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She has dementia and I believe she really does think she took them, but I'm sure she is remembering taking them on a different day. I say, "Mom, if you took your pills, why are they still here"? She has lots of answers such as "someone put more there", "that's a different dish" or my favorite, "Why don't you believe me? I know I took them". I tried to reason with her, tried to scare her that she will get sick if she doesn't take them, tried waiting until lunch time and give them to her then, but she can be very stubborn and keeps insisting she took them.


I leave them out for her when I go to work, she is usually still asleep and I have a caregiver come in about 1/2 hour after I leave and she lets me know if Mom didn't take them (again), she also tries and is sometimes successful getting her to take them at lunch, but not always.


She has lived with us for the past 5 years and the struggle is only getting worse. I ask her "Why would I lie to you? I'm only trying to do what's best for you". Her only response to that is "Why would I lie to you? I know I took them".


Night time is much easier as my husband and I are both there to make sure she takes them it's just the morning pills that are an issue.


Does anyone have any suggestions on how I can convince her to take her forgotten meds?


Thanks so much
Tired of arguing

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Talk to her doctor or pharmacist and find out if the pills have to be taken in the morning? Sometimes the schedule can be modified.

While you are talking to the doctor find out what the pills are for and what they are treating, what the outcome will be if she does not take them as scheduled. You want to be prepared for a worse case scenario.

Also ask the pharmacist about side effects from each pill and if there are any combined side effects? Some medications cause significant side effects and that may be part of the reason she is resistant to taking them.

Another thought, from your post, it appears you leave the pills out for Mum. Perhaps you need to change the pill taking routine? What about taking them into her bedroom, waking her and giving them to her? Or setting the pills in the dish, but putting them in a different place so the aid who comes in can give them to her?
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xdx83xdj Oct 2021
Thank you for your response. It sounds like the best course of action would be to leave them for her caregiver to dispense during the week. She has a daily chart I made for her and she has been filling it out in advance, which of course does no good, she will point to it and say, "Look I wrote it down when I took them" yet they are still there. I would like to get rid of this all together but she won't let me. She says she has to turn it in (sometimes she says to the doctor, sometimes it's the hospital, sometimes it's 'to the people here') and she will often ask me to sign it - to prove she took her meds. I think I will just tell her "They don't want us to do that anymore, they just want you to take them at the same time every day so someone will give them to you each morning at 8:00". Hopefully that will help.
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Find out if there are any meds that can be discontinued and if the others can be crushed into applesauce or another food. Perhaps there’s a new issue with swallowing?
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Difficult.

We paid caregivers have very strict rules when it comes to medications, and it's far more common for people to get stroppy with us because they think we're being obstructive than to worry because we're too cavalier. But anyway.

One rule is that we may not dispense medication for the client to take "later." We dispense, we pass, we observe, we record. If the client changes her mind after we've removed the medication from its container and decides not to take it, for example, it's a major pain in the behind - lots of paperwork!

But there are sound reasons for the protocols, and you've highlighted one. Don't leave medication out for her to take because it leads to confusion, uncertainty, ambiguity - all very bad things in the context. Either wake her up and give it to her with a nice drink, or leave it for the caregiver to handle.

A bit of formality might make your mother more compliant, as well as reducing the chances of getting it wrong. Use a proper chart and record what's given. If you Google "MAR chart templates" you should find plenty to choose from.
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xdx83xdj Oct 2021
Thank you, that is very helpful.
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DH aunt, 95, with dementia, not taking her thyroid tablet was when I knew she was going to have to have extra help.

I used logic to help her understand she wasn’t taking them by comparing the number of pills left over to the calendar days left before a refill was due. Lot more pills left than days until a refill. That was early on. That pill was so important, had to be taken on an empty stomach, no food or sweetened coffee for 30 min etc. She simply couldn’t remember she hadn’t taken it. It’s like you said, she had taken it so often, it seemed she had.
She did understood that she hadn’t (couldn't have) because of the math. We went on for years with the pills being a bit of a struggle with one solution working for awhile and then no longer working as she further declined.

