After a year of marriage, my husband and I allowed my mom to move in with us. She is 63 and has dementia. This is a fairly new diagnosis. It's been about three weeks and we have been struggling to find alone time together. She gets upset when we go places alone or when I go to pick him up from work and leave her. I cannot control where she goes and what she does. As seriously as I take the reality of the pandemic, I can see she is a Covid case/asymptomatic carrier waiting to happen. Any advice? We both work, so she is alone during the day. She is okay enough that she finds things to do while we are gone, but gets manipulative when we try and leave her to go on a date. Do other couples struggle with this? How do you handle it? I don't want to feel guilty about leaving her, but at the same time, I don't want my marriage to suffer either.
Give mom some attention and then have yourself some ME time.
You are not really 'caring' for her, she is just living in the house with you. I'm sure she gets manipulative - think about it - she stayed home all day (or wandered who k nows where) and then you/hubby leave her alone after work. Of course she would like to manipulate the situation where she is included. Your marriage may not suffer, but it is definitely different simply because someone is in the home with you and sort of needs the kind of attention you would give your child.
You need someone coming in to check on her and to be with her if you go out in the evenings. You moved someone in who needs tending to. This is not the adult child who came home. You might want to look at an elderly apartment community or assisted living type facility. She would be around other people during the day, watched by staff, activities to do and safe. Caregiving can be selfish from the outside because others in your life are not really front and center for attention.
Long range... (which, given the nature of dementia progress may be longer or shorter than we imagine) you need to start looking at alternatives for getting her the best care possible. If you can set boundaries at your home (which she may start to forget or ignore as time progresses) you may wish to consider the possibility and related costs, of in home care. She may have assets or possibly qualify for some Medicaid assistance but keep in mind that Medicaid, funded by taxpayers can always change their qualifications as time passes. You may also wish to consider a senior living arrangement for her. Difficult to make any visits during the pandemic but you can start your search online. For longevity, the best environments are CCRC (Continuing Care Retirement Communities) because a person can move through the different levels of care while being in the same environment. Unfortunately, they are usually the most expensive requiring a significant entry fee. Failing that you can find an AL (Assisted Living) with a memory care unit for future needs. Unfortunately, ALs generally have very limited Medicaid qualified beds and private pay can get expensive.
I just think for your own piece of mind you need to attempt to set boundaries while she is living with you so that your marriage doesn't disintegrate but you need to think towards the future also. At 63, she is quite young and obviously quite manipulative and perhaps a little lonely and jealous. Good Luck in your endeavors
are for her enjoyment while you do some "tasks she would not be interested it," She may come to look forward to your date nights rather than be sullen that you are not taking her with you.
"Just like a child, you say "DH and I are going out on a date. We should be back about 9 pm. Will see you then." then walk out the door. Don't try to placate her. Just walk out the door. As time goes on, u may have to hire a sitter."
I totally agree.
My 90 yo Mom doesn't have dementia, but she's skilled at manipulation and guilt. My hubby and I have been married 25 years. We moved away after our honeymoon. Blessed peace and controlled exposure due to the distance except for 2 years Mom moved to be near us about 3 years into our marriage. She didn't like Texas, so she moved back to Georgia. Peace again. She had a stroke July 2019 and moved in with us permanently that October. It was in our face again, except worse due to all that comes with losing functionality and independence.
My advice to you is live with this new situation with EYES WIDE OPEN. We can't deny the ugliness of parental habits. Be honest with yourself, your hubby and your Mom. You don't have to be mean about it, just matter of fact, like the quoted post.
What helped us overcome Mom's demands is setting boundaries, not jumping to, making her wait - even 5 minutes - to condition her to the fact that my family comes first, and making the most of the opportunities daily to include her in our lives with nightly dinner together at the table ( which I recommend for you and hubby anyway), weekly (and sometimes multiple nights) movie nights on WEEKDAYS, sitting outside with her on occasion after dinner, and just working her into the rhythm of YOUR life in general, not the other way around. The weekends are OURS! We let her know if we plan to go out (dementia may require a calendar note and reminders). My mom can't be left alone in the house right now because she's a fall risk. Fortunately, we still have adult sons living here that help out when needed. BUT I've insisted to them and up front with Mom that they're lives are their own. Between myself, hubby and the boys, we make no assumptions on anyone's time, esp when it comes to dealing with Mom.
Since we've developed a routine of including Mom in our daily lives, even if it's just sit down dinner, she's gotten better at accepting that my hubby and I go do things without her, and that her grandsons go do their thing. I can tell by her tongue clicks and sighs that she disapproves or whatever, but she now resigns herself for the most part; for the other part, you have to ignore the tantrums. Walk away and don't feel guilty. Stop responding to the negative behavior. Totally, and I mean totally, ignore it like you didn't even hear it. Encourage her also to stay in touch with friends and take interest in her our pursuits to occupy her time. Since you and hubby both work, maybe you two can get away for a lunch date once a week.
I also have started to take my own life back by doing things I used to do for myself - time out of the house, be it a meeting, appts, a walk (or hiding outside), lunch with a friend, etc. As the poster said, you're dealing with a child mentally. My own parenthood experience prepared me for this. You don't ask, you tell.
Dealing with my Mom, is a combination of parenting skills and Pavlov's Dog conditioning techniques. Sometimes a frank talk with Mom is required and repeated too. My mom conveniently forgets what she doesn't like to hear. Doctors say no dementia at all. So. it's her attitude. I accept that and act accordingly.
This is hard work. I've had to be creative and resourceful. This is the choice we made. Stay strong. Put you and your marriage first. Remember the little things with hubby are priceless.
Pray.
Live your life.
You are probably going to have to find someone to come sit with her while you guys have a break. Check with your church they often have volunteers for this. Also check the local Senior support resources they often have people willing to help. BUT you may end up paying some one.
Caregivers need breaks, that is all their is to it. If you cant get her to cooperate than she is just going to have to have her fits.
At some point you will have to decide what is your priority your Mother or your Marriage. If after you just read this line you hesitated about your Marriage. I can tell you the Marriage is lost.
My wife strung me along for years and I was stupid enough to take it. Now im 64 and by myself. She should have been truthful with me and ended it 15 years ago. And I should of not kept wanting to believe her.
Your Mother is not going to suddenly get better and say "oh I'm fine you guys don't worry about me" So if you have not, you need to start planning now for how your going to move her to the next stage which is most likely a facility
EDIT*** I also recommend looking into a security system because as it progresses you will learn about sun downing and My grandfather has walked out of the house at night before and we have found him down the road, just a tip
Moms Dementia will progress to the point you cannot leave her. Dementia is an unpredictable desease. In early stages, one day they seem normal, next day not so much. With my Mom her decline was monthly but she was in her late 80s too.
I would not approach Mom with "my house my rules". But I would try to make her understand that you need alone time with ur husband. This maybe hard, the ability to reason is one of the first things to go. As is being able to process what is being said. They become like small children. Setting boundries may eventually be hard because of short-term loss. And since Mom has always been this way, it will be hard to change her. So u change you.
Just like a child, you say "DH and I are going out on a date. We should be back about 9 pm. Will see you then." then walk out the door. Don't try to placate her. Just walk out the door. As time goes on, u may have to hire a sitter.
You have taken on a big responsibility for anyone more so because u are newly weds. You may want to start looking into resources. If Mom has money, then an AL. She will need more and more care. If u don't have it, get POA while she understands what she is doing.
My Mother does not like to be alone. Anxious +++++ calls out if Dad is in another room. Always been anxious & never has lived alone, taken a trip alone etc. But now, with aging & other issues I think it's a survival thing. She knows she needs others around.
Talk with her & her Doctor about this. Maybe some mild meds may work?
But also, for the longer term view, maybe a move into assisted living may be considered as a solution? She has company. You get a marriage.
Hubby and I go anyway when we need to. At first, it's like, we don't want to upset him. But over time, we learn, we need to do what we need to do. Yes, we hear it later. But at least we accomplished something.
Remember that your marriage needs to come first. Otherwise, your mother will likely seep into every aspect of your life to the point where you will have NO life except for looking after her.
Look into alternative living arrangements for her so that Plan B can be utilized if/when the time comes.
Don't automatically poo-poo that idea away. Make sure you prioritize your marriage and keep it fun and alive. Whatever it takes. If that means going away for long weekends while you still CAN, before your mother requires you to be home 24/7, then do it! We have one gal who posts here who has created a sex closet (literally) to escape her mother's prying eyes and ears. That's the only place she and her hubby can go for privacy. Like I said, things can go south in a hurry when dementia is involved!
Wishing you the very best of luck and inventiveness when it comes to keeping your marriage alive and your mother in line with lots of boundaries! Set them down NOW~~~while she's still cognizant enough to understand them!
As your mom progresses she will need someone with her.
My mom was okay being left when she first moved in, as she worsened I contacted Council on Aging for assistance to be with her. Mom enjoyed their company.
Is your mom lonely or has she always been controlling? Is she afraid?
Tell us a bit more about her personality.
Best wishes to you and your family.
You have to remember that she is now living in YOUR house, and you and your husband need quality time together away from mom, to sustain and nourish your new marriage. Being a caregiver is hard and it can be especially hard on a marriage if you don't take the steps now to make sure your marriage stays on track. Best wishes.