I have my dad, who is 90, living with me (his daughter) in an in-law suite attached to my kitchen. He has been diagnosed with dementia over 7 years ago and has lived with me all that time. I took care of my mom with other issues for part of the 7 years until she passed on peacefully. My struggle with my dad is he has a strong personality which apparently comes with his narcissistic issues and now with his dementia worsening it is difficult to provide help that he needs. He seems to want help so I humbly offer it and rather than moving on he instead figures out something in my helping him that was wrong and makes sure to point it out to me. Example: He was struggling with balancing his checkbook. I offered to review it and discovered some mistakes which I corrected. I returned everything to him sharing the mistake I found but adding that was an easy thing to miss. (I try to soften these things as he really believes he doesn't make mistakes) He returned to tell me hours later telling me that I made a mistake and pointed out some insignificant thing. It's the narcissism that makes him competitive and needing to come out on top. I try to soften my help and not be in his face which sometimes means I will provide help that he is unaware of. Currently I'm paying all his bills that come through the mail while explaining to him they are automatically being paid through his checking account (I am co-owner of his checking acct). He provides for me all the figures on his day to day spending at the end of each month and I put it in a spread sheet to help him feel "in charge" and also allow me to see what is going on with his spending. I speak with my brother often but he lives in Virginia while I am in Pennsylvania and the daily stuff is mine to deal with. Just wondering if anyone else is struggling with a parent with the two issues of dementia and narcissism and how you are dealing with it?
According to her we steal all the stuff she's miss placed and even when we locate for her she still refusies to apologize for all the hateful accusations. Us 3 siblings is all she has to help her get threw this., And whatever we do it's wrong., we try really hard to not take the horrible things she says to us a face value, but when she's screaming at us in our faces its a true test of our patience..
We know this could be a long road ahead. We can't even explain the madness to the outer family members.. So we carry "mom" on our shoulders everyday.,
My sister takes on the biggest load. She cares for all her Drs. apts and her financial issues. I live 3 hours away and about all I can do is try to keep us 3 kids from loosing it... So reading about this and seeing others going through the same issues is sorta comforting... But yet the unknown ahead is what is scary..
According to her we steal all the stuff she's miss placed and even when we locate for her she still refusies to apologize for all the hateful accusations. Us 3 siblings is all she has to help her get threw this., And whatever we do it's wrong., we try really hard to not take the horrible things she says to us a face value, but when she's screaming at us in our faces its a true test of our patience..
We know this could be a long road ahead. We can't even explain the madness to the outer family members.. So we carry "mom" on our shoulders everyday.,
My sister takes on the biggest load. She cares for all her Drs. apts and her financial issues. I live 3 hours away and about all I can do is try to keep us 3 kids from loosing it... So reading about this and seeing others going through the same issues is sorta comforting... But yet the unknown ahead is what is scary..
5 years down the line and I am still coping - not as well as I once did but hey I am still here and she's still getting brilliant care (according to the specialists) from me. So I take heart in that. Small small wins but they all count.
And YES -- she will spin her stories in whatever way will get her the attention and reaction she's craving. If she can't get admiration (which she really can't anymore), then she'll play the sympathy card.
So for me to try to cut off all/most contact seems the healthiest way for both of us to end this nightmare. I am pretty sure she'll ge another person to feel sorry for her and to take over the role I took for her these last few years. Am I wrong to feel this way. Sunday she called while I was at the pharmacy and said some unkind words about me, he listed and out of respect for the elderly just hung up after she spoke her peace and told me what had happened. I just can feed into her crazy neediness any longer.
Right now Nlady is being really manipulative with me, even before I called her siser because I have begun backing off from being such a free helper to her because of having to address my own physical health issues and spend time with may family and grandsons. Also, Nlady has asked me to buy her things when I am going out of town and then when I present her with receipts, she has said to me that I must be really hard up to ask. Over the last 3 years, she has probably failed to reimburse me for between $4-500 dollars, which is a lot considering I have no income of my own but depend on my husband since my health declined.
She is paranoid that I have been telling people she is "senile" which is simply a word that I would never use and can only guess it's coming from a conversation with her sister.
At any rate, I'm backing off and conveniently not home for her sometimes nasty phone calls, so she wrote me a hard to decipher note. She is 86 and her handwriting is difficult to read but it seems she wants me to believe that she was only testing me when she described her recent driving escapades that landed her in situations requiring towing and supposedly had money stolen out of her car this last time because it was left under the seat instead of her purse and it sat unlocked on an open lot for several days. I have ridden with her once in the last 2 months to see how she drives and I feared for my life. She ran one light and blew through 2 stop signs, always when turning left so me riding shotgun was in a very vulnerable spot. It's like she speeds up before making turns.
