Dad is 78 with slight dementia. He’s stubborn as stubborn gets - always has been. He lived alone an hour away from me until December 2018, when he went into the hospital because he couldn’t walk. Since then, he’s been in a rehab facility, then back in the hospital, then in February, to a different rehab facility. To this day that is where he’s remained - NOT on Medicare anymore, but now private pay. He hates it. His room is down the hall from LTC so he’s resorted to “helping” with patients and saying he works there. I’ve taken him to visit 2 beautiful assisted livings close to my home. He says he likes them but wouldn't want to live there. He wants to go home. Truth is, he can’t. 80% of the time he’s in a wheelchair and his house is not equipped for that. He also wants to drive again. Not happening. Soooooo every day we have the same conversation...... he’s packed and ready to leave. Could I help him and bring him home. It breaks my heart when I have to have this conversation but I do because for my own sanity, I have to get off this crazy train. I try to explain to him how much better a small apartment in assisted-living would be. He said “you” think it would be better. I don’t. I beg him to just try..... but then he says I'm happy where I am. It’s fine here. But tomorrow comes and we’re back to the same conversation. I can’t take it. He’s always hated change and I’m starting to believe that the dementia has very little to do with it. Even when we’ve gone to see 3 assisted livings, so he could choose which one he likes best, he still goes back to the decision being mine to move to one. I don’t even know how to handle this anymore. I’be never been a controlling person (even in a case like this, when I know the decision to be in AL is best.). Many people would have just moved their parent by now because they know it’s for the best, but I just can’t. By leaving him where he is, is doing nothing for his QOL, not to mention MY QOL! I visit all the time to give him social interaction, but it’s consuming me. Please please please give me your thoughts! Side note, the facility where he is now, offers me no help at all. They would love for him to stay there for the $ he’s paying. They tell him he works there and they barely pay any attention to him at all. He has to move. Bottom line. Ugh
He may be more obliged to go check one out if he was included in the process? It seems like you have a decent relationship with him and maybe coming clean about how stressed you are might get him to soften up a little.
It's hard, all of this. I hope things will get easier for you somehow. Say a prayer before you go into visit with him and no matter what the visit is like, give a prayer of thanks when you leave. And then try to leave it there.
All of this is so much easier said than done. Take care.
I think I am safe in saying that none of us who had to make this decision were happy about it. It is one of life's unpleasant choices, but as you are well aware, he really shouldn't stay where he is.
Although there are many suggestions here, being stubborn with early dementia is a tough one. Although before dementia AL WAS in mom's plans (HER plans, not ours), after it kicked in, early stages, no way would she even consider one. She used to visit the ones local to her for the free lunch/tour, but when it was time, we tried bringing in aides, just for a hour to check on her and if she took her meds with the plan to increase as needed. That lasted less than 3 months and she refused to let them in. Brothers suggested moving in with one of them, NOPE. I asked what about assisted living - PAUGH, I wouldn't live in one of those places! POAs are hopefully in place, but they help you with signing paperwork for him, managing finances, coordinating medical, but not forcing a move or making the decision for him.
The problem you have is multi-faceted - he wants to return to his home and if not, he wants to stay where he is.
You have already stated that moving home, even with assistance, isn't happening, so let's just drop that.
Next you try to explain and have a conversation with him about moving. A combination of dementia and being stubborn, you are expending energy that is going to get you nowhere. You can't argue, reason with or convince anyone with dementia if they've already made up their mind. Even in early stages.
What we had to do was resort to some trickery with mom. In her case, she developed cellulitis days before the move. It delayed her move a couple of days. YB wrote a letter from "Elder Services" at the hospital where she was seen for the cellulitis. In it he wrote she either moves to where we choose, or they will place her. Oh, madder than a wet hen, but she reluctantly went. Once there, she hounded YB every time he visited over the next NINE months to take her back to her condo. Thankfully she never asked me. Now if she remembers, it is their previous home, from 25 years ago. You WILL have to work on getting good at deflecting and redirecting. As the dementia progresses, you will need these tools in your kit. Although often it requires bending the truth, keep in mind the little fibs or white lies we have to use are NOT meant to hurt but rather to protect him. Some say tell the truth - this often doesn't work. It wouldn't for us.
Now, getting him to move. I can see some options for making the move, but first - you mentioned AL. Is this strictly AL or some kind of memory facility? Moving is hard for those with dementia, so it is best to avoid multiple moves. If this is only AL, I would suggest considering MC now, to avoid yet another move down the road.
* Just make the decision and go for it!
This is NOT about control, it is about doing what is best for dad.