The last thing I tried that still works for me is giving the pills in separated batches. They weren’t as intimidating to her. She would have forgotten she had taken the first batch and so was agreeable to the second one as it was just a couple of pills I would say to minimize the importance.

I have always refused an am/pm dosing as she had no one to give evening pills to her in earlier days. Occasionally she had an antibiotic that required an evening pill. Twice a day might be ideal, once a day may be sufficient. I never had a problem getting the doctors to prescribe this way. But not everyone’s health issues allow.

Tothills suggestions are good. At 98, I would want to know which of the pills were absolutely necessary and why and offer those first. Then I wouldn’t sweat the small stuff. Some can be crushed and added to a favorite food but when she doesn’t eat the food you just have to let it go and try something different. DH aunt needs to take Metamucil powder daily. She would struggle with getting that down. Now we just stir it in her coffee and no more struggle. If she doesn’t drink her coffee that day, it’s ok. She will drink some tomorrow. It’s what she does most of the time that matters.

Your mom has lived to 98 and has obviously done a lot of things right to have done so. Try to let the worry of it go. I know it’s hard to do but sometimes we forget that they are in decline and things will change regardless of what we do.

I recently listened to a podcast where I learned that aricept slowed the pulse! I was so upset about that because for years we had to adjust her BP tablets daily to keep her pulse at an acceptable level. When she came off of the aricept the pulse went up to a level high enough we could give the same BP meds routinely. She is on hospice for dementia. We know Aricept won’t cure it. We had considered that it slowed it and perhaps helped keep her moods stable so her geriatrician continued to prescribe. When I found that what it truly slowed was her pulse I felt so foolish. Here I was worried about a possible pacemaker when all I needed to do was stop giving a pill that didn’t work anyway.

Each persons situation/health concerns are different but when you start noticing you are having to argue or persuade, it’s time to change things up. Its a fine line. We work to keep them well taken care of but when they push back it’s time to regroup. I hope you get some suggestions that help.
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xdx83xdj Oct 2021
Thank you. I appreciate it.
My best to you.
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Old folks are being forced to take too many pills. I agree with another comment. Perhaps some of these can be eliminated from the regimen. People in their eighties and nineties are not going to have their lives significantly lengthened or improved by most of what doctors want to do to them.
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Janetr Oct 2021
Totally agree with you Okie..... Of course it depends a bit on what tablets we are talking about. Blood pressure are probably a necessary one........
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Sometimes it helps to give your mom things she can control - choice of beverage with pills, taking them before or after meal... - and make the struggle for control not about taking medication. Also consider asking your pharmacist about which medications can be crushed. The crushable ones can be put into a bit of applesauce or pudding which may increase her likelihood of taking her medications - especially if you feed them to her.
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Why not simply stand there, show her you placing them in the dish and wait until she has taken them. If that doesn't work perhaps suggesting she needs the carer to give her all her medication by injection when she comes in might persuade her to swallow them. Think of her as a child and how you would ensure they took something, bribery might work, but don't fight over it. If she has some that cannot be taken before you leave in the morning for some reason discuss with her Dr or pharmacist changing the form she has to a once or twice a day one, that often helps reduce the number of occasions one has to fight if nothing else. Most things come in sustained release forms so timings can often be made to fit better with patient compliance.
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My dad would insist that he'd taken his pills when the little pill containers were still full of them, or he'd take them on the wrong day, or he'd drop one and then take a random pill from a different day. It was a total mess. Finally, I talked to the doctor and pharmacist and discovered that he could actually just take them all at the same time, anytime of day, even though the pill container said take at 8 am or at 6 am or whatever. If you can get someone to review all her meds and then determine if you can give them to her in the evening (which is what worked best for my dad) you can just do it yourself. Your mother can no longer be responsible for taking them or even knowing where they are. The caregiver can only remind her that the pills are there. She can't make her take them or actually be responsible for giving them to her. I sympathize with your struggle. I've been there.
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xdx83xdj Oct 2021
That would work if she only had to take 1 a day of each, but a couple she needs twice a day. I appreciate the tip though.
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I had the exact opposite problem with Mum. I used to have a weeks worth of tablets sorted into seven daily boxes and further sorted into breakfast, lunch, evening and bed-time boxes. This worked for a long time, but then she would take the pills designated for a particular time, then forget she had taken them and go and take the next lot or tomorrow's as well. This meant sometimes she was overdosing, sometimes she wasn't getting any. And she always blamed me if a box was empty, saying I hadn't sorted them out correctly. She would never accept that she'd taken too many. I was forever ringing the NHS helpline for advice, as she takes morphine, warfarin etc.

