I'm very angry after caring for husband for 6 years who has cognitive decline & hearing difficulties. I’m angry at everyone that doesn’t do the right thing (while driving behind slow drivers, people who don’t realize I’m having psychological pain from constant worry about husband etc).
if you can... please report him...
I wonder if this site has been hacked?
so long with your own disabilities. I was thinking how in the past there
were women who cared for elderly or infirm family members, and basically
that was their only job. And also usually had community of people to
help as we lived more often in extended families. It's so tough to do it all
on your own. So glad you have help now!!
I haven't met many families of my parents generation that did so much
for their own parents . My dad totally abandoned his mother who was
ill for years, only visited her once every few years, same for my mother.
When they were my age they were living the high life, travelling the
world on cruises, etc. My father thinks spending two weeks helping him
in the hospital is a vacation for me because it's sunny outside. Uh... nope.
I'd say it's a bit of willful ignorance along with the lack of knowledge. Care
giving is a very behind the scenes thing.
I react with internal ferocity against rediculous annoyances, with the same intensity as if it's something major.
A stranger who I feel is being disrespectful of me, rudeness of shop assistants, drivers, lack of common courtesy, I will challenge instances verbally. It's as if I am constantly full to the brim with anger that I am being walked over by family, and anything else added , just blows the lid.
Adrenaline with nowhere to go.
At last I have accepted the warnings of people around me that I must make changes.
I have applied for Extra Care housing for my Dad with early-ish Dementia and a lifelong bad attitude to others needs. Probably a couple of months wait but you know what??
The anger has gone.
I guess you would pull your hair out feeling this way.
Did you mean depleted? Just curious. I like the hair removed better.
Ive read its very natural to have a variety of feelings that include anger, frustration, etc and then that’s followed by guilt. Get some help- maybe call your general practitioner and have him/her offer some suggestions. You are NOT abnormal or bad. You are normal.
Ive stayed w my father in law, in his home, for the past 5 years and it is hard. Please get some help from a Dr or a friend or a member of a church.
At the very least, adult day care would provide a 5 day a week respite for at least 5 or so hours a day so you can 're-charge' enough to face the caregiving.
Best wishes! Have a good evening.
In a book called Sabbath, which discusses cultural sabbath traditions, one line stuck in my mind to the effect that if you fail to take a ritual rest, illness will become your sabbath. I see from your earlier posts that has already proven itself true for you. Heed your lesson and do whatever it takes to get some free, unstructured, idle time and do with it as you wish, even if you just wish to sleep.
The mind-body connection is powerful and I notice that lots of the caregivers here and in my support group, including myself, now require medications to manage problems we didn't previously have or have conditions that have progressed under the constant stress. Cortisol, the hormone meant to sustain our fight/flight response, was never meant to be our body's chronic state of activation. Understanding this underlying situation can help you focus your efforts through any means to reduce it for some small interval of time.
You'll still have times of feeling angry because there will always be hardships, struggles, and things that feel unfair about life. You just try to find the counterweights wherever and whenever you can. Blessings.
Here is what I have done to cope so far. (1) I too had a meltdown during my annual physical and my lovely and understanding doctor prescribed an anti-depressant (Wellbutrin works well for me; not for everyone). It does take the edge off and brings my coping skills back to the surface where they are more readily available. (2) I am being very open with our grown children and with a couple of good friends about just how difficult it actually is. Just talking about it with them helps them know how important their emotional support is, and when they can give practical support as well, it’s a great bonus. (3) I have gone back to part time work doing something I absolutely love doing. What I earn pretty much cancels out what I pay for someone to stay with him as well as for some alternative treatments that are not paid for by insurance. The time away and the positive reinforcement of being out in the world is re-energizing. (4) I keep reminding myself that I’m not mad at him; I’m mad at this damnable disease. He is a sweetheart and does not deserve anger, but when stress is high and respite is low, I’m much more likely to adopt an angry or sarcastic or condescending tone of voice for which I am immediately ashamed - which, of course, then fuels my anger at myself and the rest of the world. So when I do catch myself before I do that and switch to a kind and loving tone of voice (whether I feel like it or not), I find it calms me as well as him. And when I shout, that loud angry voice just fans the flames of all the things I’m so sick and tired of with the disease. And I’m still in early stages, so who knows how long these approaches will keep working? I’m working on finding a support group, but at this point, he does not want to do that, as he is still in denial about many of his limitations.
One more thing - years ago when I was furious with the ex-husband I had just divorced, I found physically throwing or kicking or stomping things WAS very helpful as a cathartic. But instead of people, drivers, and dogs, I did things like getting a case of empty bottles, finding a metal dumpster (preferably one that would recycle the soon-to-be-broken glass), and throwing the bottles, one at a time, violently against the back wall of the dumpster. The sound of the shattering glass was somehow oddly soothing. (Weird, huh?). I also built thick walls of pillow that I would kick as hard as I could. Once I even hurled eggs into the bathtub, then washed the mess down the drain. Physical release of the anger in ways that don’t hurt someone else (or make a mess for me to later clean up, which would only make me more angry) has been very useful for me, especially in the early stages of realizing how angry I was — once it’s out of my body, I cope better. So maybe yoga, yes, but also maybe boxing or karate or kick-boxing - something where you can punch and kick and yell and be angry in a setting where anger is just part of the deal.
Okay, hope you have found something that encourages and supports you. And thank you all for not reporting me as some psycho. I really am quite harmless — but it is in large part because I accept the anger and have learned ways to keep it from hurting others. If I just shame myself for it, it makes it worse, not better. Hugs and best wishes, and please share the things that work for you as you go along. I may run out of available beer bottles and need some alternate strategies!
You're very fortunate that you have helpful kids nearby. A lot of people here don't have that. When I saw you write that you get irritated with the little dog, who wants nothing more than to be with you, I thought this person is stuck in a mind rut and needs a change in her perspective.
I suggest that you do an online search for "anger management near me" and go to their meetings. It will provide a space to vent but in a way that they want to get beyond just venting. You could go to a therapist of some sort, but I"m not personally sold on the benefits of that. You'd have to have a really great therapist who can dig deep to get you to see the true source of your anger, and that could take months or years, when you need help now.
I'd also suggest being around other caregivers while they're caregiving. Take your husband to social gatherings for people in similar circumstances. Get out. Take the dog to the dog park. Look up local clubs on Facebook where your interests are shared.
The best remedy I found for when I feel resentment about what I"m going through has been to see what others are going through. Put yourself in others' places:
think about how you would want your husband to be right now if the roles were reversed.
Consider that the person ahead of you who is driving slow may be having car trouble, may be an elderly person who is afraid, may be looking for an address on a busy commercial street where the addresses are placed inconsistently, may be on the phone talking with a doctor about their elderly mother who is in the hospital.
My brothers and I were concerned that Mum would die before dad did. We wanted him in a Nursing Home, for HER sake. Yes, we tried helping, but I had limits, like living 4 hours away, working full time, and I just could not change my own father's diaper! We all talked with her, and she agreed to the NH for him. She then lived another 20 healthy years.
What are your other options? With your health issues, YOU need more rest and care.