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My dad is 95 with advanced Alzheimer’s. Although he tries, he is no longer verbal and sleeps most of the time. Some days he’s very alert and interacts with smiles, laughs and seems to really be understanding the conversations around him. We He’s been in an assisted-living facility for two years that also allows some memory care mingled in with the other residents. Dad’s Alzheimer’s has gotten worse and he’s not much help anymore. Trying to transfer him from wheelchair to recliner and other positions. He is too heavy at 180 pounds because he’s deadweight. Once they do get him out of the recliner he can use his wheelchair, with their guidance, to go into the bathroom and walk back to his recliner. But it’s getting into the chairs and scooting him around, especially has gotten too much for them. So the ALF has given us two options. One is to have hospice come in and take over from the medical care and the other is to move him to a nursing facility that is more equipped with lifts and everything. I don’t understand how having hospice come in would help with any transferring because as I understand it, they’re not there all day and we do like him five times and 24 hours, breakfast, lunch, dinner and midnight, to prevent bed. Anyone have any experience with hospice at this level of care? It sounds like this decision is being made primarily for the transfer reasons. He does need help eating, but they do that with many of the patients and we are there for at least one meal every day. He has a friend there to help him eat at times.

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Your right, hospice will be absolutely NOT help to you with any transferring and the like, as they are not allowed to pick up any of their patients. So the best bet would to now have your dad moved into skilled nursing where they can use a Hoyer lift if needed and be able to assist your dad better.
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Reply to funkygrandma59
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No.......the AL agrees to keep dad until death IF he's on hospice. Only bc hospice provides an extra layer of care and supplies to make their job a bit easier. As soon as my father became a 2 person assist, he too was asked to leave his AL and go into Skilled Nursing which I did not want. My mother lived with him in AL, so he'd have to go to the SNF alone! So, what the AL is saying is, they're willing to do 2 person assists with dad for as long as he remains on hospice, like they did with my dad. Hospice brought in NO Hoyer lift, either as the AL did not allow them. The AL staff just did whatever they needed to do to help dad transfer from wheelchair to bed/toilet/chair etc. It's the way it works in most ALs, for some reason.

Hospice nurses and CNAs will come in max 3 days a week for an hour each time. But the CNA will bathe him, so that's another task the AL doesn't have to manage. The hospital bed is also a blessing, and makes tending to dad easier for staff. MUCH easier to transfer him bc the bed raises and lowers, unlike a regular bed.

If I were you, I'd get the hospice evaluation for dad and keep him right where he is. AL in a private room is better, imo, than a SNF on Medicaid with a roommate especially at end of life when comfort is paramount. Now, if you're self paying and dad can get into a great SNF with a private room, and you don't think he'll further decline due to the move, then consider it.

Best of luck.
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BurntCaregiver Aug 31, 2024
@lealonnie

Hospice will provide them nothing unless he goes to a hospice facility. Traveling hospice or hospice 'at-home' is a joke. This part of the racket. The guy will be drugged up and in bed. That's what they will do.

Hospice is not going to send two CNA's (this is the protocol for proper and safe use of a Hoyer lift) to get him out of bed and into wheelchair twice a day.

If the father is at the end of his life, actively dying, and needs serious medications to manage pain and other conditions like anxiety and agitation, then hospice is the people to deal with. At least he will as you said be able to remain where he is in a private room.
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Hospice will not be there enough to care for Dad. I don't know why it was even suggested. May get an aide but they are just for bathing. Most ALs and MCs will not do a a two person assist. Als and MCs are not skilled Nursing. Your Dad is beyond their ability to care for him. Time for Long-term care.
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Reply to JoAnn29
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I think it is time for him to be in a SNF. He will get the care he needs by staff who know how to do these transfers.

My father's situation is similar to how you describe yours with the weight and cognitive issues. My dad will be 96 in October. He has adjusted to life in the facility, he has been there since January 2023. His transfers which I think are twice a day take two people and a lift, he is about 200 pounds.

