I ask this because I have. I think daily about escape from this prison of servitude that has systematically removed me from the joys of aging and of being a happy participant in and a planner of, birthdays and holidays-which were always my favorite things, and now bring sadness and dread because I no longer have the resources or the energy to do, as well as the daily pain-pain of watching this man drift away in ways that, in themselves are equally tragic to both of us and have no positive resolutions. Yesterday was a good day. I am grateful for it. But that was wiped away at sunrise as he woke with confusion and all that goes with it. The physical pain that my own health issues bring to me daily that I struggle to deal with in order to give care, is often overwhelming. The pain I know he feels somewhere in his confused mind is so sad. Please know that I have, and will again, call a hotline. This has been a very positive experience. I have sought and will continue to seek, counseling. I have people who love me and who I love. I know that ending my own life would cause them tremendous pain, yet this all seems just like a terminal illness. I am not "crying out for help". I sometimes refer to this life experience as "a long day's journey into night", to refer to the play. But some days and in the dark of an interminable sleepless night, I just want to be gone. I am hoping to start an honest dialogue with caregivers and professionals.
I WILL BE CALLING the AgingCare.com Customer service and telling them that someone wrote about the possibility of committing suicide.
While I understand that you want to talk about this, Suicide is a VERY SERIOUS HEALTH PROBLEM and as a health professional, it is my duty to report if anyone I talk to has expressed the desire to commit suicide or to kill themselves. Sorry.
I don't hear She1934 threatening to kill herself. She has strategies in place to cope when she does feel like that. (Hotline and Counseling) She has felt suicidal in the past, and would like to talk about that. Do other caregivers reach that point? How do they cope and keep on going? DeeAnna, are you saying that She should only talk about this subject when there are health professionals monitoring the conversation? That seems very restrictive to me.
These are the times when we need to draw on all the inner resources we have, to remember that these times will eventually end and we'll be facing a different kind of frustration, that of the grief of losing someone we love and possibly revisiting the care we've provided and found ourselves wanting when someone needed us the most.
I'm glad to read that you're getting counseling, and to see that you have adaptive methods, such as considering T.S. Eliot's play as a life experience I think that's a high level, intellectually adaptive choice), and one which also addresses the stresses and frustration of life (with drugs, as in the play - if I remember correctly).
I find that Shakespeare's plays, especially King Lear, offer insight as well, remembering that old age, caring and uncaring siblings, aren't solely an issue of contemporary life.
Difficult as it is, you have to carve out time for yourself, even if it's just 1/2 hour a day while your partner (?) is resting or sleeping. Down time is mandatory. House cleaning and that sort of stuff can wait; it's just not that important when stress and exhaustion are higher level concerns.
You might try to find a support group, phone, online, or otherwise. Posting here is also a good opportunity to reach out to others.
Many of us have gone through similar challenges with literally no life of our own. Now that I'm past that stage and into the post death stage, I look back and, while I won't say I'm glad that I endured so many challenges, I'm glad that I didn't let my father down when he needed me the most.
That's one way to interpret your current situation, that you've extending yourself at this time when someone you love needs you more than ever. In some ways, I can't think of a greater love.
Today is the second month anniversary since my father's passing; I'm trying to focus on traveling this fall after trust issues are under control, or visiting family that I haven't seen in a few years, of taking classes and restarting my stalled brain. I kept those in mind during the last challenging days, and they helped me get through.
But I won't deny that I'm still having a rough time, with flashbacks, and questioning of what more I could have done. I think that's not unusual.
Please continue sharing your frustrations here so that we can reach out to help you.
In answer to your question, I've not reached the point of contemplating suicide but can relate to the feeling of not being able to see the light at the end of the tunnel. But there is one, I promise you. There is a solution, and suicide is not it - but there is help out there, and you are not alone. We are here for you too- so many of us on here going through the same type of thing. That what I love about this site, that people here understand and know how you feel.
Big hugs to you, stay in touch and come back to vent anytime.
I felt like I had two full-times jobs, one at work, and one just trying to logistically help my parents. Plus I was dealing with a very illness myself which was exhausting me. And to make matters worse, I was a senior myself... like who's going to pick me up when *I* fall?
"I just want to be gone." I can relate to that, too. I've never contemplated suicide, but more than once I engaged in magical thinking of suddenly just being somewhere else entirely, where I had no responsibility for sick people. I chose to be a caregiver. I knew I could make a different choice at any time. I didn't feel "trapped." But some days, just some days, my fantasy was reading murder mysteries on the beach. Just "poof" and there I would be, without having to make arrangements or planning.
I'm so glad you keep the hotline number handy, and that you are open to counseling.
Come here and tell us about it when you are feeling especially hopeless or overwhelmed. We can hear it all without being judgmental. (But if you are feeling suicidal, call the hotline first!)
Reach out to here online. Find a counselor, minister, or friend to talk to about your situation. Try to work out some respite time for yourself. Take care of yourself. I think this is an appropriate topic for this forum. Caregiving can be a dark journey.
