I just returned from a visit with my honey at the hospital. After leaving his room, (after the third time while I was there of telling me to get the *bleep* out, I wasn't any use to him and that he did not want me there) I broke down in tears and cried all the way home. His doctor was there ( I had just talked to him a short time before) and I told him I was leaving for the day as my being there was getting my honey agitiated and if he needed anything to call me. Doctor understood. My honey was angry that everything he need required me to lift him and I couldn't do it because of my back. I asked him to call the nurse so she could help get him up and he flat refused. Saying it was my problem (they had him sitting in the chair) not the nurse's. I said I could not do it alone. A tech came in about that time and he tried to lift him (tech was much bigger and stronger than I am) and it took him three tries to get him up while I braced the walker. He said doctor was maybe going to release him tomorrow or tuesday and I told him I would start looking for someone to come in and help. He said don't know how I (not we) will pay for it but it is my problem not his. I told him what I will have to do is have a caregiver in during the day and I will have to go back to work. He started in about how they will not hire me period due to my age. I said part of the reason is my age, but also being a caregiver. I reminded him that we have talked about that aspect in the past and that he is more important than a job. He then threw up in my face about giving me money to help pay the bills ( I pay the bulk of the bills, though I have been out of work since July 2017 and he helps as much as he can). I have never in 30 years seen such a cold, steely, hate filled look as he turned on me when he told me to get out the third time that I was no use to him. I left and I am not sure with his attitude that I want to back up to see him. It was totally uncalled for, mean and scary. How do you handle a situation like this? I am at a loss and heartbroken as he has been my love and soulmate for 30 years and always treated me with love and respect even when we had a disagreement. Since February he has become a mean stranger to me. I don't recognize him any more though other than the edema he still looks the same. This severe edema did not hit until April 1st, but he started being verbally mean around Feb.
I know it is hard not to be emotional about this, especially since you were doing all that you could. Have a good cry, and try to realize it isn't anything you did. He just needed to vent and you were there.
As for the caregiver, if you can, tell him the caregiver is for you [Dusti], to help you around the house, and the caregiver will be there if he needs anything.
Oh, you might ask hubby's doctor to have hubby checked for an Urinary Tract Infection. Such an infection can make a person act down right mean.
This is going to be a very difficult time for you as the person you have known and loved is no longer the same. You have suffered a great loss in many cases worse than a death.
You are clearly not strong enough to care for him by yourself at home and would need 24 hour care which I assume you could not afford.
At this point I would talk to the discharge planner and social worker to see what options are available for him.
He is obviously very angry and thinks you should be able to make everything better.
Is the stroke fairly recent. His physical condition may improve with rehab and if he refuses to go you do not have to take him home and suffer.
Right now think of your own situation as far as supporting yourself alone and your living arrangements. How realistic is it for you to go back to work even if he was not in your life. If you are not old enough to retire find out what help may be available for you. Don't be afraid to apply for everything out there and get on any list there may be waiting for subsidized housing etc.
Trying to punish him by not visiting is unlikely to work but continueing the visit is something you can control. Leave at the first sign of nastiness. If you don't feel up to it you don't have to go tomorrow. Use the day to collect your self and face what is becoming a devastating reality and most important of all take care of yourself. Do you have family or friends who would be supportive of you. Cry all you want it does help get the bitterness out of your system. There is always someone around here to talk to when you need so come back often.
It only takes one incident for a tragedy, do not allow this person in your house, this is months now and escalating, you should be worried and take care of you with precautions for your safety.
Hospitals will try to bully you into taking the patient home, tell them no, no, no. He will not be safe and neither will you, stand your ground and make them find a safe release place and a plan to find out what is going on and if there is any help or is this his new reality.
I am so sorry for your loss, I pray that God gives you strength and courage to walk this journey.
HUGS TO YOU!