The important thing is your father receives the care he needs now that his needs have increased.
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Reply to Hothouseflower
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Hospice is just like any other service provider. There are good ones (my experience) and the ones that apparently made contact with some of our other posters. IMO they are a great help. I say that as a long time caregiver of someone I love very much who has been on and off hospice for years.

I feel the same way about ALFs, SNFs, etc. Some are more helpful, better ran than others.

Why not try the hospice suggestion first and if that proves not to be successful, you can move to a SNF. I would get a hospice that would go with your dad to SNF for continuity of care should you later decide to move him.
You don’t have to use the hospice the ALF recommends although that one might be fine. Drill down with your questions so you aren’t assuming something will happen because someone else said it happened to them. you can change or cancel hospice at anytime. It’s on the contract. It’s not like paying a community fee at an ALF. Medicare pays for it.

You don’t have to remove dad from any meds. Hospice will provide the meds he needs to keep him comfortable if he needs those and for any meds needed to treat the condition for which he is on hospice. For instance, my DH aunt gets her Rx skin care and her antidepressants from hospice. She is on hospice for dementia . Her health insurance part d pays for her thyroid and her three BP meds. It’s your choice about the meds. Not the hospice company. I decided to take aunt off of the “memory” meds. She seemed more herself afterwards. Hospice had been and would have continued to pay for those. The hospice may recommend him stopping the meds. Mine never has but I know some do. Do it when you are comfortable with the decision. I liked that little insurance that aunt might not wind up with a stroke and dementia or all the issues an untreated thyroid can cause. Unless it’s life support they don’t just drop dead when the meds are removed. It’s not keeping them alive. Rather keeping them status quo.
Keep his regular insurance just in case he needs something you want him to have. I don’t use it often for aunt but it has been helpful.
My aunts hospice CNA gets her out of bed three times a week to shower. She is bed bound. She is not 180 lbs I hurry to add but the hospice cna is the only one who gets her up for a shower. She gives her a complete bed bath all other days.
My hospice CNA is there 5 days a week, sometimes feeds her breakfast and lets me know what’s going on. She has hospice CNAs on the weekend also. They aren’t as helpful as the weekday CNA but aunt has them. Not many have this service so don’t discount your company if they don’t offer that. Ask for what you need. Let them tell you what they can do or not. I do know many of the staff at the hospice and if I need something, I just call them. I like having the hospice be primary on the care because they are more familiar as we had their home health group for years before hospice.
She also has a longtime geriatrician that we do Telemed appointments with on occasion. You don’t have to subtract care. You are adding care.

Talk to the ALF about how they manage falls without hospice. You may already know that after two years.
With hospice, they can call the hospice nurse who will come check on dad and order an X-ray if needed to be done at the ALF.
When it’s just the ALF they usually have to send him off to the hospital.
Ditto with SNF w/o hospice and some of the SNFs will send them a long distance due to contracts.
When your dad passes while on hospice the hospice nurse will come.
Without hospice the procedure is different. Ask your ALF about this.
It can be daunting to sign the paperwork for hospice due to the awareness that life is growing short. But hospice is a service, not a sentence.
Oh and the only sitters you will get, regardless of where he lives, will be those you pay for.
Your dad sounds like a sweet and well loved man. Let us know how things go.
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Skelly1230 Sep 15, 2024
Thank you so much for your detailed and helpful response! We are now learning that we could have had options in choosing different hospice companies. We did not know at the time which questions to ask. we will try this one and see how it works. They have aids that come two times a week to bathe him and do personal care, but they don’t do any medical care, not even a Band-Aid. The nurse would come at least once a week. More often if needed. Our greatest concern is if dad has any skin tears, who will be treating those. Since one of us visits every day, we will be able to catch any situations where he is not being treated.
It sounds like you have a wonderful hospice provider.
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I thought you were going to say he was 300 or 400 lbs, which is an increasing reality in a lot of care homes. At 180 he should be able to use an alternating pressure mattress or mattress pad which can cut down on the number of times he needs repositioning, and I imagine the AL plans to leave his personal care needs to the hospice staff, who can provide a portable lift. But instead of guessing you really need to talk with his director of care to see what they have in mind.
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Reply to cwillie
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Skelly1230 Aug 31, 2024
the Doctor of care is the one who called me and went over this. The ALF is not licensed to have lifts. I guess we will be looking at skilled nursing locations.
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A facility like Assisted Living, Independent Living and even Memory Care in most States can not use equipment to transfer a resident. (Rehab and Skilled Nursing can use equipment) This is for the safety of both staff and resident.
It is possible that they can use equipment IF the resident is on Hospice that might be what they want to do for your dad.