In the end I bought a timed dispenser, You can set it to dispense up to 6 times per day and only the the tablets for that time are accessible. Everything else is locked securely away. This way I can tell that she's taken them (there is very occasionally a tablet left, which she has missed), but the important thing for me, is that she can't get to the others.
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JuliaH Oct 2021
I went that way too! Mom likes the way it lights up and talks to her. Especially when she dumps them out it says "thank you". Great investment for about$100
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Try crushing them and putting them in with some applesauce, pudding or even some oatmeal
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Some pharmacies will combine and dispense the medicine into pillpaks with time and day to take printed on them. This is generally a free service. I don't know if it will help but it's something to think about
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I am going through the exact situation w my 91 yo father. Says he takes them and too many doses are gone or no dose is gone...
Really though think about this:
They have a fatal brain disease. So if he gets too many of one or none of one, they still have a fatal disease..that will end sometime soon. We took my dad off cholesterol meds as he was extremely lethargic and unstable in that one. Lipitor made him even worse with his dementia.
Ask the doctor which ones can be taken away and look into palliative care.. just keep him safe from injury and let his body continue the fatal process... Many times we think we are doing them a favor by prolonging the inevitable. We all are going to die.. why prolong it with heart diagnostics, Expensive scans, and non life saving procedures when dementia is going to eventually take them...
Spend each day enjoying the time left, stop arguing and just do puzzles. Listen to music or chat. No more struggles , just peace and loving times. Who really cares if they took their cholesterol or blood pressure pill.
Signed, a nurse who wants to make the best of the final days and months. Praying you find wisdom and peace.
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xdx83xdj Oct 2021
Thank you for your reply. I go back and forth, from getting upset because she didn't take them to saying, Oh well. Same thing with her diet. Who cares if she has ice cream twice a day, she's 98 let her do what she wants but then insist she eat her vegetables. Makes no sense, I know. I guess I'm still struggling with being her full time care giver.
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She has dementia. There is no reasoning with dementia patients. Does she have a weekly pill container?
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i went through the same thing. You will not win in this situation. My mother swore she took them when they were right in front of her. Said someone must have come into her apartment and put the pills back in. I was at the end of my rope and sat at her table crying. She wanted to know what I was crying about. I told her the pills. She just proceeded to make a sandwich and that was that. We ended up having to place her in a nursing home. It was too much for me to handle. I found a good place nearby (luckily) and realized that what I was doing was not good enough. She got much better care there than I could provide and I was able to visit her and enjoy her last months without feeling stressed. We did things together that I wasn’t able to do because I was too busy taking care if everything and putting out fires constantly. We had the ability then to just be together watching tv or talking about old times and enjoyed each other. For us it was the right decision.
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xdx83xdj Oct 2021
I'm so glad that worked out for you and I've considered the same thing but she loves being around me and I would feel guilty if I put her in assisted living. Then I would be spending all my time there and nothing would get done at home. I agree they are probably better at handling things than I am but right now anyway, I just can't do it.
Thanks
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use one of those daily pill dividers...make sure the slots are big enough to accommodate all pills & vitamin supplements. My dad took 2 of his cancer pills because he forgot he already took one, so fill the slots and put the rest where she can't get to them.
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xdx83xdj Oct 2021
Been doing that for years but now are handing out the meds at specific times. So far seems to work.

