Follow
Share

My mom is at the end of her life. She is 94 and suffers from terminal cancer. So far, it has been 9 days since she has been able to eat or drink. She can't move any part of her body anymore. Yesterday was the first time in days she was able to lift her hands a little. She can't talk or make any sounds or swallow. However, she still gives me these very endearing looks for long periods of time. I know she is still in there.


It is sooooo heartbreaking to watch her like this. I never imagined I would see my mom go through something like this. Yet, she continues to hang on day after day. How long can this go on? I love my mom with all of my heart, but I do not want to see her suffer anymore. The mom I knew is gone. She looks like a prisoner in her own body. I can't even imagine what she is going through. I wouldn't want to go through this myself. Last week when she was still able to talk all she kept saying was "help me!" It broke my heart. I try to make her as comfortable as possible, and shower her with love. Has anyone had a similar experience where an elderly loved one has gone for this number of days without food or water?


I'm dying inside. I want my mom to be at peace, but I feel guilty for wanting her to transition.

This question has been closed for answers. Ask a New Question.
I’m so sorry you are going through this. This was the hardest thing to watch with my mom. She had ALS and her living will stipulated no food and water. She suffered terribly and begged the doctors for water at the end.

She had a DNR, and her heart stopped in her home while I was singing to her. That would have been how she wanted to go. But my brother who had the DNR was nowhere to be found and my siblings told the paramedics to resuscitate her.

my brother did finally show up with her end of life paperwork. So she didn’t die in her home, she died slowly in a hospital with no food or water.

I will never do that to my kids. I will stipulate no resuscitation but not withholding food or water. If I don’t want to eat or drink, that’s one thing, but she was begging. Just awful.
Helpful Answer (3)
Report
Grandma1954 Mar 2021
Please look into a POLST rather than a DNR it is much more specific
(3)
Report
See 2 more replies
First I do hope you have Hospice helping you.
Just know she is not feeling hunger as you or I would. Her body does not need food as nutrition like ours does.
Her "help me" could mean many things. And she may not have even been talking to you or anyone visible in the room. Those words may have been the easiest thing for her brain to put together at the time.
As I have said here many times I realized the tears that I cried for my Husband were selfish ones. The tears were for me. I was the one loosing him. For me to want him to remain would have not been fair to him, there is no way he would have wanted to remain the shell that he was.
Hold mom's hand. Tell her that you will miss her but that you and everyone else will be alright. Thank her for what she taught you.
Helpful Answer (6)
Report
Lovemymom22298 Mar 2021
Thank you for the reply! You are correct! Her saying "help me" may very well be from something that only she can see. When she was still talking, she frequently spoke about seeing "the light" and saying "she is going home." Both comments have been extremely comforting. Hospice is involved and have been super amazing to my family. Also, your perspective regarding your husband helps to put things in perspective for me. I needed to hear that. Thank you very much.
(1)
Report
Only God knows the day and time that He will call your mom home. It is heartbreaking to watch, this I know. My husband went 41 days without food, and over 25 days without any drink. Everyone is different in their dying journey, but don't forget that hearing is the last sense to go, so even though your mom can no longer speak, she can still hear you. I do hope too that you have hospice involved, as they can answer any questions you might have and be able to give you and your mom the support you need during this transitional time. God bless you.
Helpful Answer (2)
Report
Lovemymom22298 Mar 2021
Thank you so much! We are aware that she can still hear. It is very apparent from her facial expressions and her endearing looks at me when I am holding her hand and talking to her. It is quite comforting for me to hear about similar stories other's have experienced. Very grateful for your reply!
(1)
Report
Just want to give a heads up on DNRs. Hospice usually requires one. It is suppose to be in plain view, like on the fridge, so if EMTs are called the copy goes with them to the Hospital. If its a hospital u frequent, then a copy should be on file there. The facility you are in and your PCP should have a copy.

