They want my mom off of Seroquel, her neurologist wants her on it. We are in Michigan. Her days and nights get mixed up. Her neurologist wants her on Seroquel, he says it will help her with that and also help with her high anxiety. The nursing home is taking her off of it, they say the state (Michigan) won't pay for psychotropics. If they are taking her off the meds her doctor puts her on, why bother even taking her to a specialist?
My question is can they do this? Can they do this without telling me (I'm her POA) ? If they CAN do this then who is responsible legally for her care? And finally, can I just pay for the medication myself if that is indeed the reason they want her off of it?
I'm frustrated.
The nursing home is responsible for paying for her meds. As such, the doctor for the nursing home may try to pull crap. As soon as they know you're watching, they change their tune.
It's Medicare who is picking up the tab, correct? If state funds are involved, try contacting the person in Michigan who oversees the nursing homes and get the real story.
Been here : ( Be strong. Be a fearless advocate! You'll be surprised how people back down when they know you're up for a fight ; )
Try to have a talk with the resident doctor and let him or her know why the neurologist prescribed this medication. See if you can get some cooperation between doctors. I know this shouldn't be your problem, but sometimes this happens. Good luck,
Carol
In this case, you are right. It sounds like it is just about the money. Seroquel has not been covered by Medicare unless it is for treatment of a bipolar disorder. It is specifically contraindicated for treatment of insomnia.
Assuming it is within your means, I would write a letter to the facility and the attending physician(s) stating that unless it is an emergency, you do not want any of her medications changed without prior authorization from you. You may wish to state that if the item is not covered by Medicare, you will pay for it as long as you are giving reasonable notice of the situation and the cost.
Pharmacy laws are done by state. Depending on where you live, it might be possible to provide the medication to the ALF for them to dispense. In Maryland, this is not possible as the laws specifically require medication to be dispensed in a blister pack under controlled circumstances.
Some Medicare part D plans have covered Sarah quell. However, there is now a movement from the Obama administration to limit the use of several medications citing improper use and high cost. There was an article in the New York Times on February 21, 2014 about the subject.
The doctors I've worked with have been some of the most ethical people I ever met. And yes, billing issues do play a part in medical decision-making-- maybe not the best thing about American medical care, but it is our current situation.
Assume your MD is doing his or her best. First, ask why a change was made. If you still disagree, respectfully seek another opinion or ask the internist to speak with the specialist.
There's nothing wrong with getting a second opinion. In fact, I periodically encouraged patients to get a second opinion (or sought one myself) on my own decisions. And you know what? It wasn't unusual for the second opinion to disagree with me, the patient would agree, and we would all go in that direction.
My point is, if you disagree with a doctor thats fine, or even great in that it means you care and are diligent. But, when you address the issue, assume that the doctor is sincerely trying to do his or bes.
Your mom is in a NH, correct? If so, a NH is a "skilled nursing facility" and the medical director (an MD) of the NH is considered your mom's attending (or primary physician) and as such makes the determination of what medications, PT, OT and other daily health care needs, activities, dietary, etc. are to be done @ NH.
Now that doesn't mean that an outside MD specialist (like an retina specialist or geriatric psychiatrist) cannot be involved in her care, but it has to be co-ordinated with medical & nursing staff @ the NH & within what the facility can provide. So the first ? is - has the Seroquel prescribing MD spoken with the MD of the NH?
For NH/SNF's state regulations on medications are pretty exacting as to how medications are presented into the system of the NH/SNF. You don't say how your mom is paying for her NH, but if she is on Medicaid, then your state Medicaid program will work within Medicare's prescription list to determine the "formulary" for your mom so that all her medications will be covered 100% between what Medicare pays & what Medicaid pays. Seroquel (like other expensive first generation Rx's which don't have generic equivalents) probably isn't on the formulary. (Is Seroquel in your mom's Medicare Part D plan?) So the NH has other med's that they prescribe & they have to stick to what is on that list to be paid. You mention paying for the Seroquel privately, now this is all nice but I bet the issue with outside med's that is since this is a NH/SNF any & all medications MUST come from a secure source. Med's cannot just be something that family drops off @ the nursing station. The NH simply cannot have family bringing in vitamins, Motrin, Theraflu, herbal remedy to dispense.
Now if you mom is private pay NH, then your options are probably more flexible as the NH can order the Seroquel (assuming NH medical director is OK with this) and bill you for the costs of the med & maybe a smallish administrative fee. You probably will have to do a "escrow" like account for 6 mos of prescription $$.
As an aside, my mom is in a TX NH and her med's are in 90 day blister packs, generic with 1 exemption & med's are kept in a hanging bag on a rolling frame with her name on the bag and a check in list attached. All residents med's are like this and all go into a locked room with a glass door when not on the floor being given. When I moved my mom from her NH #1 to NH #2, they (new NH) really stressed that I HAD TO GET MOM'S MED's as Medicare & Medicaid will only pay for Rx's once so if they had to re-order anything it would have to be private pay by me for the Rx's from the local compounding pharmacy they use. Very $$$.
Please, please try to work with the NH as much as possible. If you push her taking Seroquel or other psycotropics & the MD of the NH feels she doesn't need it, then you may find yourself getting a "although we have enjoyed having Jane Smith as a resident, we cannot provide the level of care and oversight required & this is your notice that she needs to move within 30 days". It will be a beast of a challenge to find a psychiatric geriatric facility too. Good luck.
Dr.'s in nursing home are elusive creatures. You never see them. They don't evaluate the patients in person, you can't catch up to them if you're there while they're there and if you'd like the Dr. in the facility to know someone you have to tell the nurse (not an aide but the nurse) and then follow up to make sure a notation was actually made in the chart. Dr.s in nursing homes are like smoke....or unicorns. No one can ever really get their hands on one.
But I agree, it's the Dr. that you have to talk to. And if the state is discontinuing psychotropics that's going to be one lively facility.
Can they change meds? If you are only a POA, yes they can. If you are a Guardian, no they can't. A Neurologist's order should trump the opinion of the MD at the NH. Make that clear to them any way you can.
Sure, have a nice talk first, but make sure they understand you mean business and you're watching closely.
But please remember this in talking to the doctor. First, he or she might think that the less expensive medication is as good or better than the more expensive one. In this case, he is ethically required to save the money. Or, second, he or she might have been trying to save some work. Stand up for yourself but, at the same time, try to empathize with your doctor. They work mind-bending hours. I know doctors who start and 6 AM and don't get home until after dinner-- 6 days a week. And, on top of that, they're making difficult decisions in exhausting situations all day long. A doctor who sought prior authorization every time it offered a moderate advantage to the patient would burn out. Your gripe is with the insurance company. Stand up for what you or your family member needs. But understand that your doctor is only human.
Thanks for the input!
Carol