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So glad you asked the question. My mom does the same. Last fall she had delirium for 36 hours twice, two weeks apart. Nothing until a few weeks ago then delirium for 24 hours. Other than these three episodes she sleeps 22 to 23 hours per day for the last 18 months. Hospice and palliative care can't explain it. Vitals stay stable. Only nutrition is boost high calorie shakes. Diagnosis is Sarcopenia. Some dementia but when awake lucid and aware of her surroundings except the 3 periods of delirium. Hoping others will post also and maybe have an explanation.
Always ask questions of the doctor when s/he uses terminology you are unfamiliar with. I believe (and I could be wrong) that the doctor is speaking to a Circadian Rhythm cycle, which is disturbed with many dementia/AD patients.
Sleep quality and timing tend to change as individuals age and can be severely disrupted in AD dementia (ADD). The timing of sleep is strongly influenced by the circadian system, which generates 24-hour rhythms in many biological processes, synchronizing these to the external light-dark cycle. People with robust circadian timing enjoy consistent waketimes and bedtimes, active days, and restful nights. Although sleep is separate from the circadian clock, the circadian system prompts sleep at night by timing release of melatonin and direct signaling to sleep nuclei in the brain. Disrupted circadian function can lead to fragmented sleep timing, often manifested as erratic sleep at night and frequent napping during the day. This pattern is often observed in patients with ADD and can range from mild fragmentation of sleep timing to total breakdown of day-night boundaries. 1 Patients with AD have neuronal degeneration in the suprachiasmatic nucleus of the hypothalamus, the master circadian clock of the body, that may underlie this fragmentation. 2 Patients with AD also have changes in sleep itself, including decreases in both rapid eye movement (REM) sleep and slow-wave nonREM sleep. 3 Changes in circadian sleep timing and sleep quality can be a major problem for caregivers and are a leading cause of institutionalization for patients with AD.
I suggest you read this 33 page booklet which has the best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia. The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
The full copy of her book is available here: https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
What was your mom's doctor's recommendations for how to handle this situation with her? This sleep disturbance that goes along with dementia can be very difficult to handle. I guess it's a good thing she goes weeks of sleeping 18 hours a pop, so there is only 4 days of dealing with her being hyper.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Wishing you and your family well.
Some dementia but when awake lucid and aware of her surroundings except the 3 periods of delirium. Hoping others will post also and maybe have an explanation.
Here is an article on that very subject:
https://practicalneurology.com/articles/2018-june/sleep-circadian-rhythms-and-alzheimers-disease
From the article:
Sleep and Circadian Rhythms in AD Dementia
Sleep quality and timing tend to change as individuals age and can be severely disrupted in AD dementia (ADD). The timing of sleep is strongly influenced by the circadian system, which generates 24-hour rhythms in many biological processes, synchronizing these to the external light-dark cycle. People with robust circadian timing enjoy consistent waketimes and bedtimes, active days, and restful nights. Although sleep is separate from the circadian clock, the circadian system prompts sleep at night by timing release of melatonin and direct signaling to sleep nuclei in the brain. Disrupted circadian function can lead to fragmented sleep timing, often manifested as erratic sleep at night and frequent napping during the day. This pattern is often observed in patients with ADD and can range from mild fragmentation of sleep timing to total breakdown of day-night boundaries. 1 Patients with AD have neuronal degeneration in the suprachiasmatic nucleus of the hypothalamus, the master circadian clock of the body, that may underlie this fragmentation. 2 Patients with AD also have changes in sleep itself, including decreases in both rapid eye movement (REM) sleep and slow-wave nonREM sleep. 3 Changes in circadian sleep timing and sleep quality can be a major problem for caregivers and are a leading cause of institutionalization for patients with AD.
I suggest you read this 33 page booklet which has the best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia. The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
What was your mom's doctor's recommendations for how to handle this situation with her? This sleep disturbance that goes along with dementia can be very difficult to handle. I guess it's a good thing she goes weeks of sleeping 18 hours a pop, so there is only 4 days of dealing with her being hyper.
Wishing you the best of luck.