Hello and it's my first time on this forum. I don't even know where to start, it's all so complicated. Just knowing you're all here gives me hope that I'll find help and understanding when I'm ready to put it all into words. My mother is 98 years old and still doing not-too-bad in an independent living facility. I moved into the same building that she's in, 6 weeks ago, to give her the extra care she seemed to need to keep her from having to move into an assisted living place, which she was dead set against. We're constantly locking horns. I overheard a conversation just this evening between her and my brother (yes, I was eavesdropping) that shocked me. And hurt my feelings. And now I'm thinking I made a huge mistake in moving halfway across the country to be of assistance to her, and to give my 3 brothers in town a bit of a break from the mother-care they've been doing for years. I was thinking it may have been a huge mistake before I overheard that conversation, because I was already so frustrated with things. Like I said, long story, but at least this a start.
Did your mother ask you to come? If so what did she want you to do once you were there? Did your brothers ask you to move back? If so, what did they want from you?
If any of these people asked you to move back, then think about what they said about what type of help they needed/wanted from you. Where did they want you to live?
If you made this move without being asked to by your mother or brothers, then I'd suggest you back way off, even move to a rent house in same town or nearby town & get a job, friends, a life. Enjoy visiting your mom weekly & take her to appointments when able. That way you are helping your brothers some & getting to help your mom a little & enjoy seeing her more, than you would in another state, during her last years.
IF you were asked to move back to help, especially by her: Don't lose heart. Take a step back & look at this whole situation. There are a lot of players in this so things may not be as they seem. No matter why you are there, your brothers, & even your mother, may be tired, jealous, envious, resentful, afraid,... just like you are.
If someone asked you to move back, talk to them about what you understood they wanted from you, and hear what they say about what they expected from you. If you are both on the same page, then move on to "I am new at this and feel I'm not helping you like you wanted. What can I do differently to help you? You will either get the "oh no you are doing great.." then they will behave better for a day or two. Or you'll get the "I never asked you to be here..." or the "I'm sick of you bossing me around...". Then you will both go to your own "safe space" to hide/sulk for a while.
Either way, from what your post said, I say you need to back off a little. Not because you did anything wrong, but because she/they are not use to this "extra/new" person's opinions, ... and everyone needs a chance to adjust to this family's New Dynamics.
I lived in another state than my parents for years and moved back in with them, after my mom asked me to several times over 2 months. That was 1 1/2 years ago. All my siblings were 100% behind me & paid my moving expenses. My parents were thrilled I was with them and told me that daily the first week & mom was lounging on the sofa enjoying her vacation. I was doing all the things my mom specifically said she can't do anymore (clean, laundry, cook...). By the 3rd wk mom was getting antsy & trying to help/critique my cooking, mopping (we had some little spats too). By the 5th week I overheard her say to dad "I don't know who she thinks she is coming in here and taking over! She's just bossing us around!". Of course my heart immediately sank. I closed my bedroom door to hide for a while, cry a little, question if I'd done the right thing, and review my actions to see if I had really been bossy. After reflecting & calmer, I reminded myself that my dad has Alzheimers, and my mom needed help because she has progressing dementia, anxiety, confusion, & back problems so can't fully care for dad anymore, remember nor always reason well. I realized that even though they did really need me to do all the things I was doing, it was still a hard transition for my mom to suddenly give up all the things she'd done daily for 70 years.
My advice is to back off on whatever it is that you were doing that caused ripples.
Let your mom be in control of as much as possible.
Ask before doing things for her & give her choices. "Mom, earlier today you mentioned the carpet being dirty. Is this a good time for me to vacuum, or would later in the day be better?"
Don't force her to do anything, unless it is a severe immediate safety issue. It's not a disaster if she does not want to take a shower everyday, eat healthy food all the time, go to sleep and get up at times you think appropriate,....
Instead, let her take the lead. Act interested in what she is doing, watching or talking about & ask followup questions about it. Remind her of things before it is actually time to do them, like "Mom, your doctor appointment is in the morning so we probably need to leave about 2:00. Does that sound about right to you?". Then remind her again the morning of the appointment, and 1 hour before leaving...