I am not trying to punish him by not going tomorrow. I just cannot subject myself to the same thing that I went through today and want to give it a cooling off period for him. I love him and don't want him to be there alone but I still cannot quit crying every time I think about it. His verbal treatment of me has gotten worse and worse since Feb. I am just afraid that if I go tomorrow it will start as soon as I walk in as it did today.
I have no bitterness, only sadness (and a broken heart) right now. No no family here but I have talked with his brother who agree that I should not go tomorrow. His brother and sister n law are like family to me too.
I have already made it clear to the doctor that as he is not able to get up on his own, I cannot care for him as I cannot physically hold up to it. [ I am not totally weak as I can pick up a 31lb of dog food using my hands and forearms (not my back) though it does not help my shoulder. My honey is over 236lbs.] Dr said I should not have to and they are not releasing him tomorrow. I did not tell doctor about the way he has been acting but I should have. I will be calling the doctor tomorrow to discuss it with him and see if there might be a medical reason for it. I'll keep y'all posted. Hope my post made sense.
I know what you are going through. I've experienced the same. I'm not going to elaborate about my situation but suffice it to say that I know how you feel and you need to protect your heart. No matter what the reason, it is inexcusable behavior. Love yourself enough to not accept that type of treatment. I wish you the best and I hope you can resolve this to where everyone is happy.
A cardiologist that is not even his treating physician told him he did not need to go to rehab. Grrrrr. The cardiologist is from the same group as his regular cardiologist and is not familiar with his case. PT and his treating doctors are advising he go to rehab when he leaves the hospital.
Just kind of an update. My honey is now in a rehab facility...he hates it and is mad at me but oh well. I finally figured out if he does not care about my well being, I have to. I have posted an update on some other threads but wanted to touch base. He is doing much better and has been somewhat better on his verbal meanness. (as long as I don't disagree with him or try to state an opinion on anything...oh well. Have found silence is golden.) He is wanting to come home from rehab before his surgery. I have said no as I need this time for my back to heal and to get a few things done before he comes home from his up coming surgery. ) He is still demanding but I am learning to deal with it and still keep my sanity. (smile). Have a great day and week. Hope all is going well.
I hope things keep improving and that your back feels completely better soon.
I am not panicking now but still have a sense of dread as I am hoping and praying that things will not go back to the way they were. I will say this, I can go to my study if he gets to argumentative and take the puppies with me in there. But if he even looks like he is going to become physical I will call 911 immediately. I don't believe he will get physical with me. He hasn't in 30 years and I am not afraid of him. Just dreading the hatefulness if it starts up again. That is worse than physical, but I have had time to build somewhat of a protective wall around me.
Well guess I am on my pity-potty tonight... Sorry y'all. Believe it or not before Feb of this year I have always been an optimistic, happy go lucky person who was always smiling as being his caregiver for 13 years was tough but I knew he loved and respected me. Now I am not so sure. Have a great night y'all.
Needless to say whether I can afford it or not I am buying a gun safe that will hold both guns or one gun and the ammo. If I leave his gun out it will be unloaded and the ammo will be locked up with my gun. I will have the only key and code. I am not taking any chances. Not sure what he meant by warrant...but as I said not taking any chances.
I have decided I am going to contact some battered women's groups. Thank you and everyone for listening to me vent. And for all of your advice, support and help. It means the world to me.
I don't know why your husband has suddenly turned but under no circumstances stay with this man if you feel like you are in any danger. Even if he doesn't physically assault you. Verbal abuse is abuse. Please listen to your gut and do what it tells you to do.
I have been watching u-tube videos by counselors on verbal, emotional abuse and gaslighting. Funny 8 out of 10 questions they asked I was able to answer yes to. Scary.
I am not sure it will do any good to talk with his cardiologist as the hospital refused to address the verbal abuse (and yes I have gone from saying meanness to saying abuse). I am not going back out to see him for at least a day or two if then. I do not want to see him. He has not called me tonight and I am not calling him.
This guy has flipped out, he has threatened you and what ever the reason doesn't matter. You need to listen when people tell you what they are.