I just looked at a copy of a POLST on the internet. This is now what NJ requires in the facilities Mom was in ( AL, NH, rehab, Hospital). In each one a doctor had to sign off. They no longer use the old DNR form. If this is used, again, it needs to be in view for EMTs. Otherwise, they will resuscitate.
Helpful Answer (1)
Report
Lovemymom22298 Mar 2021
We do have a DNR, but it did require updating--thanks to your post! The information is very much appreciated!
(1)
Report
Forgot to answer ur question. For my Mom it was 2 weeks. But the spirit can be strong.
Helpful Answer (1)
Report
Lovemymom22298 Mar 2021
Thank you! It helps a lot to know that other's have experienced this as well.
(1)
Report
I'm sure you probably know this, but I'm putting it out there just in case-
One major comfort, even when she cannot drink, is to keep the mouth moistened. Keep very soft lip balm (or vaseline) by the bedside and dab it on her frequently.
Gently wipe/exfoliate the old lip balm off her lips before applying new as it tends to glom up in the corners over time.
Also get some of the flavored glycerine mouth swabs and frequently swab all around inside her mouth. A severely dry mouth and cracked lips is added misery and is mostly avoidable.
Helpful Answer (4)
Report
Lovemymom22298 Mar 2021
Hi, thank you so much for the information! Yes, we are keeping her lips moisturized and her mouth moistened. Hospice is involved and they have been quite helpful!
(3)
Report
Even miniscule amounts of water can prolong things, but if there has been NO fluids for 9 days and no foods, I am shocked that your Mom is still alive. I am hoping you have hospice. They would be the ones to ask about how close you are to the end. I myself have not witnessed anyone ever making it farther than 8 days without fluids and food. With fluids, even small amounts, it is often a month. I honestly am so very sorry.
Helpful Answer (3)
Report
Lovemymom22298 Mar 2021
Hello, and thank you for the reply. I am also in shock that she is still with us which is why I posted in this forum to begin with. I do have hospice and they have been very helpful.
(0)
Report
See 1 more reply
When my father had hospice and my mother had end of life care at the hospital, they were given morphine. It helped them tremendously.
Helpful Answer (2)
Report
Lovemymom22298 Mar 2021
Hello, and thank you for the reply. My mom is on morphine along with some other medications.
(0)
Report
If it was my mom I would take her off hospice because she cried for help. We can rationalize or interpret crying "help me" however we want, but she did ask.
I would then get her on IV fluids with electrolytes to hydrate her and a nutritional tube feeding til she can take fluid nutrition on her own. If she still passed on I would then call it natural causes. But I would never deprive her of food and water to hasten her end. Some people are suffering terribly from disease and I might understand if the patient preferred to die of starvation or dehydration. But dehydration causes a fever and racing heart beats because the heart cant function this way of course.
The less a person drinks water, the more lethargic they become until they can't speak or even lift a hand, and can become "catatonic". It doesn't mean they're dying naturally.
I used to work in a psych hospital and we had a young asian patient brought in who couldn't speak or walk or even stand. She was like a wet noodle literally. We sent her to the medical center to be evaluated and it turned out the only thing that was wrong with her was that the medication she was on was so strong for her that it made her forget to drink water and she had become so dehydrated that she wound up in this condition! The hospital put her on an IV fluids and when she was hydrated the next day we came to pick her up and she jumped up, hopped into the wheelchair, fully alert, in good spirits, and chatting away with everyone.
I can't imagine how thirsty your mom must be. Put yourself in her shoes for a moment; being at her age, and imagine your family withholding water and food from you til you are too weak to even speak to beg for it....Anyone's body will begin to shut down eventually if deprived of water and nutrients continuously.
I never knew a whole lot about hospice but is this supposed to be a routine thing that hospice does? To with-hold food and water from a patient? I honestly would like to know!
All I know is the less you eat the less you want to eat. If you fast for three days your appetite will completely go away.
I know because I fast to lose weight when I need to, and that's how I keep my appetite in check. But I always drink plenty of water when I fast. Water flushes out the toxins and enables our blood to circulate to our organs, brain, heart.. helps keep our digestive tract moving along.. Water itself, pure water.. is in fact a great healer..
This is just my opinion and it might conflict with your hospice's philosophy perhaps, but I would never do this to my mom to withhold food and water till her body could not survive any longer.
If some disease overtook her, and there was no cure or treatment, I still would never withhold food and water!
I think changing one's mind about hospice is not so uncommon. People take their lived ones off it at times, sometimes put them back on.. It is not a crime to consider reviving your mom with fluids and liquid nutrition, then see what she has to say about it when she regains her strength and tells you what she truly wants, especially after such an experience.
Just my opinion for what it's worth.
My thoughts come from a compassionate and caring place in my heart. I think this must be agonizing as described and my heart goes out to you both. I think it doesn't have to be this way.
Helpful Answer (0)
Report
Lovemymom22298 Mar 2021
Hello, and thank you for the reply. It was my mom who verbally requested that she did not want anymore food and ultimately liquids. She had been complaining for some time that we were feeding her too much--although she had been eating very little. And even when she couldn't talk, she shook her head no. Her food and water intake diminished on a gradual basis from solid foods to liquids on the sponge until she again, shook her head no to it all. I thank you for your perspective, but I do know that providing her with a feeding tube is something that she would want at this point. I would not either if I were in her position. However, your perspective is enlightening and truly appreciated.
(2)
Report
See 6 more replies
Dear Lovemymommy,
My heart goes out to you. You know your mom better than anyone else. If you look into her eyes what do you see? Ask yourself is this what she wants? Probably not. Sit with her, talk to her, and embrace her. Let her know it’s okay to return to God. When she returns to God know you are a beautiful soul, and letting her go was your last act of devoted love. I shall pray for you and your family. God Bless You, my friend.
Helpful Answer (0)
Report
Lovemymom22298 Mar 2021
Hi, and thank you for the reply! We all have been telling her it's okay to go home to God. Initially, we were concerned that she was holding on for her children, but we have released her and feel it is now in God's hands and he will return her home when he is ready. We now keep her comfortable, shower her with our love and care, and hold her hand until he is ready. Thank you for your kind words of support. It is truly appreciated.
(1)
Report
Lovemymom, I am so sorry you are going through this. Your mom is 94 with terminal cancer. I am so sorry. My heart breaks for you. Please call hospice and have them give her morphine. Hug her and tell her you love her. Don’t feel guilty. Hospice will help her. They are wonderful. Hold your moms hand and tell her you love her.
Helpful Answer (2)
Report
Lovemymom22298 Mar 2021
Hello. Thank you so very much for your reply! This is the most difficult thing I have ever had to experience. And I agree, hospice is excellent! They have been round the clock support. We all (the family) have been holding my mom's hand and telling we love her constantly. Thank you so much for your suggestions.
(2)
Report
My heart breaks for you and I am so sorry. We had hospice for both my father and brother. Both of them were very comfortable and peaceful. They were medicated with morphine and Ativan. I am very grateful to God they did not seem to suffer and were at peace until the end. They both looked like they were in a deep sleep and passed in four days. Sending my prayers for your dear mom. Wonderful you are all with your mom at this most difficult time.
Helpful Answer (2)
Report