Most elderly people, even with mild-moderate dementia..., still know if someone is doing things that are in their best interest, and if you are, with time she will grow to trust you and your decisions. Then she will slowly start giving you more responsibilities and less lip:o)
Knowing more about the dynamics between your mother & your brothers, before you moved there, could be helpful to you. I've found that my mother's closest friends are a great source of info d/t they probably know your mother better than anyone else & they like to talk about it. Don't start asking question after question like a detective though. Just casually visit, ask about their day... then mention that you want to help your mom but you don't feel you are doing a good job & you don't know what you're doing wrong. Then just listen. Do not interrupt when the friend is talking unless it is a follow up question or clarification. Once you have her talking & if things are going well, you could mention your brother(s)... Keep in mind that everything they say may not be completely true d/t their memory & hearing might not be good.
Others that could give you insight are your mothers pastor, neighbors, & the Independent Living staff.
When I moved in with my parents, I told my parents & siblings that I don't know how long I will live with them d/t it depends on my mental and physical health. I also said I only have one promise, and that was that I go to go out of state to see my grown children as much as I did before moving in with mom & dad, and that my siblings will need to either be my backup help or they will need to hire someone for when I'm gone. They all agreed.
Good Luck
I know what it is like when family has no idea how hard it is to visit someone's house. I took my dad to visit my brother. Taking him to the bathroom was terrible.
I was talking to my SIL about how we can't visit because he can't use their bathrooms. She told me, oh we have grab bars. The grab bars are maybe six inches high and fit under the toilet seat. Totally useless.
I said he needs grab bars on the wall so he could stand up and use the toilet. The grab bars were never put up. So we couldn't visit.
No, life is NOT over, it may just feel that way to you!
Wow, what a change in your life. You lived far away ("half way across the country"), probably for a long time. Your mom was only used to your phone calls and cards.
You have given up familiar surroundings, home, friends, possibly job or volunteer work to care for her. Did she ask you to come? Did you ask what would be involved before you moved? Did you plan what you would be doing with your life?
What you need to understand is that your brothers already had a "plan in place" of how they cared for your mom that you weren't part of. Now you ARE part of it. Maybe everyone thinks you have your own agenda and aren't taking into consideration what they did. Did you ask your mom and or brothers what they thought of you moving out BEFORE you moved? Do they seem to appreciate your help or is everybody defensive, resentful and angry? Like others have said, have you asked what you can do or did you assess the situation and go in with your own agenda?
As for burnout, I think you're overwhelmed. I was too when I brought my mother (with stage 6-7 Alzheimer's) home with me. Oh dear Lord, what did I do? The woman that I saw twice a week for 2 hours at the memory care facility was great. The woman that I moved in with me was a screaming, demanding, angry, confused person who required me doing everything for her, from feeding to toileting. I didn't REALIZE how much work she was and how heavy she was to care for. I wound up having to move her into another memory care facility because I wasn't physically able to continue to assist her. I also couldn't mentally cope with caring for a severely confused person and the constant questions, screaming, accusations, etc. What I'm trying to say is that maybe, like me, you really didn't know what you were getting into. Brothers (men in general) aren't very good at explaining situations, so you may have assumed how things were but, in reality, she's a lot different. Not your fault.
How was your relationship with your mother previously? Did you get along well?
You said you're frustrated with "things". What are they? Is anyone else frustrated with the same things? Maybe they like things the way they are and resent any "new opinions". Don't forget, this system has been in place for a long time. You're the "new kid in town". You need to be humble in front of those that have done it for years and in front of your mom, who hasn't been part of your life. The outsider has become the insider. You need to earn your place in the family, (however strange that sounds).
If, in a few months, if you still feel this way and can't "shake off" what you heard, and don't seem to be appreciated, then I would reconsider your offer to assist her. You may have to move (or at least back off caring for her) and she would transition into assisted living. It may save the sanity of both of you. Old people don't adjust well to change. We can consider ourselves in that statement too.
Good luck.
I am not faulting you at all for how you feel, I cared for my Mother in my home for the last 4 years of her life and it was definitely challenging. But sometimes we make the mistake of feeling we have "switched roles" with the parent becoming the child and we take a parenting role. That can lead to resentments and hurt feelings.
