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Hi all, and happy new year! I take care of my 79 year old mother, who has (undiagnosed) dementia, I think it’s dementia w lewey bodies. Anyway lately she’s having hallucinations, some delusions too. I’m hoping to get her medication soon but has anyone found good ways to deal with this in the moment? I’ve tried distraction and have watched some experts’ videos for tips but none of it seems to work. Thanks.

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Hi
Have you had her checked for a UTI? My mom has them and when they kick in she does tend to be delusional and hallucinates.
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You hunch might be right, It could be dementia if the symptoms appeared after she got old and are accompanied by cognitive impairment. However, Lewy body dementia is usually associated with Parkinson's disease and the hallucinations are mostly visual. Though, any type of demencia can have hallucinations and delusions in late stages. As to what you can do?, NOTHING. Only psychotropic drugs can reduce them, but these types of drugs are not advisable in the elderly because of their side-effects. Yet, they might be used for emergencies and only for short periods of time.
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PLEASE make sure you get an accurate diagnosis of the LBD.
There are medications that are given to people with dementia to help with anxiety but many of those medications can be harmful if not fatal if given to someone with LBD. So before any meds are given, this includes Over the Counter supplements please get a diagnosis.
Also quite often with LBD is a possibility of violence. Make sure you are safe. If at any time it becomes dangerous leave the room.
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Before getting any meds for your mom, you need to find out what is causing her behavior. I wouldn't try to guess at the cause because there so many reasons for dementia like symptoms. Even clinicians have a difficult time making the proper diagnosis of dementia symptoms. You say she's having hallucinations and delusions, but your profile seems to imply that she's otherwise fairly self sufficient. You also take care of her bills, appts, and med management. Is that because she can no longer properly do those things, or are you just helping out? Can she no longer properly take her own meds, or pay her own bills, or remember her appts? True dementia not only means a cognitive decline, but also the inability to perform ADLs properly. Although her hallucinations and delusions may, in deed, be a progressive disease, don't seek treatment before you know the cause. Some causes are pseudodementias which may be treated. So your first step is to have her screened for dementia and, if that's the case, what the cause is.

Meanwhile, hallucinations and delusions can be very difficult for the caregiver to understand. Hallucinations are sensory issues. What would you do if her hallucinations were real? What if there really were bugs on the wall or crawling on her, or children in her room, or noises coming from another room? How would you respond? Try responding as if her hallucinations were real.

Delusions are tougher because the person truly believes something that is not true. No amount of logic or persuasion will change their minds, so forget that approach. You might ask your mom to tell you more about her belief. Why does she believe this? Delusions may be benign, or they may be frightful to the caregiver. My wife would sit by the window waiting for her dad to pick her up. He died in 1980. That was easy. I would tell her that he was delayed or made other plans, etc. But when she tried to jump out of the car because she thought I was going to hurt her, that was serious and I had no response, other than to keep driving until we got home, after which she totally forgot the moment. But some delusions, too, can be responded to as if they were real. You say you've tried distraction, but that can only come after you acknowledge their belief.

Your mom may, indeed, be experiencing dementia symptoms, but before making a guesstimate at her symptoms, have her screened by her physician.
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