I became my mother's caregiver after my father passed away. I lived with her for about six weeks sleeping on her couch and going to work every day. My husband worked nights so he could stay with her during the day. My daughter slept with me at mom's apartment and my son stayed at home alone. I was not sleeping and couldn't function.
We moved to an accessible house and provided her with a first floor master suite. She was very ill when she moved in and I was caring for her daily needs and working full time in a demanding career. We thought she might live a few months to a year based on her health. My sister (out of state) insisted that my mother find a caregiver. She did although she was unhappy paying out of pocket for this. She had a caregiver 24 hours a day five days a week for about three months.
Fast forward five years and my mother still lives with me. She has broken bones and been in and out of the rehab center but never in an nursing home. She'll say she is very independent but she wins through intimidation. Did I mention my demanding job? If I haven't put a meal on the table by the time she wants it, she comes into the kitchen and says "I guess I should find myself something to eat...My mom indicated that I have a stressful life and I should try to make it better by lessening my stress although she told me she is not part of that stress.
I've gained about fifty pounds, lost interest in my life. I have few interests and my mother wants to follow me around everywhere I go. She has no friends but is happy to say inappropriate things to my friends and then deny them. She does not drive per medical orders but is mad at me about that. She wants me to transport her places but never asks me to take her. She tells me what I will do and when I'll do it. Did I mention that I am an adult?
Sometimes my mother sees herself as a member of the family and sometimes she is a renter (yes she does contribute to our monthly expenses). When I want to take a family vacation she insists on coming because at that time she is family. When she needs something done, I'm her paid servant. I have an entire year of vacation in my bank at work because I go nowhere. When I do take a day off, I act like I'm going to work or she'll hang on me. I go out for breakfast, go to Target, go to a movie and then come home around the normal time. I don't even tell her I have the day off.
I don't want to be with her. I don't want to talk with her. I want some privacy. If I wasn't married to a saint, I couldn't imagine a husband staying. My children do not want to be around her.
I have major guilt about all of this. I have one child in college and one leaving in a few months. She has thrown money at both of them. She'll tell me she is helping them with expenses I think because she feels guilty living with me. I tell her that if she wants to give or lend them money that is between them and i don't want to be a part of it.
A detached statement might be, "I'm sorry you feel abandoned, but I have made plans to go out, and I know you will be all right until I get back." Or, "Boy, you're really angry, aren't you?" "You think I hate you? Why would you think that?"
Don't panic when the drama starts. Have you ever watched a child have a tantrum? It's upsetting, and you want it to stop now. But if you just let it play out, the tantrum will stop when the child gets tired.
If you can get out to an Al Anon meeting, you can learn a lot there about holding onto your sanity while dealing with a crazy and/or drunk person. A lot of it applies to dealing with dementia. Compassion, acceptance of reality, and recognizing that a lot of things are out of your control, and that's all right.
Best wishes and good luck!
There is only so much we can take before it starts to affect your health I want my mum in a home soon as I cant look after her alone the only help the state will provide is 3hrs care a wk?? we dont have money for fulltime care but my mum owns her own house and we could use this against payment for a nice home. Really feel for you youve done so much to help her I just cannot imagine how anyone does this and WORKS another job I would just have to sign myself into a home!! CHIN UP!!x
You will find a lot of people here with major mother problems. May I suggest that you post your own question so that more people will see and respond?
You need to somehow gain some serenity and detachment from your horrible situation. Do you know what kind of reaction your mother wants to provoke? Could you possibly try a little "drama" yourself, and pretend to respond, while keeping your cool on the inside?
If she refuses to help with tuition, or moves away, that would leave you in a very bad position, but sometimes kids need to quit school and work for a while. It's not ideal, and it would truly suck, but life would go on somehow.
You should understand that my mother was pretty great, so most of my knowledge is second-hand. But I know that you need to find some internal peace, or you won't survive. Do you have a religion, or a meditation practice that might help? I am SO VERY SORRY that you have to deal with this.
