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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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I did a little bit of web searching and did find mention of dementia associated with MS, as well as MS and other kinds of dementia occurring concurrently. The very rapid pace of her MS seems to be less well documented and even PPMS seems to have a longer timeline than this. If you are concerned about a misdiagnosis you could ask for a second opinion, but otherwise I think your only option is to deal with what is happening now and to take things one day at a time. I'm sorry.
Your profile does not show wife's age. This may have something to do with how fast things are going. Your wife could have had MS for years before it was diagnosed. Its one disease that is hard to diagnose. My cousin was diagnosed at 50 and passed at 70 from respiratory problems. Everyone is different.
How old is your wife? My cousin was diagnosed with ALZ at 68 (which means she had it before her symptoms were obvious). She just turned 70 and is already in hospice, bedbound, not opening her eyes, talking somewhat, barely eating. I've known others with ALZ and comparitavely, am shocked at how fast my cousin's progressed.
I'm so sorry for your wife's condition. I think since she is already in hospice a second opinion to confirm a diagnosis may not provide any benefit. May you both receive peace in your hearts.
It is difficult to tell at this point which is causing what when you have a diagnosis of both MS and dementia. Your wife must have been one of the more rare in which MS was either diagnosed late, or struck her at a more advanced age than normally it does. I am so very sorry. We often see people with mixed diagnosis, and most normally it is Parkinson's and Dementia.
I sure wish you good luck. Even if some of us here have a similar story of diagnosis do know that progression, illness is just so individual for any one person; it is like our own thumbprints. Few people diagnosed with like conditions progress like others do.
Is your wife presently in care? I am so sorry for all you're trying to deal with.
You have my heartfelt sympathy. My husband has Alzheimer's (diagnosed 5 years ago) and I have M.S. (for 35+ years). Both of these diseases are so variable, there is no single timeline to expect. My gut feeling is that somehow they are working synergystically and speeding up the progression of each. You are no doubt in shock and are still trying to catch up to the reality of your dear wife's two diagnoses. Please seek as much support as you can for yourself. Be kind to yourself. Hospice is for family as much as for the patient. Please avail yourself of grief counseling services as you bear witness to her journey. Peace, peace, peace.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I'm so sorry for your wife's condition. I think since she is already in hospice a second opinion to confirm a diagnosis may not provide any benefit. May you both receive peace in your hearts.
I sure wish you good luck. Even if some of us here have a similar story of diagnosis do know that progression, illness is just so individual for any one person; it is like our own thumbprints. Few people diagnosed with like conditions progress like others do.
Is your wife presently in care? I am so sorry for all you're trying to deal with.