The nursing home my mom is in has the LAZIEST accounting dept. They have a policy of doing absolutely SQUAT in helping families through the maze of how one goes about figuring out Medicaid eligibility, etc.
Yeah, I know: my siblings and I should have been prepared for this & done our homework. And that is absolutely correct. We were wrong, and we should have prepared better. Our parents were physically and mentally strong and vital; we felt fortunate and let it go. Then mom broke a hip, had a replacement operation and guess what? She was fitted with a defective replacement that has since been recalled by the manufacturer as over 89% of patients had adverse affects. It changed mom's life: she's wheelchair bound, incontinent and has major memory issues. Many other seniors with this same device have similar problems.
Dad's whole world fell apart when mom deteriorated; my husband, daughter and I moved into dad & mom's house 2 years ago because he couldn't care for himself any longer.
Would I have thought any of this would have ever happened? Of course not.
So the answer is: if you're a child with elderly parents: start looking into extended care now!! If you can convince your parents, try to gently persuade them to put their assets into the names of their children so that nursing homes cannot snatch them away if a medical catastrophe happens. Our parents were strong willed and controlling and rebelled the instant we brought that idea up long before any health issues started, so if that is difficult to broach I get it.
Now my sister and I are embroiled in the midst of a horrible financial mess with the nursing home, Medicaid, state advocate lawyers, personal injury lawyers, etc. The worry is continual. My life is not my own and that's OK; I just want to see the light at the end of the tunnel, but I feel it's going to be a long dark journey.
I feel for every single person experiencing this horrible ride.
At any rate, Dad had been in the acute hospital post his brain surgeries for 6 weeks of therapy - then when the time came, all of a sudden the hospital's Social Services & Pastoral Care were assumptively involved with routing us to a SNF for convalescent care & therapies before he would be recovered enough to come home to VNA homecare therapies. Fortunately we didn't have issue with the SNF the hospital was assuming for us - as it was the best in our community, and one that our church benevolently helps out at. All thru Dad's 6 weeks at acute hospital - and the ensuing 6 weeks at the SNF, I was there to assist b-fast, Mom was there to assist lunch, and we'd both be there to assist dinner - we'd have 90% of the day covered with our being there as care support & advocacy for Dad. All of us - it is a have-to, must, that we have "an advocate" (good friend and/or family) thru our medical care, whatever age. It's a racket! (I'm childless, so Clueless who will be my advocate one day.)
Anyway - I will never forget when the SNF Administrator called me to her office that they needed the monthly fee. Dad had semi-retired from his office, but still worked til 76 when the subdural hematoma happened - and I had thumbed thru the office insurance handbook, and was sure I'd seen a section on SNF insurance. I told the Administrator to submit the Medicare form AND the office insurance secondary insurance form. She was cock-sure no insurance would cover. I said "Send them anyway - the worst that can be said is no." She grudgingly did so. Lo & behold - about 3 weeks later it about killed her to have to phone & say we'd have to stop by her office to co-endorse the insurance check. The office insurance did pay, and continued to for the duration of our 6 weeks. It gave me great joy & pride at the Administrator having to eat her words.
We were VERY fortunate.
For myself & whatever's in MY future, I'm just very grateful to have LTC insurance - for home care, or SNF if that's what it takes.
I have a 68-yr-old cousin & an 82-yr-old retired M.D. friend, whose wives are going thru long-term prolonged end-stage Alz at SNF's right now - and a friend who lucked out when her husband's Alz died of kidney failure after just one month in a SNF... if he hadn't have, they were calculating the prior resident of his room of 6 yrs, was over $1M of SNF care. Oh, the 82-yr-old's wife was just told besides the $10G/mo. SNF care, that she would need to hire independent caregivers in the SNF at $24/hour. My goodness, $10G/month fee care isn't enough? Something's wrong with this picture.
But kthln3, there's your answer - the nursing home won't employ people to help you with this because it's too darned difficult and if they make a mistake it'll come back to bite them. Know any nice friendly accountants?
I agree with you, we should discuss all of this with our parents way before it gets to this point and my dad used to assure me that he had it all taken care of which he did not. But I trusted him and I know he thought he had it all taken care of but all he had was a letter. A LETTER. Explaining that he wanted to donate his damn books to the veterans! That was all the instruction I had. But looking back I should have demanded to see what he had put together but how did I know? Like you, how were you supposed to know what to do? I used to try to talk to my mom about this and she'd refuse to discuss it because it was too unpleasant.
You can be damned sure that I have already begun to discuss this stuff with my 20-year-old daughter. She hates to talk about it too but I remind her of what I went through with my dad. She saw it all, how horrible and confusing and heartbreaking and stressful it all was.
I'm sorry your nursing home isn't more on top of this stuff. But my dad's nursing home was and it was just as stressful. Having my dad in a nursing home was a full-time job for me. Everyday it was something. Every. Single. Day. The accountant would call me or the social worker would call me or the nurse had a question about one of my dad's meds or my dad would call me at midnight to tell me he can't find his pant and then I'd wake up and do it all over the next day. It was pure hell.
But my dad was finally accepted by Medicaid....2 months after he died. Medicaid is retroactive but my brother gets a bill from the nursing home every month for $500. We have no idea what that's for and we don't care as we have no intention of ever paying it.
As you said, it's a horrible ride. A total nightmare.