My dad has been in a memory care facility for 13 months now. To my knowledge there has been no problem with incontinence. About 2 months ago he started peeing in odd places in his room, like his garbage can, in his closet, and on the side of his recliner. One day I was visiting and I think he was getting ready to pee right on his bed, and I distracted him and then suggested he walk into his bathroom. Is this normal?
Would this likely be an advanced stage? He has been diagnosed with Lewy Body and/or Parkinsons type of dementia. His progression has not been a straight line decline. He still knows us, but it is clearly taking more time for facial recognition to register with his brain when we walk into his room. He is going to be 80 in a few months. He started showing first signs of problems about 4-5 years ago.
For me it is important to remember, accept that the patient isn't aware that he is peeing on odd or unacceptable places, he hasn't given up caring, he isn't purposely or knowingly creating discomfort and extra work for others. Every time I read or hear about places loved ones are choosing to pee it reminds me of an incident during my youth when a friend of mine went into my bedroom closet and peed in a pile of laundry in the middle of the night...there had been some drinking before we fell asleep on the living room couch and she had no recollection of this the next day, I don't really know if she did it in her drunken state or in her sleep state but I consider them both similar to what a dementia patient might be experiencing when they find odd corners to pee in. She was very familiar with my apartment but it wasn't her home and who knows where she was in her drunken and or dream state. A dementia patient may be living in their childhood home one moment and their newlywed apartment the next so the corner they choose to pee in may very well be an old familiar bathroom toilet at that moment.
I know I have mistaken something for a different piece of furniture or fumbled around several feet away from where I think I am in the middle of the night half asleep and in the dark. Many elders are living more in the dark than we realize because their vision is worse than they are able or willing to tell us. There are all kids of logical reasons that from your dads perspective he is peeing in a perfectly appropriate place. Honestly I don't think I would have the heart to let him know differently if I thought he was aware enough any of the time to understand what that meant but then that's me projecting. I don't know this first hand but I think this tends to be phase that they progress out of, one way or another too.
He a was on Donepizil and was also having nightmares. We took him off of that and put him citalopram and memantine.
Nightmares stopped; no more weird peeing.
Good luck. This ride is not for the faint of heart.
This would explain the garbage can and actually, he could do a lot worse. The closet is a no-no. But if you're worried about him urinating in his bed, why isn't he in "protective underwear?!" When my DH reaches that point, he will be in protective underwear. He's 96 and so far not enough accidents to worry about it yet. But he does wake me almost hourly to help him to void. (We both agreed to not resort to Depends unless forced to. They tend to lead to UTI's and Yeast Infections.)
If he's in a Memory Home - you need to ask the nurses and administration about this - it is a health risk to have him doing this around the room. A bucket is acceptable - BTW, a little (as in a few drops) Hibiclens will kill the smell. But the MH needs to be held accountable for not telling you and for not taking steps to help your dad.
Does he also not recognize familiar objects? not pick up a fork in the usual way? It may also be that he can no longer perceive what is, and is not, a toilet.
Dementia often has this effect, somewhere along the way. Sorry.