I've been caring for my mom's needs for twelve years, increasingly more and more to do. The last three years she's been living with me and my husband in our home. I can't even begin to describe my burnout. My mom and I looked at a few assisted living residences, and she now refuses to move or look at any more residences. She actually liked one of the ones that I showed her. She is incredibly angry and belligerent with me. She does not think that she needs care and what she does need should be taken care by me. My two older two siblings live about 1.5 hours away from me and do not take on any responsibility regarding her care. Yes, I've communicated multiple times with them but to no avail. How do I actually physically get my mom to move out of my house?
It sounds as though your mother would qualify for AL not skilled nursing at this point. It can be best to get her into AL. If they have a relationship with a SN facility that move is easier down the line should that time come. Believe me AL is much preferable to SN and often residents find fulfillment there.
We can't always do what our parents want or think they know what is best for them but you can choose to find her a desirable place and regain your life which YOU deserve and most likely badly need to happen. On top of all this is her present negative attitude with you even though you are housing her. If she continues to complain what difference is there other than you have peace at home.
I've been hinting to her about a big change coming. I explained she is welcome to stay with us but living in this home & town is too expensive and hard on us.
I think she's hoping we'll change our minds. Nope!
Good luck with what you end up with. I totally understand 😘
If she, indeed, has a lot of money to use toward her care then, by all means, use it towards her care now in your own home. Just start easing caregivers into the home with the story of they are there to help you because it is becoming too much PLUS you want a back up plan prepared in case you have any health problems. So that HER care is taken care of without coming up with a last minute plan.
Just be sure to document how her money is spent while living with you. In the event she runs out of money, you might have to use Medicaid to get her in a NH if she requires that level of care at some point. None of her money can be gifted or given to someone. Medicaid looks back 5 years to account for how she spent her money down to nothing.
Forget about asking siblings. Some people are caregivers. Some aren't. As they say, you can't make a silk purse out of a sow's ear.
I wish we could somehow communicate with all those caring adult children who are thinking about moving an aging parent into their homes. I would warn them not to do it. If a parent cannot care for themselves and their own homes, they probably already need more care than a child can give them. If not, they will in a year or two.
Do not waste any more time with your sibs, they are already doing all they care to do.
You may try doing NOTHING for her for a week or so. Tell her that she really can do *whatever* herself--or of course, if she cannot do *whatever* the best way to get assistance is in *facility she liked*. You are really busy and can't help right now. If you put off all requests for at least half an hour, she may become more amenable to the idea of moving. This could work. It will certainly not improve your relationship, which looks pretty bad right now, anyway. It could also backfire and make her even more belligerent.
All those years of caring for her needs have built up an expectation in her that you will, of course, put her needs before your own. Turning this around will be hard on both of you. She has a pretty sweet deal right now and has no reason to want any change. You will need to create incentive for her to want some change.
Otherwise, you pretty much will need to wait until she needs a trip to the hospital. Then don't let her return to your house. Unless you can get your mother declared incompetent, there is no way you can really force your mother to move. She needs to choose to move.
There comes a time where one person's efforts become unattainable for the level of need.
Sounds like it is time for a change. Of course, you hold mother's hand and tell them all of their needs will be met and that you know where they are and overseeing everything.
Just make sure she feels rest assured unless you think perhaps it's time to "bring in palliative and/or hospice care" into the home? You would have to ask your mother's primary care doc.
Every family story is similar but you can do a lot over the phone and make a plan.
The people on this forum are very helpful. You don't have to do this alone.
God be with you...I will pray for you. I know it's hard, you love your mother but you don't want to go down the ship. You want to still be standing when everything is said and done. It may never come to agreement that your plan coincides with mother's.
Before I dive in though, please know, you are not alone. Thousands of family caregivers are in this boat with you. You are welcome to join us for support over on FB: AARP Family Caregiver Discussion Group (even if you aren't a member of AARP, though I highly recommend that too).
I can only share my own hard earned advice after caring for my own parents who decided (for me, yet without my input), that they wanted to age-in-place. Read that last again... ring a bell?
Okay, so let me get to it.
