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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
Share a few details and we will match you to trusted home care in your area:
Hello, my husband age 63 was Dx 4 years ago with MSA. I will be happy to share our journey with you. Rick has not progressed as rapidly as some research suggests. We have some days that are better than others. I hope you find comfort in that. Again, please feel free to email me. I spent the first few months reading and crying, not always in that order. The unknown was overwhelming and scarey.
My father was diagnosed with a specific form of MSA - olivopontocerebella atrophy (OPCA). We had a very hard time arriving at that diagnosis because his symptoms were so varied. Falling a lot, cold all the time, a specific type of gait, tremors that didn't look like Parkinsons' Disease. When he started to lose his ability to speak clearly and swallow, that is when they were able to pinpoint the specific disease. He died approximately 6 months after his diagnosis. He was 84 when he passed away of pneumonia - probably from aspiration.
I don't know what to tell you. Find a neurologist that specializes in movement disorders. It's been 4 years since my father passed. They tried some Parkinsons medications on him which helped a bit.
I obviously don't know you or your husband's age or symptoms. My suggestion might be difficult to hear at this point. You and your husband should discuss how much care he wants to receive as the disease progresses. Take a look at 5 Wishes (http://www.agingwithdignity.org/five-wishes.php).
I have to admit that, while we were grateful for the diagnosis by the neurology specialist, I was frustrated at her optimism. I would have preferred to hear that we would ultimately have to make a decision about a feeding tube, for example. Instead she told my dad that he would be around for the next St. Patrick's Day.(This was March 2011 - he died at the end of April 2011.)
Thanks to all who responded to our family's latest challenge, MSA. Dbryn, will you give me your email address? I would like to talk to you more about this. Pam, I will check out that web site. And mwb, thank you for your honest experience. My husband is 76. He was diagnosed 4 years ago with PD, but had that changed to MSA last fall. He is in a nursing home, cannot walk or talk and is on ground foods and thickened liquids. Only has limited use of one hand. Becoming very discouraged. Oh dear.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I will be happy to share our journey with you. Rick has not progressed as rapidly as some research suggests. We have some days that are better than others. I hope you find comfort in that. Again, please feel free to email me. I spent the first few months reading and crying, not always in that order. The unknown was overwhelming and scarey.
I don't know what to tell you. Find a neurologist that specializes in movement disorders. It's been 4 years since my father passed. They tried some Parkinsons medications on him which helped a bit.
I obviously don't know you or your husband's age or symptoms. My suggestion might be difficult to hear at this point. You and your husband should discuss how much care he wants to receive as the disease progresses. Take a look at 5 Wishes (http://www.agingwithdignity.org/five-wishes.php).
I have to admit that, while we were grateful for the diagnosis by the neurology specialist, I was frustrated at her optimism. I would have preferred to hear that we would ultimately have to make a decision about a feeding tube, for example. Instead she told my dad that he would be around for the next St. Patrick's Day.(This was March 2011 - he died at the end of April 2011.)
Blessings to you........
You are in my thoughts.
Debbie