Thank you,
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I found the pill dividers at the Dollar Tree work and are inexpensive.
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xdx83xdj Oct 2021
We've used those for years, but even if the pills are still there she swears she took them. We just started handing them to her at specific times each day and so far it's working.
Thanks,
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At my mother's memory care unit, the nurse goes around to administer pills and it becomes a scheduled "activity." Can the caregiver make a point of doing this? Maybe take it away from your mother's responsibilities.
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A Dementia patient CANNOT be expected to be responsible to take their own medication. They cannot remember to do so.

You will have to physically give her the medication from now on. It will have to be a part of a regular daily routine.

To make it easier, get an Alzheimer's clock, and set her medication times, that way, she cannot argue, because it's "medicine time."

https://www.amazon.com/SSYA-Newest-Version-Clock-Non-Abbreviated/dp/B07C2LL3XF/ref=asc_df_B07C2LL3XF/?tag=hyprod-20&linkCode=df0&hvadid=271614679167&hvpos=&hvnetw=g&hvrand=12794554672417560685&hvpone=&hvptwo=&hvqmt=&hvdev=m&hvdvcmdl=&hvlocint=&hvlocphy=9031108&hvtargid=pla-465860469978&psc=1
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xdx83xdj Oct 2021
Thanks for your reply. I do have 2 clocks and they help but when she is adamant there is no arguing with her.

We started handing her the meds at specific times two days ago and so far it's working. I'm sure there will be times it doesn't but it's better now.
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My husband does the same but I am retired and he does not want me to watch him take his pills because he is an adult. So I bought a ring and put a camera in the kitchen where he takes them in the pill box only with the pills he should take. It records and I can see if he took them or not. If not I show him and he has no recourse but to take them especially because they are still in the pill box. I also have a camera in our room so when he is resting. This way I can work outside without worrying.
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My eldest sister lives with me. I had a pill planner which I fixed weekly and noticed that she had stopped taking her meds. She said that she wasn't taking her medicine anymore because it made her "pee" too much. Trying to convince her using several family members, she continued to refuse. The most important and concern medicines was her blood pressure and cholesterol. I told her that I made an appointment with her provider so that she can tell her why she isn't taking her meds. Long story short, changes were made so that she will get meds once a day administered by me. I bring the water and pills into her and watch her take them. Her dementia episodes changes at times. It's hard some times being a caregiver. The provider explained to her that we are trying to keep her from having a stroke.
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Put a post it note with date/time in the lil dish.
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Dad is the same way. If he forgets, I just hand him the meds to take. I don't even tell him he missed them. We set them out in a cup as well, but he can still miss them from time to time. Of course, this only works if you are there to check on the meds! We also put a note in the cup with date and time.
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MichelleWTX99 Oct 2021
So maybe to help original poster's mom be involved in the solution, see if the mom will agree to sign/initial the note and write time she took the pills.

Caregiver writes date and time pills were set out.

Parent takes pills, writes time taken and her initials.
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My mom will hide them, tuck them within her blankets & even toss them behind or underneath her bed.
I now physically stand by her & hand her each pill … then do a quick look in her mouth with a flash light. It’s crazy, how she learned tricks on how to hide them within her mouth.
She moved into my home over 5 years ago & the first 10 months-hubby & I were not aware of her tricks & not taking her medication.
We started finding pills 💊 underneath items within her bedroom. Even at the kitchen table -underneath the placemats, on the floor, stuck underneath her plate & in her napkin.
As I mentioned, if I give her the medication, I stand in front of & watch her -then check her hands & quick look inside her mouth. When hubby gives her the medication, he also stands in front of her & watches. Her social worker told us to start putting her meds in her yogurt, applesauce & eggs. The ones that are in capsules, we can twist open or cut the top off and pour into her food. The ones that are tablets, we can smash them with a spoon & also put in her food.
Good luck 🍀 to all of us caregivers dealing with caring for our loved ones.
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princessasa Oct 2021
Your mother...and many others...don't want to take medications because they have side effects that is upsetting the persons balance..
Please think carefully about your Mothers symptoms Before she began medication. And now that she's on the medication
Has their been a great improvement in her health? Are her symptoms less?
Also put together a list of other health problems your Mother has developed since she's been on the medications.
Then review the side effects (both most common & rare) and consider the probability that the meds are causing problems
Also review the dosages...all med dosages are given related to the frequency/severity of symptoms. I have often found the elderly on doses far higher than medically indicated for the problems they are having
Finally, check that all the meds together is medically prudent. Ie...when one is taking a medication, there are a list of others medication that are contraindicated. A pharmacist could easily check the list for compatibility. However is not legally able to advise on doseage. You can review easily online
One would assume the physician knows & considers this when prescribing
However many dr's are very familiar with meds used in their speciality, and not used by dr's in other specializations of medicine that your Mother may be visiting...eg..gastroenterologist , optholologist
Lastly, in the elderly toxicity due to many meds is common due to the lack of exercise & generally slowed metabolism in the elderly.
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Okay so I am piggybacking off of a couple of previous answers...