I have decided since she's not my relative and I've notified the next of kin about my concerns, to back off from her and not call her or transport her. It will be up to her to find another helper or her next of kin can do so for her.
My 2nd favorite--which didn't start w/the dementia--is her constant questioning about MY conversations with other people: Did they ask about ME???? I don't care WHO it is! It could be someone she totally pissed off last week and she'll ask me anyway. She stated years ago that she's just "not going to DO birthdays anymore" (after my sister died, but I still have other siblings), so she doesn't call ANYONE--not her children, grandchildren--ANYONE! But when NO ONE acknowledges her birthday... OMG, the pity party, the endless pouting. It gets old...I mean REALLY? I know most of it is the disease, but I just don't have the energy to even have a conversation most days. Blessings and hugs to you all!
My mother’s Dementia, narcissist personality and difficult and combative behavior are horrible to take. She is able to cook and bathes herself (not regularly but she does draw her bath when she does). She also does her laundry but not regularly. She is not able to manage her medications or drive.
Her friends no longer call her because they have told me she constantly talks negatively about me and says she doesn’t need help. They’ve tried to tell her she should be blessed to have a son and a daughter that care for her. This falls on deaf ears.
She lies and says things to make herself appear correct in her eyes I imagine. It’s really difficult for me because she constantly lies about me to her sister that also has Dementia. I’ve had to resort to blocking her sister’s number just to have a few days of peace. The both forget so it’s never an issue.
My mother wrote checks to the tune of 7k on a credit card account thinking it was her checking account. This happened before she was diagnosed with Dementia. She was also behind and forgot to pay her other bills on time (including her mortgage).
To this day she denies writing the checks. The credit card company sent copies of the checks etc., and each time this bill comes monthly it’s a huge argument. I had to set up a calendar reminder to pay this bill because when she get’s it she will hide it or make a big noise and accuse me of running up the bill.
I now live with her and am her full-time caregiver along with my brother that has his own apartment.
I have taken over her finances and my brother and I draw the line when it comes to her demanding that she pay her bills and drive.
I am co-owner of her bank account. I too have set up 90% of her accounts online with auto-pay and electronic delivery of the statements. There are a few that we are not able to set up electronically and unfortunately one of these bills is a major trigger.
We do not have POA, and, due to her Dementia and narcissist personality issues, we don’t see this ever happening unless we go to court down the road; or God willing, her personality changes (not likely according to an Altz specialist her primary doctor referred her to. The specialist spoke with my brother and I after a consultation). My mother now refuses to go back to this doctor.
As far as the bills, I am trying to find a way to get the last two credit card bills be delivered electronically. When she get’s the mail and brings a bill to me or says she can now write her bills not that she is better, I just say “all of the bills are being paid electronically” and then I try my best not to say anything else. She has tried to ransack my room looking for bills etc. Last year I invested in locking file cabinets and that solved that problem. Now when she starts looking for things in my room, she won’t find anything because everything is locked.
I constantly get feedback on the need to get POA but I don't think folks understand how difficult this is for a caregiver that is dealing with a parent that has Dementia and a narcissistic personality.
My brother and I both have to do things out of eyesight. We have to put her meds out for the next day while she is sleeping the night before and pray she takes them the next day.
If she does, she does, if she doesn’t we just pray that she will eventually. We know missing her meds will cause her to land in the hospital, my bother and I have already decided that we cannot endure this. We write letters to her doctors to document everything from her calling the police on use about driving to her not taking her meds and flushing them down the toilet.
Detaching and walking away and not reacting help.
Also, knowing that she will forget can be a good thing.
I will be following this thread for advice and tips.
I really try not to complain about my situation since I certainly understand my dad is doing very well for age 90. He knows that too.
What I really had hoped was to connect with others dealing with a similar situation. Someone who is narcissistic their whole life doesn't improve with an issue of dementia. My dad's doctor says narcissism comes out with dementia. So with already being narcissistic as his dementia gets worse all the issues with narcissism are worse; his competitiveness, wanting to be right at all cost, putting everyone down so he is on top, desiring to be gushed over constantly and told how important and special he is all are challenges I have when I help him because they are exhausting and I never seem to get it right or to his satisfaction.