Im going through the same with my 84 y.o. mom and was glad to read your post as you were better able to describe this better than i can. My mom hasnt eat/drank in over a week, cant move, talk...but also gives me these long pitiful looks. It is tearing my heart out. We are alone and i dont know what to do for her. I feel just the same as you do.
Helpful Answer (3)
Report

I just went through this. For my mom, it was only 3-4 days. It was painful to be around. I was her primary caregiver and would struggle between sitting with her and obsessively cleaning my house - a distraction I guess because it was so hard to witness. But I’m grateful I sat with her and held her hand. She and I didn’t talk much in general so it was just about being close for use. I’m sorry. I wish you and your mother weren’t suffering.
Helpful Answer (2)
Report

My dad is on about 7 days without anything. He kind of looks comotos and all I can do is play old movies and hope he hears them. I constantly kiss his head and hold his hand and tell him what he means to me. The weird breathing is so hard to hear. This is the worst experience of my life.
Helpful Answer (2)
Report

Dear Lovemymom,
Your question is very important. I’m afraid the actual answer is that a person who is at the end of life can linger for several weeks without food or even water.
Most often, this phase is under 10 days, but it can last much longer, possibly 2 to 3 weeks. The answer I was given by my Moms oncologist was 30 days, but that is unusual.
I presume there is no IV fluid being given. Also, you are offering water but she refuses it?
Please keep in mind that after the initial feeling of thirst is gone, there is no desire for water anymore. However, you can moisten the mouth with ice chips, or a moist cloth.
lit is difficult for us to understand this time. When a baby is born, it immediately begins to suckle and that continues every day of our lives.
But now, all of those systems have slowed and stopped. Food and water no longer provide sustenance. There is no desire for food, and the body cannot process it.
A different nourishment is needed now.
” Man does not live on bread alone but on every word that proceeds out of the mouth of God”. Mathew 4:4
Often, people will pray to God to “ take them”. Then, when the end comes they feel guilty, as if that prayer ended someone’s life.
But the downward spiral of death is a process that happens on its own.
You do just what you are doing. Hold her hand. Sing to her. Speak softly to her.
It will hurt. But the most loving thing you can ever do, is to be there for her at this moment.
I know you want it to be quick, sometimes it is, sometimes not.
But when you see her again, she will love you for what you have done for her.
Your Mother must be a fine person because she brought up a beautiful daughter.
Helpful Answer (2)
Report

Lovemymom
How are you doing? Thinking about you. Big hugs from the forum.
Helpful Answer (1)
Report

We are going through the same with our beautiful mom. It's been over a week since she's drank anything and she beg us to help her and now she just looks at us with the saddest eye's. Lord it hurts so bad. I know you're pain.
Helpful Answer (0)
Report

My Mom it was two weeks. 6 days after Hospice took over.
Helpful Answer (0)
Report

Hi my Dad Dementia have progress so bad so now he can’t respond and don’t even know the Family. He have stop eating, they inserted a feeding tube in his stomach. It only work for 2 days, now he is at Hospice they have unhooked everything. He have not ate or had anything to drink in 7 days and all they keep saying is he Actively Dying. Can someone who have experienced this with they Love one! Please help me understand because this is so painful to go through this🙏🏾🙏🏾
Helpful Answer (0)
Report

Old post from March. Not certain why so many old posts are showing up, but they seem to be.
Helpful Answer (0)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter