She is fixated on going the bathroom every few minutes 24 hrs a day. We can no longer deal with this and are losing caregivers one by one. She is up all night and never sleeps but a few nod offs in day. It is exhausting, insane and there seems to be no answer!
I assume you've discussed this with her doctor. Would a sedative help her at least sleep for a while each day? Would she benefit from anxiety medication?
Is she eligible for hospice at this time? Their whole focus is on keeping patients comfortable.
Yes, it may feel like a guilt to you, however, dont let it, you LOVE YOUR MOM, WE LOVED OUR MOM, but we had to do what we had to do.. Just suppose the toll would have taken effect on you, then who and what would have happened to mom, if you are not in your place or have died even before her..Please, dont feel guilt, you have to do what you have to do to make sure your parent is comfortable, cared for properly, 24 hours care etc etc..But make sure if you decide to place her in a Nursing Home, go to several and check them out, ask to visit the areas where the senior are, see what they look like, how do they appear to you, are they sad, are they happy, please observe how the staff is treating the seniors...
We search nursing home and some of them, i would not have stayed in, and if i didnt want to stay there, i sure didnt want my mom to stay...However, the Lord bless my mom to be place in a Nursing Home where the Wealthy was, tho she was on Medicare, they had a place there for Medicare Patients.. My mom was treated top of the line, same as the wealth, ate chef cook food, she had a problem with the way one of the nurses treated her and was afraid to tell me but i found out..
When this happens, dont go to the senior nurse, dont go to the social service part of the Nursing Home ask to speak to the DIRECTOR OF THAT NURSING HOME DIRECTLY!!!! which is what I did.. Aint had no more problem...didnt mean to right you a novel, but was tryna to help you out a little bit :) we are their children do get BURNED OUT from caring and taking care of our parents...will be Praying for you that God will lead you and guide you in your decision.. :)
I also suggest that you talk to her doctor about the anti anxiety medications. Like all meds the first one tried may not work and you have to try another, then maybe another to find out what one will work.
She can not be getting good sleep nor are you.
Hospice can still come in if she is in Assisted Living or Memory Care.
Hospice usually will not have someone full time in an inpatient unit. Inpatient units are usually only for symptom management, respite, and if necessary EOL (end of life)..but the goal of Hospice is to have someone comfortable in their own home. So full time would still be in your home or in a facility that can best meet the needs she has. If she is on Hospice and you need a break, and it sounds like you might, you can arrange for the respite, they can get her calmed down and she could return home and things might be better at that point.
If not Hospice can probably arrange a much faster transfer to a facility. Possibly one you may have called already and were told there were no beds. When Hospice calls the facility knows that the duration will be shorter than with a regular resident.