He did say, at some point, he's leaving it up to you, so it isn't control.
He is or can be packed and ready to go, just sign up in the place
you think is the best fit for him, and bring him there. Just say that
his house needed some repairs and he needs to stay here for a bit.
Every time he asks (you should avoid going for a while) about going
home, they haven't finished the work yet.
* The place tells him/he thinks he works there, so you found him a better job.
If you explain this to the staff of the place you choose, they can let him "help."
* Tell him the facility he is in is closing and he needs to move. Excuse for not
going home from there - doctor's orders, you still need to work on PT/OT
before you can go home. Repeat as needed.
You can always reuse some of the excuses above, every time he might bring up going home. It will happen, so again, you will need to hone your skills for excuses or changing the subject. Mom has been in MC 2 years 9 months, and still sometimes asks about going back to her own place.
Of the places you've looked at, was there one in particular that you really liked - considering location, activities and continued therapy he could get? If so, was it one that he liked..just didn't want to move there? Go with that one. Take him back and spend a while there with him. Ask if they would let him see the activities, mingle at lunch time, etc with you there to get the mingling going in the right direction. Then tell him that he will need to move here for a while so you can work to see if he can go back to other place. Talk up the good points - it's like 5 minutes from my house, they play dominoes every day, the food is much better here, etc. Don't rush in/out of his visit there. Make sure he has time to meet and have some chat time with someone else at the facility. Best of luck.
You need to write down what he is currently spending and how long that will last. Make sure to add in all the extra costs too-hospitalizations, etc. Then write down the cost/benefit of your top 2 AL. Tell him you will take him to visit each place next week and after you get done the two of you will make a choice. Tell him you will make the decision together but then it’s done.
It sounds as if you are a mercy and have difficulty making decisions because the emotion of all the “what if’s” ways on your heart and mind. It also sounds like you have always been happy to let others make decisions for you. Unfortunately that is no longer a luxury you can afford. It’s time to step up, and get it done. You can do it! We have faith in you and we’re here to help!
Annabox, you know what he enjoys and his temperament, find a continuing care facility that he can get his needs met at and not have to be moved as his care needs increase.
Some places are better than others, go have lunch, talk to the residents and staff, other visitors and get their opinion on the care. I also think that the food is important. Feeding seniors pig slop when they are paying thousands of dollars a month is a HUGE red flag for me. Means they don't care if they are meeting nutritional requirements and that means a pretty unhealthy group of people. Nutrition is so important as we age.
I know how hard this is for you. I bawled like a baby having to pick a facility that my dad could afford and having to move him in, it's not natural to be the authority for our parents. Unfortunately you have come to the place that you must. He is no longer able to make informed decisions, his executive function is not there. Hugs! You can do this.
Dementia patients always need consistency in their environment and routine. Of course, he wants to stay where he is already acclimated or go home to his house, which he also knows. A "new place" is kind of scary. Help him by making the move as easy as possible and make the "new home" more similar to what he already knows. He will not be happy until he adjusts to the "new home", but it will happen with time.
Later, you could go twice a week.
Best wishes,
Bob
http://bit.ly/2ZBp57L
I also agree with the others, stop going there so often, being a helicopter caretaker is not the answer.
Your father is fortunate to have such a caring daughter, now do the right thing for him, turn the decision into a positive, as it is not a negative.
If you were him, where would you like to live - at home or in a home?
Not similar in anyway to having a whole village care for him.
I’m afraid somebody is going to have to be the adult in the room and decide what is best for him. He’s already told you that the decision is yours to make, so you’ve already won 99% of the battle! Make the decision and go for it!
Having POA will definitely help with the paperwork etc so if you don’t have that already, now is the time.
Good luck with your father, and take these suggestions to heart, they will really help you!
My dads family are all large people yet comment on my weight every time I see them. Really! It's good to see you too. (By the way, I am the smallest person in the house and I still get criticized for my weight)
I agree, it is so annoying to have the repeat conversations, with no resolve. Good luck. I like all the suggestions.
And by the way, @Annabox, you sound like a wonderful, loving daughter. Your dad is blessed to have you in his corner, even if he doesn't realize it.
You have done everything you can. If he doesn't allow you to help in this, and if you have no power to act, there is nothing you can do, and the more you PUSH, with his personality, the harder he will fight you.
I would try to attract the bees by moving the honey. Visit much less. Tell him you long for the day he will agree to move closer where you can see him every day and help him more, but that you won't make the decision for him.
If you have POA, and if you want it you should be getting it now, when he is less capable you can move him, but at that point the choices may also be less attractive. Wishing you luck. Hope you update us.