My husband is on dialysis and now experiencing dementia. It is time to finally have the talk, while we still can.
In the past, he’s said he doesn’t like the option of hospice. He doesn’t like strangers around. But, I don’t feel strong enough to go through this alone (whenever it happens).
Either way, there are going to be strangers around. Hopefully they will grow to be friends. Tell him your health will suffer and you may die if you don't have help.
(30-40% of c/g's die before their loved ones while taking care of them.)
The next question is whether he can continue on dialysis and be in Hospice. I have a call in to admissions to find out. I hope we can take advantage of all they offer, but If they don’t allow the dialysis to continue at least for a little while, then it limits us. I’ve heard the average lifespan after stopping dialysis is less than a week.