If Hospice comes in the facility will keep your dad until End of Life.
The staff will still have the same problems transferring him that they do now. but because he is on Hospice they will allow him to remain.
He will probably be better remaining with the staff he has now and a familiar room, dining room and other locations he has now.
There is a GOOD possibility that he will not be getting out of his room as much if the staff can not safely transfer him.
Hospice will take over some of the things that the facility now does.
The CNA from Hospice will now be giving your dad a bath or shower the facility staff will not do that.
The Hospice doctor will order medications not the facility doctor.
If there is a medical problem or question the facility staff will contact Hospice not the facility doctor.
If there is an emergency Hospice will be contacted, no transport to the ER.
You will be asked to sign a POLST. It is NOT a requirement though to get Hospice service. (good idea though as IV's, Tube feedings and CPR are not well tolerated at end of life and can cause problems rather than help)
Hospice will provide all the supplies that he needs briefs, wipes, gloves, creams, ointments, under pads.
So as difficult as the decision is I would opt for Hospice rather than transfer dad to a Skilled Nursing facility
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swmckeown76 Sep 7, 2024
Not always true if your loved one desires to go to the ER or a medical appointment. My late husband’s hospice chaplain told me this. It's possible to take someone off hospice for a trip to the ER or a medical appointment, then add them again after that. Hospices usually don't allow this more than once or twice, though.
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Hospice won't do anything. The nursing home will have Hoyer lifts.
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Reply to brandee
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Whatever you do, don't involve hospice. Believe me, they will be USELESS. They will run up a high bill for Medicare though. Your father is old and needs others to get him from his bed to a chair and to help him eat. Hospice doesn't provide this. They don't provide elder-sitters who will stay with him either. What they will provide is enough narcotics and other controlled substances to treat an army when your father probably doesn't need any of them. They also like to to take an old person off their regular meds for conditions like diabetes or high blood pressure. Please don't involve them unless your father is actually actively dying. Really all they're good for is serious narcotics if you need them. I say this because I worked as a CNA for many in-home hospice cases.

He needs to be in a facility with a competent CNA staff who knows how to properly and safely use a Hoyer to get him from bed to chair. A nursing home would be the place for him now. That is where you will find Hoyer lifts and CNA staff.
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swmckeown76 Sep 7, 2024
Some won't take people of their medicines if the patient (or her/his POA insist). I insisted on finding one that would keep people on their medications. My late husband (w/frontotemporal degeneration) was taking valsartin, generic Depakote, and Eliquis. He remained on them until he could no longer swallow them when crushed and mixed with pudding. That was about 2 weeks before he died. I knew one of the chaplains at this hospice. He is a non-stipendiary part-time (unpaid) priest at our church. If this is important to you and or your loved one are a member(s) of a church, synagogue, mosque, or temple, ask one of the clergy there for recommendations about a hospice that aligns with your moral, ethical, and/or religious values.
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"Once they do get him out of the recliner he can use his wheelchair, with their guidance, to go into the bathroom and walk back to his recliner".

He can walk a distance but can't get himself out of bed? Or *won't* due to his dementia?

So he still has some mobility? I can see why the facility isn't sure what to do with him... I agree that SNF may be the most appropriate place for him, for now.
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