Caregiving is a long, difficult road, and we’re happy you have found the support of others here on this site. In light of recent events, it’s important to foster an open and honest dialogue about mental health issues like depression and suicide. However, there are limits to what untrained members on our site can provide.
Please reach out to experts for additional support and the help you need by calling the 24/7 National Suicide Prevention Lifeline at 1-800-273-8255.
Take care.
I completely missed that approach and thought only of offering support. But I think both sides can offer suggestions as well as plans of action - the two groups can work together as the regular posters typically do, and offer different perspectives. But thoughts of immediate suicide need to be directed toward professional intervention and immediate help.
I too felt that that She1934 was balancing the suicidal option with coping, literally teetering between the two. It's a difficult balance for someone in her situation.
I also recall either my sister, who was a psych nurse, or one of the other psych nurses with whom she worked at the local psych hospital telling me that sometimes people deliberately reach out to others, expressing suicidal intents, so that others intervene and stop them.
Another observation was that sometimes people attempt suicide but do it in such a manner and time that intervention is guaranteed. This would be in situations such as attempting it knowing that someone is coming for a visit, or before a planned event. It's done with a failsafe option.
I have also had at least 3 friends (ages 19, 54, 63, and ____) in the last 6 years who committed suicide so I am very, very sensitive.
I realize that "She1934" stated that she will call a hotline and that she has sought counseling. Sometimes I may overreact when someone talks about suicide. There was just something about what "She1934" was saying that pushed an alarm button in me.
But I am puzzled about the restriction that suicide should only be talked about in the presence of professionals. Doesn't that continue to keep it a taboo subject? Thinking that it is such a terrible topic that you can't even talk about it may not be comforting!
Of course suicide is a very serious medical topic! You did the right thing. I just don't agree that the topic should be off limits on this forum.
It's grieving too, as you said, of what was, or maybe in some cases what never was, or the way things have gotten. So glad people like you and others share your stories and experiences, and I hope you'll keep coming here and let us know how you're doing. Your experience and journey can help us too.
Caregiving can be so lonely and isolating - that's how I felt anyway-I'm glad you have people who love you -keep them close-Especially if you have someone who you can laugh through the tears with you -if that makes sense -
The forum has discussed suicide and depression many times and none of those posts set off alarm bells in me like SHe1934's initial comment did. I agree that the topic should not be off limits, it just happened that I found the wording of this post worrisome.
negative tips so far towards the negative, or even not just negative, but a seemingly
endless round of chores with nothing else. When LO's are mired in negative, whether due to PD, disease, dementia, outlook, etc, and we're their lifeline and the only ones to
make it all better, it's vital we don't get sucked into it ourselves.
There are both online and phone support meetings, face to face meetings depending
on the area you're in for many types of issues. I use OA (overeaters anonymous) and it can be a life saver to hear other supportive voices when I'm feeling stuck and eating for comfort. Certain foods can leave me feeling sick and dangerously depressed.
Face to face meetings are wonderful, and depending on the area there are many types
of groups to get involved in. May be caregiver support groups in your area too.
Getting out in nature even just for short walks, gardening. Making something, even if it's just a nice meal, or accomplishing something, a puzzle, sewing project, building project,
even finishing a chore, can give a much needed boost to the spirit. Volunteering even
for an hour here or there can reconnect you to the outside world.
All of these types of things can bring a boost to the spirit. Try and find as many small
things you can include in your day to life your spirits and shift the focus towards
the positive and life affirming. It's really tough to do when you're so tired and just
wrung out. But it really does make a difference. Best wishes to you!!!! ((((hugs))))
working towards. Not just day to day chore. I know those are endless :/
There are definitly times i think i just cant do this all by myself one more day . But the next day gets better or the next. You might laugh . But there is this 'game" on the internet called " Secondlife" I go on there and just fine a beach and listen to beach sounds and gulls.. My secret get away from everything and everyone . You can go or do anything there . Dance , listen to concerts etc. Sometimes its a book . You need a different kind of escape
I pray. I pray through the darkness knowing if I can get through those hours of barely being able to breath thru the pain and heartache, it will get better. Even if it’s a little better, a little at a time. It always gets better, at least liveable, within hours of the darkest hours - that’s gotten me through a few of my lowest darkest times.
Do you have someone you can talk with, that too has felt like this? I think having someone, who has been there, understands and can listen without judgement, without taking over - just listen. That would be incredibly helpful. If you don’t, please message me. I’d be honored to be your shoulder and ear to lean on.
Also, for many years people have suggested journaling. I never really got into it. Recently? I wrote out my prayers - talking to “someone” takes a great deal of the pain off my heart, the worry, whatever is weighing so heavyily on me gets better, even so slightly if I write it all out as it flows from my brain. If it rambles. No one is going to read it. Just pour out your heart into the pages. That could give you enough relief, strength and hope to get to a safe spot.
When I’m that low, hurting that badly, my head is also spinning out of control with the pain, guilt, everything that’s wrong, my worries, etc. writing those out, stops the spinning, makes them seem more organized, you’ve thought each one through, it just, for me, has become quite therapeutic.