There is nothing wrong with calmly telling your LO:
1. Outdated gender roles assume adult female children will not be working and therefore will be free to provide constant care.
Most of us have to work to keep a roof over our own heads during and after their life span so that is no longer a feasible option UNLESS the aging party brings a financial surplus to the table to support that choice. Most don't.
2. Aging-in-place care plans assume those adult children will have the health to carry out that monumental ask.
No one has a crystal ball, so there could be no way of knowing how your own aging process and mental health would factor into the situation. Your life and health matter, even if they are too consumed with their own needs to acknowledge your reality.
3. There have been many improvements to, and expansion of senior living options in the last several decades.
They (nor you) need to be afraid.
4. It takes several people to care for a senior in a balanced manner: dietician, nurse, activities director, caregiver, cook, accountant, supply management, driver... to name a few.
Trying to do 8 jobs well, and believe you can balance your own life and health would be an unreasonable expectation for anyone... nevermind for a long period of time.
An ounce of preparation is key to preserving the relationship and minimizing the emotional toll on all parties. To accomplish this, have a Durable POA in place (giving financial and health proxy to a trusted 3rd party). If your LO will not agree to that, advise them that you will seek a neutral state guardian to manage their care so you can rest knowing their needs are met, even if not by you. That will usually turn them around (better the devil they know than the devil they don't). Note: they and you will lose ALL control over their care and choices, so proceed with that as a last and final resort.
Next, tour facilities as close to your home as you can find (and afford), at your earliest opportunity. Make note of which ones YOU would want to live in and tell them that! "This is where I will go when or if the time comes!" Be specific and share what you love about the place. Best if they seem to like it too (and the residents appear settled and content).
When the time comes (usually a crisis event), this will provide what you and your LO need... to have some sense of control over where they will live out the remainder of their days and that they will be safe (a basic human need) and cared for. Communicate to your loved one that you are looking local so you can visit - without carrying the care responsibilities alone.
The matters of managing the complexity/ies of their health (and the toll that takes on you) as well as affording care are whole other beasts so I intentially didn' tackle those here (or this post would be an even bigger book ;).
Sending love and light to all of you who are paddling down these category 4 rapids, in this particular boat. Though it feels like it at the time, the golden years don't last forever. 🙏
Consult with Elder Law Attorney to figure out what documents you need to help your mom to a safer place where she can reside as an independent woman with the level of assistance she requires. Hopefully, half way between you and your siblings (45 min away) so that you can all visit her regularly.
Find whatever facility she's going to and tell them she will be a hostile transfer. They will know what you mean and will help you.
If you don't have authority to make her decisions, you will have to serve her with eviction to vacate your home.
She has to go. Your burnout is terrible and I know how it is. I was an in-home caregiver for almost 25 years and have had the yoke of caregiving slavery on me with my mother for a very long time.
I'm leaving because I can't cope anymore with her and I cannot work in hands-on client care anymore either.
Tell your mother she is moving out. If she wants to get nasty and belligerent with you call an ambulance and have her sent to the ER. Then refuse to have her back. Tell them that you are unable to provide caregiving to her. They will send a social worker to talk with you.
Tell them you want her placed. If you've found a place, they will get her there.
If you haven't, they will keep her admitted until they find one.
Good luck. It will be okay.
I manage a boutique home healthcare agency in Boca Raton, FL, and see situations like this all the time. The adult child "feels like" mommy can't be alone, and mommy dearest is destroying her life - so like her 18-year-old no-good, burnout son tough love is required. WRONG ANSWER!
The place to start looking from and thinking about first is, "What do "I" (the adult child) need to restore MY peace, happiness, independence, and whatever else is missing from MY life (and lifestyle)? Make a list: get your nails done, time with friends, time for hobbies, a full night's sleep, a good shag? Write it down and keep the list handy so you can add to it!
Next, declare your independence and pull out your calendar. Schedule your month! Pretend mommy dearest is stuck in her room ALF eating lasagna and pinto beans for dinner (they do that) and you're alone. Bowling? Mahjong? Bridge? Cabo? Museums? Whatever.... just plan it and get ready to go!
