So do we force him to do these things when he doesn't want to? It may or may not improve his memory... who knows. He says he is not depressed. He just wants to enjoy his life, eat what he wants, hang out and watch tv. Should we force him to do all this? Clearly, mom wants to do everything she can to stall the Alzheimer's and keep him around longer but he doesn’t want to do all of this. Advice?
Try to get her to incorporate some of the "healthy" foods with each meal but allow him to enjoy some of the things he loves.
Play Scrabble, do some of the other games on a "game night" but another day she should settle down with him and watch TV and hold his hand (if he will let her snuggle up next to him..he may not allow that soon so she should take advantage now)
Your mom is dong what moms do.."fix", "make you better".
"We" are taught from an early age when you were little and you got a cold, eat the soup "it will make you feel better", you had your tonsils out.."eat the ice cream, it will make you feel better" you had a bad breakup with your first love.."eat a pint of ice cream" ....
It is difficult to understand that this is something that we can not "fix"
It is heartbreaking to know that you are going to watch this person disappear.
Your mom needs to find a GOOD support group, they are the ones that will understand what she is going through. They will be able to help her deal with the declines he has.
Now might also be the time to talk to an Elder Care Attorney and make sure all the papers are in order for what is to come.
If he is a Veteran contact the VA and see what if anything they can offer that will help.
If there is a possibility that there may need to be an application for Medicaid submitted find out what needs to be done (Elder Care Attorney will help with that if needed)
And it will take time for your mom to realize that no matter what she does or tries to do nothing will stop the decline or make him better or reverse the damage that has been done.
As far as a diet, there is none that is assured to work for Alzheimer's.
Your mother should find a good support group to help her navigate through this difficult process.
I'm not one for just giving up and letting nature take it's course without a fight.
So, I'm not sure what the proper balance between your mom wanting to help your dad and your dad just wanting to do what he does.
You can't force him to do these things. How would you do that? He's an adult. I don't know how it would play out if you pushed him too hard, but I can't imagine it would be a positive experience for anyone. I think it would be sadder to cause conflict during a time when your father is still *himself*, and to lose that time in a power struggle.
Parents of older teenagers who want their kids to maintain a healthy diet try to provide appealing healthy meals. They make healthy snacks convenient. They model good eating habits. Your mother could do the same.
Your mother could also play the "brain games" she wants your dad to play. (I have yet to see any peer-reviewed research to back claims of success in slowing the progression of dementia.) She could model the behavior she wants him to adopt. If she thinks it would be good for him, it would be good for her as well.
She can ask him (occasionally) to play these brain games with her, or alongside her, because *she* wants him to do it. She can tell him it will make her feel better and that he could do it *for her*. If he resists, she could push him, but at what cost?
Your mother might benefit from a support group and some counseling to realize that there is only so much she can control. Watching from the outside is probably the hardest part.
Healthy lifestyle does tend to be associated with less chance of developing Alzheimer's disease. If dad already has cognitive function problems, it is probably Alzheimer's type dementia. The only treatment that helps is taking the meds. They can keep dad's cognition functioning normally longer. At some point, the meds stop working.
May I suggest that mom spend her time enjoying being with dad.
If she needs to feel more in control of this disease, she could research: local resources, care/housing/home health options, methods for dealing with cognition problems and behaviors as they occur. It might be best to help her with the research and only talk to dad about it after you and she have settled on a plan of care.
Meanwhile, love your dad as he is. Help to "capture memories" by creating scrapbooks, wall of photos of family and friends with captions, asking him to tell his stories of his life (so you can reminisce with him when the details become fuzzy)...
I know he liked me to come b/c mom was driving him batty. And he was driving her batty. She took his picture down the day he was buried and it wasn't put again until one of the grandkids asked if Nano had been married, Broke my heart that she wouldn't even put a picture up of him.
I understand the dynamic. She has been "ill" (mentally) all the years of their marriage and he didn't fuss her one iota. B/C there was nothing physically wrong with her and he was working HARD to provide STUFF for her--and her pseudo-sickness just drove him nuts. HE gets ill and she has to step up and care for him and she resents the hell out of him.
Didn't help that she had been a D- mom and suddenly needed all of us kids to step up and help our beloved father. We were totally worn out fetching and steppin to care for mother for 30 years!! It was a JOY to care for my loving, appreciative dad.