I’ll be praying for each of you. This is definitely a hard, long road.
I think it's also very common to experience a strong desire to "escape" or flee from an impossible situation. Our nervous systems are built for fight or flight, that is just how we are wired. Your situation of being a 24/7 caregiver for your dad has taken a tremendous toll on you physically and emotionally, so take moments whenever you can to recharge and reboot, even just a little bit. I have huge admiration and respect for what you are doing, it actually shows super human strength and resilience, more than you realize. Most people could not do what you do day in and day out.
When I dream lately, I often seem to have escape dreams with my running or fleeing or getting out of some prison. And I totally get that you feel like you are a prisoner, because I often feel so stuck too having a 24/7 caregiving situation. It sounds at some level that you might yearn for freedom more than escape, to feel free to do the things you enjoy and be fulfilled and happy. The one thing that has kept me sane is to find more of those moments where I feel like myself, whether it's enjoying nature or having lunch with a friend.
I agree with other posters that you need more caregiving support so you can do get out and do some of the things that bring you pleasure. Make a wish list of things you want to do or are passionate about, post it on some wall or bulletin board, and check off at least one item every week!
Keep posting and talking to all of us. Sending you hugs and love and so much appreciation for having this conversation.
Or what I call "soaring" music - the Hallelujah Chorus, Schiller's Ode to Joy - they transport me beyond the confines and challenges of not only caregiving but daily living . I'm never depressed after listening to such magnificent music; singing it is even more powerful.
Decades ago I sang with a university chorus; our first performance was of Carmina Burana, a powerful masterpiece in its own right. For the encore, we sang the Hallelujah Chorus. The emotional and mental elevation of singing that powerful composition, to an audience, is beyond description. It's literally transcendent.
And then there's literature. I think if the well known observation that "Music hath charms to soothe the savage (sometimes read anxious) breast" were to be adapted, it could be read that "Music hath charms to soothe a depressed caregiver."
Similarly, I would alter "If music be the food of love, play on..." (omitting the fact that that particular discourse changes tone after this marvelous opening), I would write that "if music be the comfort (or soothing balm) of caregivers..."
(With apologies to Congreve and Shakespeare for alteration of these magnificent truisms)
Mercy killing is OK to talk about, be voted on and performed but suicide cannot be acknowledged. Ridiculous....
First She1934 how are you doing? How are you holding up? Please let me know how you are doing.
Everyone....Suicide is a taboo subject in society, but not as bad as it used to be. In the 30 years that I have been caregiving, first with my parents (I was in my early 30's) and then with my honey, whose caregiver I have been in one form or another for 27 years it has been hard. The only thing that has kept me out of the dark places was love, my faith, my inner strength and my art. Though my family is few and not geographically close, I know they love me as even though my honey acts like a horse's patoot I know he loves me as well. My art...For me working on my paintings is where I can lose myself and forget any worries or woes. Though I have to admit that when stress is high my creativity seems to take a vacation, but it comes back like an old friend. I have paintings hanging in France, Ireland, England and throughout the US and feel very blessed for this and the many other things that I have to be thankful for.
I have learned since joining this forum that I have to make time for myself or I am no good to anyone or myself. And I think that is a major key as well as having a wonderful group of people to talk to who are going through something similar or the same as I am. It is also important to take time out if nothing else to take a few deep breaths to clear my head when things get overwhelming.
I hope this post has made sense. What I have written above and knowing the pain that suicide can bring to others I care about (plus losing a dear friend to suicide ) has kept me from visiting those dark places that can make life seem hopeless. Y'all have a good night!
I'm so glad you have people you can talk to/lean on! They are your most precious commodity.
Namvet, please don't get wrong... I am not playing down what you or she1934 are feeling. I am so thankful that you are not contemplating suicide. You don't say how old you are though if I am correct you are caring for your wife. It is hard watching someone you love decline or go through difficult times and if they have a difficult personality it is even harder.
I have actually grieved twice for the man I fell in love with 30 years ago. The first time was when he had his strokes 13 years ago and was initially diagnosed as being about age 3 mentally at that time (he is now at around 16 though he acts like a 5 year old at times). I still love him very much and it kills me to know that in all likelihood he does not have a lot of time left and I will lose the love of my life and my soul mate so I grieve silently so that he will not know. But I know I have to keep strong for myself, him and our two four-legged "fur babies".
Namvet...just as I told she1934... hang in there. You need to find time for yourself even if it is just a few minutes to do a hobby, watch a tv program or do something you want to do. If you can afford it (I have found out Medicare will not pay for non-medical caregivers) see if you can get a professional caregiver to come in for a couple or three hours a week ( even 8 hours) to give you some relief so that you can find yourself again and regenerate. I hadn't cried in 12 years until the time period of Feb to May and was ready to run down the street screaming when I found this forum. There are a lot of wonderful people on this forum who care. I don't know what I would have done if I had not found this forum as I had no one to talk to who could understand. Please keep posting and keep us posted how you are doing.