I have POA and again have access to his financial records but the difficulty I have is he makes inappropriate decisions and makes choices that are hurtful to himself although due to his dementia and faulty reasoning he doesn't recognize they are hurtful to him. He needs help but is not always receptive. He is trusting when he shouldn't be. When he moved in with me I was able to move his investments to another investment advisor because the previous one was robbing him blind. To this day he believes that isn't true. We came close to filing charges but he seems to feel his decision was the right one when he chose that crook. (a cold call on the phone).
Certainly I do vent from time to time. But I desire to honor my dad and care for him to the best of my ability. I love him and had a great childhood growing up although I have always been challenged by his lack of empathy to me, another issue with narcissism and it is worse now.
I would love to have a break from him but my brother has some personal issues going on and he is not able to have him for any visits. I do try to find time away to get perspective which is certainly a good thing. Thanks everyone for responding. Hope to hear from some others in this situation.
If I read you right it is your dad who makes the mistakes and you who corrected them. Narcissists do not take well to not being perfect nor being corrected, or even to being offered suggestions. Mother is the same. She lives in another city, by her choice and in an ALF. She will complain about things or ask me for help, and then find fault with anything I do or suggest, and go so far to say i am going being her back and such, which is nonsense. Then she blames me for not helping her, when, in fact, she won't allow me to. The exchange becomes nasty, and very stressful for me. So I have had to back off. There are other people in her city that can help her, and often her complaints are just "bitches" about stuff that is life. She does have a financial advisor who she turns to for financial things who is still in her good books.
Could you keep your own records separately? If everything is done online, it should be, And let him keep his -even if not completely accurate -cheque book balance, If he needs or wants your help with the cheque book, be prepared that he will criticize and fault find, It is part of the narcissism. It is not your fault, and nothing you can do will likely change him. You are doing a wonderful job. I am just wondering if some of this can be avoided by not sharing so much information with him. The other thing I could suggest is if he, for example, asks you for help with his cheque book, tell him in advance that if he wants your help you don't want criticism afterwards, as you are doing the best you can. That is drawing a boundary and they can respond to boundaries, especially if you enforce them.
I am POA for mother, yet she manages her own affairs still, which is great, other than a few times I have needed to become involved and then I didn't get thanks but criticism. This is the pattern of a lifetime. Could your brother take over any of these tasks by computer? He has the advantage of living at a distance.
And speaking about distance - you probably need to detach. Things will not get easier as the dementia progesses. Here are a few hints about detaching -
Accept that they are responsible for their own choices
Anger –deal with it in a healthy way
Blame –don’t blame and don’t accept blame
Consequences – face them and see that others experience them
Decide what you are willing to do and what you are not willing to do
Detachment is not a feeling so much as a choice of behaviours, though the feelings should follow the behaviours. Detachment means you can maintain positive behaviours towards to others –kindness, compassion,
Don’t take on blame, guilt, manipulation, anger - don’t enable
Focus on yourself , Refuse to be manipulated e.g, emotional blackmail
Respond, don’t react
Separate - physically, emotionally, spiritually, mentally, socially from others behaviours/feelings
Set boundaries
Say “No”
Space –create it between you and them
Try not to take the behaviours personally
And my last thought is that it would help you if you could get someone else to give you a break, Another lady on here who is dealing with alz and narcissism cannot help her mum with her accounts, because her mum won't let her, but her mum does accept help from a nice lady from the senior center who has volunteered to help. Sometimes they will accept from others what they won't accept from the closest family.
Good luck and let us know how you are doing. (((((((hugs))))))) Joan
That aside: Your father is 90 and able to largely take care of himself, at least compared to many others you'll find people talking about around here. He has his mind in good enough condition that he can make his way through a checkbook and discover an insignificant error that you made (pretty good for 90 regardless of any diagnosed dementia). You have a big enough place and adequate resources that he can have an attached apartment of some sort. Your biggest complaint is that he points out your mistakes. Your brother is supportive as best as he can be.
I know that every situation has its downsides and nothing can be explained completely in an online post. But by and large, it sounds like you have things relatively good and easy. Nobody's perfect and character flaws do present themselves more acutely as we grow older and our inhibitors diminish.
So while I'm having a rough time seeing that you have much to complain about, I recognize that every situation can become frustrating from time to time. Maybe a bit of time apart would be the time you could re-energize and find a perspective that is based on the fact that you're pretty lucky to have a relatively healthy dad so long into your life. Live well, be happy! Have a good day.