There is not an easy fix for how you are feeling, I am more than willing to support you from a distance. Feel free to private message me.
Best,
Margaret
Daughter and husband decided to take her back to their home, where she happily resided under their wonderful care for about 8 years.
On their way home with her they stayed in a motel for the night. Amazingly, the motel played the same music through the walls!
Essentially I am now facing a similar situation as my husband has Alkzheimer's and is in the latter part of middle-stage at the age of 78.
Finding as much help as you can afford may make all the difference in how you feel and respond. When I don't get enough sleep (which is most nights) I have less patience which may affect you too.
The hateful words you heard may in reality be the dementia speaking so don't be too hard on yourself.
My eldest brother in law wanted his parents to visit him and he kept saying "All they have to do is...". My husband had to have a very long phone conversation with his brother to get him to accept that it wasn't easy anymore for my inlaws to "just get on a plane" or "just get in the car". I even called his wife and gave her a shopping list in order to make their guest bathroom safe for MIL, who had a neurodegenerative disorder. SIL didn't believe all of those items were necessary - "Do I really need to buy a shower chair?"
People who are not caregivers just don't understand...until they do! If you are trying to rearrange everything in your mother's life - reinvent her wheel so to speak - it will never work, you will never be happy in your new life, and you will regret your move. Spend more time getting to know your new community and neighbors.
And because what you overheard was so painful, let your mother know. You would also have to apologize for eavesdropping, but nobody is perfect. Can you forgive what was said about you?
Big HUGE difference.
You've been given many suggestions. With no feedback from you it's hard to know if any of our comments are helpful. Tell us a bit more about what is going on.
Wow, listen, the ones you love can hurt you the most. Tread lightly, this is a big change for everyone. I find it very difficult to talk to my family so I just act...it hasn't worked so well for me. Maybe if you focus on learning her/their routine and see how you can manage your own life on the in between, that would help you "take over" down the road. I learned from the free caregiver support group in my area that I am/was too controlling in my caregiving efforts. Take it from one who knows...no one likes a control freak (except the ones that want to take advantage) Good luck.
Lapse. It was difficult to deal with her character and now.
Very stuborn comments that make you sick not realizing that others also have a life to live. Sometimes not sure if she act purposely. Everyone run away dont want to take responsibility. Im the only one left to see to her well being. Not easy you cant babysit dont have money to pay someone.
The only way out is the old age home. She has been fighting that for months. I feel heartsoar to put her there but they will finish you off. Let the profesional look after her.
A home where she is more free
Anytime. You can also see her anytime. If you have a strong day bring her home take her back later in that same day.
We need to look after ourselves also. My body cant take it. I have osteoarthritis in my spine. I cried already too difficult to see to my mother.
Wrong move helping her painful. Cant take it. All the best regards... Roda
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Personally, i think when you're overhearing some that you did NOT share with us in this helpful caring forum, it made you feel a little bad, or think differently.I think that you are not really burned out (Just my opinion here) I think it is a regret feasibly, (after) hearing whatever it is you heard.TAKE time for you. I do know it helps so many i've read here.
-If you are really feeling so burned out, get OUT.Meaning move to a different, however close by location/area.It doesn't have to be the "same"building.Not at all.I am 1 who am grateful i am here for both mi parents, as long as i am since dad fell ill.(Recovered beautifully/thank GOD from a light to mild stroke.)After he was not ever ill for 82 years. He is and my mom early 80s,but doing well,
as i am keeping both,and dad i get out much,and then at night relax, watch tv, a nice dinner laughs!I am not one to get burned out.I love each minute i have with mi parents and staying here for a while now my dad always remind me and my mom is a blessing. I am also the youngest out of five. I am also VERY happy to hear your loving mother living in mid to late 90s and still quite capable/doing well i am sending a prayer her way and yours. If i was you?
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I would do as others cite, "Take time for your self."I am guessing if she is that age you're in your seventies/and or early to mid upper 60s,so still lots of life hopefully to live and enjoy, by just taking some time for YOU." I wish you good health each day and hugs and blessings going your way today.adios..God bless you both.
Best of luck, dear woman.