So maybe to help your mom be involved in the solution, see if the mom will agree to sign/initial the note and write time she took the pills.

Caregiver writes date and time pills were set out.

Parent takes pills, writes time taken and her initials.
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Quit putting them out to depend on mom to take them. Her brain doesn't retain things correctly and very likely she says she took them as she remembers a different day. You have a home health aid coming in shortly after you leave. Put the pills out for that person and she can give to mom to take. She stands there, just like a nurse in a hospital. and makes sure she takes the pills.

Mom can't remember. Don't give her responsibility of taking them. You and she are both beyond that.
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PatienceSD Oct 2021
Excellent idea.
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I would give them to her myself BEFORE YOU LEAVE FOR WORK. If she refuses, and I am not an advocate of this but just telling you what I know some people, including medical people have resorted to, is holding their noses and making them swallow with water handy. I know it sounds terrible but at least they are getting the pills they need. Can they be crushed and put into food to hide the taste. The more I hear and see of what people with dementia do, the more furious and disgusted I am. I know they are broken but I can take just so much "nonsense" before I totally lose it. I was a caretaker four times in my life but now that I am much older, I have no patience and can't put up with it. I will be 88 and handle l00% of all my own personal affairs to make sure it is all done properly, completely and on time - not easy but I have not a soul to help me even though I am disabled and can't walk. I force myself against all odds to do the impossible and succeed - but not all are like me.
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princessasa Oct 2021
Sounds like you are all alone now Riley. Im so sorry that there is no-one there to love and care for you...or at least be your companion.
Particularly when you have given so much in caring for others
Others may not know, but the Angels know. And I sense it also
You are a very strong spirit and should be proud of what you have achieved.
If ever you would like to chat to someone I would be happy to hear from you
I have been taking care of my 85 (turns 86 tomorrow) year old Grandfather for some time now. I have learned patience and acceptance, and appreciate each passing day.
We are all capable of much more than we realize until life tests us
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When I see how people upset their caretakers so much and have such negative effects on those who care for them, why are they still at home? Why aren't they placed? Even without funds, there is help and there are ways for them to be taken care of. I just don't understand why people put up with all this crap?
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PatienceSD Oct 2021
There are solutions besides putting our elders in homes that are woefully understaffed. We find ways to solve the bumps as they arise.
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Ohhh boy. She’s in denial of her forgetfulness. Try bargaining with her. Tell her you will wake her to take meds before you go and she can go back to sleep. OR she will take them and not argue about it when you see she had forgotten. Give her those two choices only.
bless you for all that you do for her!
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My Alz. mother went through this same issue, refusing meds and hiding them, even pretending to put them in her mouth while palming them. Yep!

I found many little bags of pills in her room hidden at the bottom of stuff, probably weeks and weeks worth of pills. Apparently, she didn't die from not having those pills. So, finally I stopped caring whether she took them or not. I asked her doctor to review her med list and eliminate all except the 'must take' meds. Before she was taking 8 to 10 different meds, not counting vitamins, and eye drops; now, she's down to 2 meds which I crush and put them in her drinks.

No more arguments.
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I always stay and watch my dad take his pills. I say, let me watch you take them so we can both remember that you took them. Then I have a little chart on a dry erase board and I put a check mark while he watches and we check off each time he takes them. Then if he ever forgets he can look at the chart and see if he took them or not.
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