Today on the bus was a mentally exhausting exercise. I take her from the house to the bus stop, constantly “oh my feet hurt! Oh I’m cold! Oh I’m tired” moan moan moan.
Then we get on the bus. 5 minutes in. “Are we there yet? Why is this taking so long? Where are we now?” Another 5 minutes later “Are we there now? Where are we now?” And this goes on until we get to our location.
When we get to our location it doesn’t stop, shopping is stressful. And then we have to take the bus back.
This is a small example but sometimes it feels like carting a toddler around and I get so mentally exhausted that I can barely answer her questions. I just sit there numb and unable to think straight. All the while she is still going on and on and getting annoyed when I don’t answer.
ALSO: in shops, sometimes I’m so exhausted that I can be a bit snappy in my answers because I have put up with it all day. Sometimes shop staff give me looks like “be nicer to this elderly lady” and I get SO angry.
How do I cope? I feel bad but I can’t help it. I sit in the toilet for a few moments to myself to think straight.
Dealing with dementia and our elderly parents is probably THE hardest thing we'll ever have to do in life. Bar none. I can't give you any sage advice, I can only say "I feel your pain" and empathize with your situation. Be careful with the chocolate, too.........I wound up gaining an awful lot of weight over the past 4 years from comfort eating as a coping mechanism to deal with my dad's illness and passing, and my mother's narcissism & dementia. Now nothing fits & I feel awful, so all the 'comfort' I got from the 'comfort food' is now causing me great DIScomfort. Sigh. The endless conundrum.
Best of luck and remember this: YOU ARE DOING THE BEST YOU CAN and I applaud your efforts!!!
A PERSON WITH DEMENTIA IS NOT “GIVING” YOU A HARD TIME.
A PERSON WITH DEMENTIA IS “HAVING” A HARD TIME. And then Imagine yourself when you are having a hard time remembering things or doing something.
I figure, let him get it off his chest and so he can temporarily put his mind at rest. I use to answer quickly, but then i realized he wants to vent. I wait until he's done talking, and say okay.
The other suggestion I have is to look into public transport services in your area. Where my mom is the public transportation services, that run the bus line, offer van pick up and drop off to people who qualify for medical reasons. Mom qualifies because with her aphasia she is unable to get herself to and from the bus stop or take the bus on her own (even if she thinks she can) sounds like your mom can't do this on her own either and they provide rides at .50 one way to doctors appointments, grocery shopping, event's at senior center (if she went) or just to visit friends. They pick her up at the house and bring her home, someone can ride with her for free if she needs assistance, this might help you at least not have to deal with the bus if she can't be alone at all and offer a way for someone else to accompany her perhaps if that works, a friend or family member, student to accompany her to grocery store for instance. It does sound like you need to give yourself a break, more time away from her, let others help take up some of the slack. I know I get to that place and have to give myself some relief, my brother does too and we are fortunate to have each other to recognize that and make it happen but there are others out there wanting to help and still others willing to help (sometimes for a fee, sometimes not) but look into some ways to lighten your load, a fresh perspective can help.<3
In the overwhelming majority of these situations, the driver for the " child," is, indeed, love. Your response is disparaging to those in this situation, as you are indicating the "child" does not love enough or well enough. I suggest to you that love be your guiding force in action and deed, to all, and not just a trite saying smudged onto a wall.
By the way, I stopped taking her shopping early on.
It’s human to get irritated. Parents get annoyed with their children when they do that, but it’s much more difficult when it’s your parent who is an adult. It gets frustrating, but it’s also awkward, which makes it worse.
Secondly...all I can do is virtually wrap my arms around you!! Over the past few years my mom’s (81) paranoia has gone thru the roof. She recently fell and fractured a lower lumbar vertebrae and I have been constant caregiver. I sometimes feel like I’m losing my mind and find myself yelling at her like a child. I am grateful to have a separate area of the house to escape to for a few hours.
Medications can often have an adverse effect, but my mom finds some relief with a low dose of Xanax sometimes.
When we have to drive somewhere, she constantly asks how far it is, where we turn next, when will we get there? She has anxiety even when we are at home so she is generally wound up.
What do I do that I feel best about?
When possible, I do try to make her feel listened to with responses like, "I can understand why you'd feel that way" or the multipurpose "hmmm" or "wow." When I am so stressed that I am at my wits end, I excuse myself to go to the rest room or to another room with some "urgent" task and stay there until I feel up to coming out again! I also stay up several hours after she goes to bed so that I can enjoy time of my own and catch up with email, bills, and things I enjoy. Though she gets up super early, I sleep in later. It is my own personal boundary, imperfect but it has helped me stay sane so far.
Like was mentioned, sometimes it is like my children chattered, but as one of them died young, I am reminded how much I would love to be able to hear the voice of my late son again, as well as my late father and mother-in-law. So there is that sorrow and guilt at feeling tired of the constant talking for I know one day, there will be no more, I'll wish I'd done something differently, that one day I'll be old myself and may do the same thing (I hope not! I don't want my kids to feel this way.)
Also, I think the chatter partly could be that she is a widow, no partner to talk with about the days events and she doesn't have the daily workload that I do so doesn't feel as stretched. It is her world, and she of course wants to share it with someone. That is fine, but I wish there were a lot less talk and that makes me feel guilty. In about two weeks she will move into her new independent living cottage and I'll get a bit of a break then so I'm looking ahead with hope to that. I hope she will make new friends and become involved in the activities there so that will keep her somewhat more entertained and won't be as completely dependent on me!
It has also occurred to me that her negativity about the things she disapproves of is probably due to just not being happy with her life in general. Socially she had surrounded herself with church friends and religious programming, so that has been her world. Lots of that programming focuses on "last days" prophecies and her church's interpretation of them. There is a lot of fear mongering, and she sees every weather event or news story in that slanted perspective and she loves to watch the news and weather channels all day, thrives on watching constant disaster reports.
I often stop her and ask is she wants a cup of tea or coffee in hopes of distracting her. It works sometimes, not as often as I’d like 🤗
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How old is Mom. Does she have Dementia? If she does, this will cause the constant talking like a 2 yr old. And since reasoning is the first ability they lose, you probably won't get her to stop. Like a toddler, I didn't pay attention. I think they just talk and say whatever comes into their mind. Just a yes, hmmm, every so often may help.
We now give her 1/2 anxiety pill and it really helps. She actually seems to enjoy the whole outing then. You might ask her doctor about it. Since you are on a bus I think I would try it at home first. Take a walk with her and see how she does.
Heres another tip.
You take the other half of the pill.