Next, find a great home healthcare agency. One that will take time to listen to what you and your mother need, and match a caregiver to your mom and her needs. Sounds to me like what's needed is a certified HHA who is also a great companion.
My definition of a great companion is one who is willing to provide whatever is "needed and wanted" at the moment and is a great communicator. Bonus points if they are able to anticipate the client's needs, are always two steps ahead, and know when to lead from behind - giving the client as much independence as possible.
On the Caregiver's first day, you should make sure there are at least two choices for lunch that your mom likes in the fridge, and about an hour before lunch, start to get a little more dressed up (like you're going on a business appointment) than usual. 5 minutes before mom's usual lunchtime, the doorbell should ring. You greet your caregiver like she's an old friend. In less than 90 seconds, introduce her to your mother, explain to mom that "Angie" is going to make your lunch then ask you some questions about what it was like growing up in (city). Tell mom you love her and you will be back at 4 pm then grab your purse and leave - quickly and happily! You can leave mommy dearest bewildered or confused, don't leave her mad! (Practice in the mirror the night before if you need to!)
Here is what is going to happen in the next four hours:
1) Your mom will have her lunch.
2) Your mom will have a new best friend.
3) Your mom won't be dead when you get back.
4) Your mom will want to know when Angie is coming back!
Happy Independence Day to you!!!
This works like a charm every time. As long as Angie is a good communicator, lets mom CHOOSE what she wants for lunch and she sits at the table (or near) where mom eats and asks mom simple, non-invasive questions (where did you grow up? What was your career like? How many kids, grandchildren? etc.) Angie will get your mom to open up like a book!
If you are a Caregiver, here are a few things that are really important to know:
1) Loneliness is the most common sickens seniors encounter.
2) They want to preserve their independence more than you do. (A $20 tray that fits on their walker so they can carry a snack or soda will change their life!)
3) They are going to fall down - and 99% of the time they will be fine! Think of it as teaching a child to ride a bike. If they are afraid to fall, they will be afraid to try. If they know falling is "ok" they won't be afraid or embarrassed.
4) Allow them to make as many choices - even small choices like what color Depends to wear today will give them a sense of independence and inclusion. They should ALWAYS have a meal choice - especially for lunch. Ask their advice and opinions, discuss their TV shows and talk to them, not at them!
Let me know how it goes! ~ BRAD
I was an in-home caregiver for almost 25 years and can say from experience you are not realistic about what Angie the Caregiver's first day on the job is going to be like.
Are you one of those people who actually believes in the idyllic picture of a smiling elder doing a puzzle with their caregiver?
It's so NOT like that at all.
Don't encourage the OP to buy into this nonsense fantasy that all she needs to do is plan a calendar and make a "plan", That's bullcrap and you know it.
She's had it for twelve years so she'd know better than you would about what her situation is like. She does not want her mother living with her anymore. When this happens, that is when the elder should be placed in the appropriate care facility.
Angie the caregiver can be hired to go and do an idyllic puzzle with her mother in the AL she puts her in.
You’re going to have to give her a nudge to save you both, burn out is no joke.
Use this experience to set up your own situation so you don’t put your kids in the same predicament.
Things only get worse if we let them continue past what we can manage. You could risk your own health.
You may need to explain that you too are a Senior and as such you no longer have the energy or the stamina you had at 30. That what you do for her is getting too much for you. If you still work, it would be after a 10 hour day, you just can't take care of her needs too. Or, "Sorry Mom, this arrangement is just not working. I can no longer care for you its becoming too much for me. You need to go to an AL where there are more people to help you."
Yes she will be mad. But she will come around because...she needs you more than you need her at this point. You will probably be the only one to visit. The only one that can bring her what she needs.
Decide what you can/ will do, let siblings know & proceed as you need to. <Your life must come first now: that doesn’t mean Mom is left to her own devices; it means you get to have a life & give some help to Mom too - all 3 of you! Assisted Living sounds like one right move: get sibs off their duffs too! Good luck. If they don’t, then start spending some of Mom’s money on care.