Losing my mind pretty fast.
Love yourself enough to take care of YOU. I wouldn't wish this on anyone!
God Bless all of you!! Feel NO guilt just take care of yourselves and your family, it's not your responsibility to caregive your parents.
I joined this site 8 years ago to learn how to be a good caregiver to someone with dementia and it helped me get through the harest job I ever had in my lifetime. I only hope my post sharing my experiences with my Mother can help any of you who are going through this now.
Love to all of you!
You have no reason to feel guilty. I'd suggest that you try to find a way out of this situation. You are fortunate that your husband is a "saint," but your whole family has been affected by this for years. You have a right to some privacy again.
Please look into assisted living or a nursing home for your mother. You'll pay a price going through the process but you'll see light at the end of the tunnel.
It's very true that you will still be a caregiver, even with your mother in senior care. But you will have some opportunity for some life of your own.
Take care of yourself before your own health is shot.
Carol
God bless you. Thanks for the preview of the "afterlife" too. It's very encouraging to those of us still in the trenches to know that things can return to "normal." Please don't feel guilty. You have done your best. Your dad wouldn't want you to feel bad.
Your post really blessed me today.
If I had to put up with all that I would take up drinking (possibly in excess).
I'm not suggesting that as a new hobby for you, just saying what I'd do.
i know im on the wrong thread. threads shmeds.
Grace and strength to all!
Then a set of circumstances and health crises landed him in a NH and the social worker approached me about having him stay there and not just for therapy. My family supported that decision so that I could have my life back and my dad begrudgingly agreed. The guilt tore me up. I still wake up in the middle of the night thinking I hear him calling for me. And him not living with me was not the clean break I expected. There was a lot of transition, a lot of upheaval. It was very stressful and where you gained 50 lbs I lost 20 lbs because my stomach twists into knots when I'm stressed. And the caregiving hasn't stopped. My dad wants a lot. He wants more visits. He wants me to quit my job so I can spend everyday with him (he has dementia now). He calls me and tells me that the other residents are being abused (I know they're not). He calls me at 11pm to tell me he saw one of the other residents with an Uzi. He's not afraid. I asked him if he was. He's not, he feels like he has a lot of power because he's aware of all of these shenanigans going on. He hallucinates. I could go on.....
My life definately became better once my dad went into the NH and before my dad began going downhill he was fairly happy and had made friends and participated in activities. I'm not happy that my dad is in a NH but I am grateful that he's being taken care of by professionals now. I wonder if his descent into dementia would have occured had I kept him at home. I can't shake the guilt but I try to rationalize it and I can live with it. I'm productive again. Working in a job I enjoy. I'm proud of the life I've created after caring for my dad. I still have responsibilites to him. He still sees me as his caregiver and is only truly happy when I'm with him. Advocating for him is a lot of work but this I can split with my brother and we both do our share. I didn't automatically become HAPPY once I was on my own again. I had to work for it and that wasn't something I anticipated. I still get sad...depressed....when it comes to my dad and I think about him all day, everyday. He's the first thing I think of when I wake up and the last thing I think of before I go to sleep.
So my life after being a hands-on, everyday caregiver is not always rosy. Being a caregiver had a profound effect on my life that I imagine will stay with me. And while my dad is still with us I still feel that obligation everyday, I still feel responsible for him, and I still feel like a caregiver. Because I am. When I visit my dad I have 100 different little fires to put out while I'm there. My brother is able to talk to my dad about movies and tv shows, pleasant conversations. I get the crying, the depression, the hallucinations and the overall misery that my dad won't discuss with my brother. I talked to the social worker about it one time, about why my brother and I have totally different kinds of visits with our dad and she said it was because I'm the caregiver. I cared for him for 5 years and I'm still caring for him and always will until the day he dies.
We don't like it, but if we can stop wishing it were different, it might get a little easier. For about 30 seconds, anyway.