She wouldn't listen to anyone. You might eventually have to move your dad so he can have some peace in his life. My heart goes out to all of you. It is so hard.
I am going in for some out patient surgery tomorrow. My daughter will take me. Hubby doesn't know if he wants to go or not. I am leaving it up to him. What will he do? just sit in a waiting room all day with nothing to do. If the worst happens and I have problems, he can't help anyway, his planning and thinking skills are not what they used to be. My daughter has alternate POA and she knows how I feel. I am for whatever keeps him comfortable.
For your part and her part also. Find out all you can about the house. If on a sewer, where is the line, if a Septic tank, where is it? If a sprinkler system, which valve goes where. Start preparing your mom to take care of the house on her own. I have started a folder on those things and who we use for repair people..
Videos are another way to document things like this, especially now with smart phones having that capability... I made a video a few years ago of my husband explaining how to start the snowblower haha... I haven't actually had to use it on my own yet, but if I do, now I'll know!
I don’t know your whole story, ages of your parents, who is doing the most work here, etc. So, take the following with a grain of salt:)
My first thought is that this may be something to refrain from getting in the middle of entirely. Unless both of them invite you into this, you may want to let them navigate this on their own. For some odd reason, when I read this, I immediately had an image of my thought process if my kids were poking into our business/marriage in this manner. It wouldn’t be pretty. (Of course, if your mom has dementia as well, this would be a different story. Keeping people safe is different from a husband being miffed because his wife is having him eat vegetables and get away from the TV now and again.)
No one is being hurt. If dad is annoyed, so be it. It happens in a marriage. She certainly isn’t hurting him. And you really don’t know the private conversations between them. He may be telling her that he is scared, that he wants to do what he can to fix this, that he feels helpless and needs her to be his “brain”. He may then turn around and complain to you.
Provided their marriage is at least relatively decent, she knows him better than you do and they have their own private world that no one can walk with them.
You may want to offer to help in whatever manner they both WANT you to, but tell dad you aren’t going to get in the middle of anything to do with their relationship. It isn’t yours to fix, if that makes sense.
I know all of us are so used to dealing with elders that have gotten to the point of acting like toddlers that we sometimes forget that not all older folks are indeed acting like toddlers. Mom is CARING for her sick husband. And, it sounds like he has enough marbles left that he has some responsibility in this to continue to be a husband to his wife. This isn’t all about him. She may be sick of him staring at the TV all day. She may have to clean up messes that come from a poor diet (I know we experienced this.) Let him do what he wants sounds lovely, but there are two of them in this relationship, and the relationship is truly theirs.
Unless your mom is hurting him or neglecting him, I don’t see where this becomes an issue for someone’s children to get involved. Not that I blame you for asking the question. You are obviously doing it out of love. Nothing wrong with the intention AT ALL. I just thought I would throw out a different perspective that you may not have considered.
We hear a lot about mom not being able to fix this. Yet, if she weren’t trying, I’d bet her kids would be wondering why she doesn’t care:) She is trying to do right by your dad, at least that is what I am hearing. She may need to let up over time. But, I am thinking that whether or not she decides to do that will have to come from the two of them working through this rather than her kids pooh-poohing her attempts to take care of her husband.
Again, I am not speaking this in insult. I hope you can hear that, even though I know it is hard to do online.
Your mom is going through her own version of hell with this. I don’t know if he is a great husband or a jerk or somewhere in between. Or if she is a shrew or an angel or somewhere in between. But, laughing with both of them is a great gift you can give them now. As is, supporting her without condescending to her. Not taking sides. Remembering that they have been dealing with each other’s junk long before you came along. Listening to what she is telling you instead of imposing what you think should happen. (Again, if the judgement is still there.)
Finally, I wish you the best. What you are going through as offspring is also incredibly difficult. Just try to remember that her role in this will be more challenging than you will be able to imagine. For every one thing you see, she will deal with 20 more just like it.
Would you be able to talk to your mother so she would lay-off the nagging? (Also, hav a chat with dad, just to encourage him, & let him know u love him. Prob he won't get too 'down' that way. (Good memories mean a lot later).
My husband likes salty cold cuts too. I can’t say that I blame him.
I know this sounds weird :-)