Mom had a severe stroke, rehab a fail, now home to be cared for by dad (He insisted--80yrs, mobility, memory and hearing loss). I'm their only child and have come home with them for now but can't stay for more than two weeks. He won't let me help at all, as if trying to prove that he can do it all himself. She has NO movement or speech and sleeps mostly but when awake seems to be aware. After this I'll be an hour away. One day in, I'm starting to panic. Talk me off my ledge but please don't tell me to get her removed from home.
Well, no doubt your father thinks he can do it all for her. How is he doing? Most of the time, it takes 3 shifts of people to care for a person who is bedridden and needing total care. Can he afford or be willing to have outside help come 24/7? If not, I'd likely consult with an attorney to see what the options are. Your mother is helpless. I'd ensure that she be taken care of and I'd take whatever legal measures I had to to make that happen.
It sounds like your dad isn't thinking clearly. I've known people who are totally bedridden, have magical thinking that they are able to live alone. They have lost all sense of reality and live in a land where things magically happen. Her doctor may be of help as well, if he prescribes additional care. Maybe, they could move somewhere together, so they both can get care. Also, Hospice may be of some help, but, they don't stay in the home around the clock.
BArring that, do they have neighbors who can keep and eye on them for the next couple of weeks and keep you in the loop? Since it's just you, that's a HUGE burden.
Sadly, it's not unlikely that one or both of them will fall, set the house on fire or do something that will attract the authorities. Then you will have more 'help'.
You can't fight a stubborn old man. he has to epically fail before he will accept help.
There isn't really much you can do if your Dad insists in taking care of your Mom. Many of us here on the forums had to wait until there was an emergency before more sane arrangements could be made.
In the mean time, would Dad object to hiring a caregiver to come in once in awhile to help Mom out? Not to help him, because he still feels he can do it all. But to help Mom with "women stuff" which might be a good excuse?
You could have to get brutal with your father, a bit, judiciously. If he wants to fight on for your mother at home until her natural end, he must have adequate support from qualified people. If he continues to reject that, then her needs will necessarily be neglected because they are beyond the scope of one unassisted caregiver - even if that person were not an eighty year old man - your mother will be considered at risk, and APS will take her away AND prosecute him for neglect of a vulnerable elder. He will lose everything that matters to him.
He's trying to prove he can do it all because he is afraid people will take her away if he can't do it all. He needs to understand that NO ONE can "do it all" and that the opposite of what he thinks is true. If he accepts appropriate help, he is far more likely to succeed in keeping her at home.
https://www.livewellmedical.com/patient-lifts/lifts?_vsrefdom=adwords&gclid=CjwKCAjw4NrpBRBsEiwAUcLcDLwK-sOhu9_Ji4WjXVNX44NUQznHUziA8Z7XjJLcp1EyPZ4vMXFFxRoC6HoQAvD_BwE
You really have an unmanageable situation on your hands that can easily end up in disaster, as I'm sure you know. It sometimes takes a disaster, unfortunately, to make a person realize the necessity for Assisted Living.
Best of luck!
Tell him you will be looking for solutions.
Ask him what he wants.
Let him talk this out without giving him advice.
That should be a start?
Do they have any pets?
Most of us are stuck with dads that think we were born to be their personal servants. So hats off to your dad.
Have you talked about palliative care for mom? Maybe having a different set of eyes can help avoid any unnecessary crisis.
Is he amicable to a housekeeper or meals on wheels? Any service that would leave him in complete control with some of the weight removed? We have a service called mobile meals and I wish I qualified for them. It is 2 meals per person 5 days a week and you pay at maximum 40.00 weekly. Sliding scale for those that need it.
Encourage him to accept help, it is early days and he needs to think about what would happen to mom if something happens to him. So he needs to take care of himself to ensure his continued presence for his wife.
Let us know how it works out.
Hugs!
There was a poster here long ago who was able to get her parents to accept help by introducing them as the laundress, the cook, the maid.
Had to break through their 'family only' mindset first though.
In your case when the caregiver arrives, she would introduce herself as your friend from, where ever, and she is there to help YOU with things you need done.
There are many therapeutic white lies that an outside caregiver can use.
I also had the thought about asking the doctor about hospice evaluation. Don't tell dad that is what it is. Hospice would provide additional services to help mom, dad and you.
You are the outsider in the home now - yes, you will always be the child/baby, but your parents have been "on their own" for as long as the nest was empty.
It's not so much trying to prove to you that he is capable, it's most likely more that he has his own routine and way of doing things. This could have been going on for much longer than you are aware of.
I was a 24/7 caregiver for my DH. His children lived several states away and rarely called let alone visit. When one would come to visit for a weekend, it upset our routine. Yes, he was welcome, but it was awkward trying to tend his father and having to work around the son who really couldn't help me. I was often put on the spot trying to figure what to cook because DH & I had settled into what he would eat and I worked around that. I was only 66 when DH passed last year. At 80, your father's routines are seated even more than mine were.
Offer to help, then stand back and let him do what he needs to do. Ask him if he'd like you to fix dinner? Clean the bathroom & kitchen while you're there. Say nothing about anything needing cleaning - that would be offensive and it was done to me - I didn't like it. Just quietly clean the sinks, stove, you get the idea. That would be appreciated - but don't mention that you did it. That would leave your father feeling inadequate or worse. If he notices and thanks you, just be nonchalant about it, and say you are glad you could help.
Especially in your mother's condition, your father needs his routines to get through the days. His is a generation that will not want to ask for help as a rule. I didn't ask for help either. But it would have been lovely if DH's son had offered to mow the lawn for me - just once. Instead he was mostly in the way.
Sad, isn't it : (
Try not to make yourself sick over this or get so anxious you can't see the forest through the trees, hard as it is it's also unavoidable, sometimes it takes them failing and that might even mean a hospital trip, to get the changes you already know should be made. If you think about it you can get it from his perspective too, doesn't mean he's right or realistic but I get it. But gentle persuasion and letting him fail may be the way to go at this moment. At least based on my experiences with Mom. Hang in there!
My Dad (younger, good health) scooped up my Mum after her stroke (hemiplegic) to bring home - against all medical advice. I too had some time off work but not much & then had to stand back & wait. He had to spend 24hrs caring for her in rehab before discharge as a 'trial of care' first. He had passed. So many don't but then when NH transfer is made, they know, tears everywhere in defeat, but they know it just wasn't possible to go home.
This is your Dad's trial of care now.
Either he will cope & have to get paid aides, cleaner, meals delivered etc or he won't cope & you'll get the teary confession phonecall. So be ready with love & hugs for Dad & an emergency respite option for Mum until the next plans can be made.
I truly wish you the best. (((Hugs)))
I say WELL DONE! You are very balanced to know that enough is enough and this is the step to safety for them.
Hugs!
Just one thing - I wouldn't come to any conclusions about your father's having dementia right now. Stress, fear and wishful thinking alone would explain his attitude. God willing, once there's more certainty and security around mother's care, he'll adjust and become more like himself again.