I became my mother's caregiver after my father passed away. I lived with her for about six weeks sleeping on her couch and going to work every day. My husband worked nights so he could stay with her during the day. My daughter slept with me at mom's apartment and my son stayed at home alone. I was not sleeping and couldn't function.
We moved to an accessible house and provided her with a first floor master suite. She was very ill when she moved in and I was caring for her daily needs and working full time in a demanding career. We thought she might live a few months to a year based on her health. My sister (out of state) insisted that my mother find a caregiver. She did although she was unhappy paying out of pocket for this. She had a caregiver 24 hours a day five days a week for about three months.
Fast forward five years and my mother still lives with me. She has broken bones and been in and out of the rehab center but never in an nursing home. She'll say she is very independent but she wins through intimidation. Did I mention my demanding job? If I haven't put a meal on the table by the time she wants it, she comes into the kitchen and says "I guess I should find myself something to eat...My mom indicated that I have a stressful life and I should try to make it better by lessening my stress although she told me she is not part of that stress.
I've gained about fifty pounds, lost interest in my life. I have few interests and my mother wants to follow me around everywhere I go. She has no friends but is happy to say inappropriate things to my friends and then deny them. She does not drive per medical orders but is mad at me about that. She wants me to transport her places but never asks me to take her. She tells me what I will do and when I'll do it. Did I mention that I am an adult?
Sometimes my mother sees herself as a member of the family and sometimes she is a renter (yes she does contribute to our monthly expenses). When I want to take a family vacation she insists on coming because at that time she is family. When she needs something done, I'm her paid servant. I have an entire year of vacation in my bank at work because I go nowhere. When I do take a day off, I act like I'm going to work or she'll hang on me. I go out for breakfast, go to Target, go to a movie and then come home around the normal time. I don't even tell her I have the day off.
I don't want to be with her. I don't want to talk with her. I want some privacy. If I wasn't married to a saint, I couldn't imagine a husband staying. My children do not want to be around her.
I have major guilt about all of this. I have one child in college and one leaving in a few months. She has thrown money at both of them. She'll tell me she is helping them with expenses I think because she feels guilty living with me. I tell her that if she wants to give or lend them money that is between them and i don't want to be a part of it.
i know im on the wrong thread. threads shmeds.
If I had to put up with all that I would take up drinking (possibly in excess).
I'm not suggesting that as a new hobby for you, just saying what I'd do.
God bless you. Thanks for the preview of the "afterlife" too. It's very encouraging to those of us still in the trenches to know that things can return to "normal." Please don't feel guilty. You have done your best. Your dad wouldn't want you to feel bad.
Your post really blessed me today.
You have no reason to feel guilty. I'd suggest that you try to find a way out of this situation. You are fortunate that your husband is a "saint," but your whole family has been affected by this for years. You have a right to some privacy again.
Please look into assisted living or a nursing home for your mother. You'll pay a price going through the process but you'll see light at the end of the tunnel.
It's very true that you will still be a caregiver, even with your mother in senior care. But you will have some opportunity for some life of your own.
Take care of yourself before your own health is shot.
Carol
Love yourself enough to take care of YOU. I wouldn't wish this on anyone!
God Bless all of you!! Feel NO guilt just take care of yourselves and your family, it's not your responsibility to caregive your parents.
I joined this site 8 years ago to learn how to be a good caregiver to someone with dementia and it helped me get through the harest job I ever had in my lifetime. I only hope my post sharing my experiences with my Mother can help any of you who are going through this now.
Love to all of you!
Losing my mind pretty fast.
You will find a lot of people here with major mother problems. May I suggest that you post your own question so that more people will see and respond?
You need to somehow gain some serenity and detachment from your horrible situation. Do you know what kind of reaction your mother wants to provoke? Could you possibly try a little "drama" yourself, and pretend to respond, while keeping your cool on the inside?
If she refuses to help with tuition, or moves away, that would leave you in a very bad position, but sometimes kids need to quit school and work for a while. It's not ideal, and it would truly suck, but life would go on somehow.
You should understand that my mother was pretty great, so most of my knowledge is second-hand. But I know that you need to find some internal peace, or you won't survive. Do you have a religion, or a meditation practice that might help? I am SO VERY SORRY that you have to deal with this.
There is only so much we can take before it starts to affect your health I want my mum in a home soon as I cant look after her alone the only help the state will provide is 3hrs care a wk?? we dont have money for fulltime care but my mum owns her own house and we could use this against payment for a nice home. Really feel for you youve done so much to help her I just cannot imagine how anyone does this and WORKS another job I would just have to sign myself into a home!! CHIN UP!!x
A detached statement might be, "I'm sorry you feel abandoned, but I have made plans to go out, and I know you will be all right until I get back." Or, "Boy, you're really angry, aren't you?" "You think I hate you? Why would you think that?"
Don't panic when the drama starts. Have you ever watched a child have a tantrum? It's upsetting, and you want it to stop now. But if you just let it play out, the tantrum will stop when the child gets tired.
If you can get out to an Al Anon meeting, you can learn a lot there about holding onto your sanity while dealing with a crazy and/or drunk person. A lot of it applies to dealing with dementia. Compassion, acceptance of reality, and recognizing that a lot of things are out of your control, and that's all right.
Best wishes and good luck!