please give me advice i have been taking care of my Mom for seven years due to lung cancer and parkinsons and now she is in late stages of parkinsons and im not a schooling caregiver im just hands on experience and she turns on me so nasty does nothing but reject me and help i want to give her!I feel so alone and i am i have learned alot about people past few years no one wants to help i have no help my father is deceased and my brother is also and thats it in my family.She is saying all kinds of way out there things that is not my mom like thinks going to movies at 2am in morning says i steal from her forgets my husband and i payed her rent omg now saying i hit her this is the mose HORRIBLE DISEASE I HAVE EVER SEEN AND I DO NOT NO HOW TO HANDLE THIS AT ALL AND I AM SO UPSET SICK ANGRY ALONE AND JUST WANT TO RUNAWAY PLEASE SOMEONE TALK TO ME
I understand what you are going through. Parkinson's disease has a nasty acquaintance named LBD (Lewey Body Disease); it is a form of dementia.
Mother may accuse you endlessly of some of the most outrageous things; it isn't her, it's the disease. Yes, it hurts . Talk to her physician about it; my mom used to be like this,. but unless she is under an unusual high amount of stress (usually pain, infection or being in a strange place) she reacts much better these days. Medication, quiet, a repetitive schedule seem to help the most. Even when my mom hallucinates, I usually tell her the visions are not real or either I pretend to stop whatever she thinks is going on. When she is not hallucinating, she admits that most but not all of the accusations she made previously weren't real or to put it in her words, "she wasn;t in her right mind". Hang in there, and keep striving to get the help that you and your mom need. Hope things get better soon.
I sincerely hope you get some relief soon. Do look for and ask for help wherever you can get it. You are as much a victim of the disease as your Mom.
I find that the calmer and more attentive I am with my wife, the better things are. It's the disease talking. I don't get angry because I accept the fact that this is all due to the disease and that keeps me calm as well. Calm, but sad. It truly is an awful disease. Hope this helps you a bit.
-H.
May God help you.
You're flying on a wing and a prayer, and I'm surprised the experts in this forum haven't said a word to you yet.
You can't -- and shouldn't -- be doing all this by yourself; and your Mom needs to be placed. So drop by Social Services as DMV suggested.
My heart goes out to you, but telling you "There, there; give you a pat in the back; and tell you 'I know what you're going through'" would be hypocritical because I have no clue what it feels like being in your shoes. ... No one, however, should have to endure your pain in silence. It's outright inhumane.
So get some help right now my love, and keep us posted.
-- Ed
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