want to thank you guys for all these valuable responses from other who are also "in the trenches". It really means so much!
I'm sorry if I sounded unsympathetic, I really am not; and I really respect your carefulness in supporting your mother without getting in her way, too - that's not easy, either.
If it's any consolation - :/ - the time will come before long when frailty will force your grandmother's hand.* I'm sorry for it, it's not the way anyone would want things to go, but knowing there will be a change before long might make it easier to get through this time.
*Given how much effort you and your mother have already made, there is zero chance of a charge of neglect.