My husband has stage5-6 dementia, I have a chronic illness and still work full time. Because it is a family run company he still comes with me and can do a limited amount of tasks. I need a break though. How does one decide what type of care our family will benefit from most?
Can’t loose give it a try.
I am looking at this same thing You have to take care of yourself. Sounds like you have a lot on your plate.
I an still working 30-40 hours a week, manage my own chronic auto-immune issues and frankly am exhausted. I currently bring him to work, and that needs to end as well.
Your husband needs help to stay to help with the business in your home. If things get too tough, have him placed in a facility. I think A Place for Mom from the AgingCare website is a good way to start for a facility. You require medical help for yourself and a much needed break. Some therapy may also help.
I would recommend you get someone to care for your husband when you go to work. As well, hire someone 1-2 days/week so you can get a respite. If you do not take time off for YOU, you will not be able to care for him, or yourself. You will be too exhausted. You also must take care of your mental and emotional health. This 'work' is very difficult and you must put yourself first. Gena
Look at this website:
https://www.dementiasociety.org
In part, it says:
We are Here to Help - Our programs bring much-needed education, local resources, and life enrichment to individuals and families impacted by Dementia.
We recognize Dementia caregivers and innovators and raise HOPE by spotlighting relevant research to discover cures and causes and encourage early detection and meaningful interventions.
Dementia Society of America is your volunteer-driven 501(c)(3) nonprofit charity serving the nation for all causes of Dementia, including:
Alzheimer's (AD), late & young-onset
Vascular Dementia
Mixed Dementia
Lewy Body Dementia (LBD)
Frontotemporal Dementia (FTD)
CTE, TBI, NPH, HIV, L.A.T.E. & others...
Do you need basic Dementia information?
As a Voluntary Health Organization, we focus broadly on all forms of Dementia, sometimes also referred to medically as Major Neurocognitive Disorders (NCD). We have collected top resources from across the country and around the globe for you! We're like a Dementia association, Dementia foundation, and Brain Health resource center - all rolled into one. The Dementia Society of America is here for everyone.
Those in my dementia caregiver support group that have their loved ones in one say their loved ones LOVE it there.
You can also check with your Area Agency on Aging to see what other options you may have.
Wishing you and your husband all the best.
1) health - backup caregiver(s) for hubby? who's caring for you? Respite arranged? In-home care needed now/soon? Support network on hand (disease progression, new meds/therapies, commiseration and commendation, etc.) for both of you?
2) family/home needs - house cleaning, bill paying, meals
3) business - disaster planning can include health contingencies of owners
Best wishes to you both on all fronts.
Only you know how much and what kind of break you need.
You may need to discuss some respite care with hubby.
Only you can make these decisions; we can but wish you the very best in making the best ones.
What you are going through is doubly tough. No, triple tough. I am so sorry and so wish you the very best.