You are obviously strong, use that strength to protect yourself. Tell his family that they can contact him direct if they can't be civil and let them know that he is currently homeless and which address should you deliver his chit too?
Right now I am back in tears again for a situation that is almost impossible but is more like a flashback to when I was married those many years ago. Abuse is one thing but since he would not explain what he meant I have to take it as a threat. I have never been afraid of anyone in my life but I have to admit what he said today has me really uneasy.
I am not going to get a gun safe but will unload his gun and hide my gun and the bullets.. I am not going to fight him on this as it is true. I am not sure that I can ever forget the fear and uncertainty that I felt today. I feel so sad and am crying right now. My heart is breaking for what we had and for what our relationship has become. I don't want him to be alone if and when the time comes. But I will not fight him on this. I did tell him I will not be out tomorrow to see him.
I would be arranging for him to become a long term care patient in your shoes, either at the NH or at an AL, until he is mentally stable.
So he is still at a rehab, and will be going from there to a hospital appointment on Monday? I strongly recommend bringing a girlfriend or someone with you. Sometimes the aides at rehab can accompany a patient to appointments. In fact Moms NH is required to send an aide unless a family member goes. Please talk to the social worker or the RN manager about that. Why do you have to go at all? Honestly I dont think I would ever be alone with this man again.
Good morning y'all...
Gershun… sorry for not responding. I think my "feed" has the hic-ups as your post just showed up (or I missed it-sheepish smile). That had to have been hard. As I said in one of my earlier posts.. I got married very young (age 19) and the marriage only lasted for two years. The first 6 months were great, the next 6 were verbal abuse and the remainder was physical abuse of the severe kind. My honey knew about that (I told him before we got together and my honey promised he would never even remotely go there. This is the reason why his behavior these last few months has really set me back on my heels.
I am going out to see him tomorrow (depending on how he sounds when I talk to him today on the phone). Whether he stays with me will depend on if he agrees to my demands. 1. We will purchase a gun safe and I will have the only keys, combination etc and though both guns will be locked up mine will be the only one that is loaded. 2. He will allow doctors to evaluate him to see if this is a medical issue and his current anti-depressant is not working (ie: possible his anti depressants are not working or as effective as he has been on them since his strokes in 2005) and 3. He will see a counselor (either with or without me and I will take him to the counseling sessions. Or if they have a counselor there, he can do the counseling there before he is released and continue it afterward) to help manage the fear, bullying and anger issues. I am not ready to give up on a thirty year relationship in which he has not been abusive or threatened me prior to the last 6 months. If he is willing to do this (and then does it) then we will try to work it out. If not then he can collect his clothes and go on down the road.
Barb... my honey has been on anti-depressants since he had his strokes in 2005. I have a feeling they are either not working and the dose needs to be changed or they need to put him on a different anti-depressant. With what he is going through, knowing that he is near the end, I just don't think that his current anti-depressant is doing the job.
Rocket... I agree. After what I went through with my ex (know I shouldn't compare) I don't trust apologies. The proof is in actions not words. As to the locks, his keys are here and if he does go all keys will be accounted for prior to him leaving. As I said the only way he will remain is on my terms. I do know that he does not have a spare key hidden as I would have had be the one that had it made for him and I haven't. If he had been able to drive or if there had been someone who could have had one made for him then I would be concerned, but there hasn't been in either case (hope that makes sense).
I am not afraid to be in the car with him as right now, back or no back, I am stronger than he is, my reflexes are faster and I was trained in self defense and how to take someone down if I needed to (training I had many years ago that I have never forgotten). I also have very good brakes on our car and would call 911. I don't feel that there will be any problems. If I did I would have an aide, friend or someone go along.
I will keep y'all posted. Thank you for being here for me and for your advice. Trust me I do heed it and y'all have opened my eyes to many things. As I said it is on my terms now, or it will not be at all, as to where this goes from here.
I will be doing some laundry, working on my paintings today and spending some time with our pups so it should be a relaxing day. I will be on and off throughout the day. Y'all have a blessed and great day!