My 92 year old mother is in memory care in a very nice facility. My father passed away last June. The center is now opening up for once a week one-on-one visits that we schedule ahead of time. I made my first visit yesterday. The center has been sending me videos of her activities and updates regularly and I was happy to see how good she looked. Her hair was done, her nails were painted, and she looked well. I was thrilled that she recognized me as at our last "porch" visit where I sat outside on her birthday she didn't know who I was and got up and left. This time I was at a loss for conversation and how to redirect her repetitive questions. Her main question asked every couple of minutes are "where are my mom and dad?" Of course, they passed away over 35 years ago. When I gently reminded her of that she says "nobody told me, I didn't get to go to the funeral." Of course, she just doesn't remember, she was the one who made all the arrangements back in the day. I've been able to sidestep the question about where my father is, my stock answer is "he's on the golf course." My mother's physicians told me that it would be too upsetting and physically hard on her to constantly remind her he had passed. I would like some suggestions for my hour long visit, conversation topics, should I take a book for us to read together, cards, puzzles? Should I take some snacks? I get an hour with her a week now and I want to make it as enjoyable and relaxing for her as possible.
I can't bear to be inside her apartment and my inner-cleaning lady wants to just do a few things to clean and that causes her tremendous anxiety. You'd think a clean home would be relaxing, but it's not, to her.
We visit in the 'common' living room of YB's home, where she lives. I haven't been in her private space for a year. Things are much better.
She can't stay on one topic. so I just follow her lead. She mostly just wants to talk about her one living friend who is still alive by sheer willpower. I do not know this woman, but I sure know a lot ABOUT her.
Mom doesn't ask about me, my kids, my grands, just her friend. I've stopped letting that bother me.
Patience is the only answer here and I know it's been a real learning curve for me.
What I do is gently hold her face or hands because I find that when you touch them, they listen and look in your eyes.
I again gently tell her that her parents passed away and that she buried them. When she says why didn't anyone tell me. I say; you were there and that she arranged such a beautiful gathering and purchased beautiful flowers that everyone was talking about. The only reason you don't remember is because you fell down and hit your head. The doctor says your memory will come back in time and she accepts that.
It's on repeat like a recorder lol ….
We have done the same with father (work, fishing etc...) but now I decided that death is a better answer or she has too much anxiety why my dad is not coming home. I tell her we will go to the cemetery when the weather is nice. I sometimes show her a picture of her standing at the cemetery.
Death makes them calm because it closes the window for a minute.
But fishing means he's coming home.. I focus on the death but in a positive way. Beautiful party beautiful tombstone - we will go and clean up plot together. People said you were such a good daughter because you bought such beautiful flowers... Daddy loved you so much ... and remember how much fun you had together .... story time... make up anything....
But always what works best for you. WE are all in different places.
My favorite thing to do with mom and it will be great for you too - bring an ipad.
watch her favorite shows - especially from the past. We watch princess diana's whole wedding.. I tell her look mom - diana is getting married today and we sit and talk and are amused. We enjoy everything on YOUTUBE from Andre Riu concerts to Tom Jones, Elvis Presley all of her favorite things.. We sing together out loud and that is our favorite thing hands down... IPAD buy the biggest one 12.9 inches - best investment you will ever make. All our PSW's use it too and are amazed how happy she gets... because you can talk about crowds of people , the beautiful clothes etc. Its positive thoughts that take her away from where is mom? and sitting in a fishbowl.
Good luck and God Bless... We are in a really difficult time in our lives. Dementia is the worst...virtual hugs.
We have to be unbelievably patient.. it is the worst this dementia - the absolute worst thing...
I've heard the staff where mom was often coach visitors to "be in the moment", which is to try to be in their reality. Tough subjects are those who have passed. As others noted, it's best to try to pass it off lightly and change the subject. They're off having a good time. They must be out shopping. Whatever your grandparents were wont to do, go with that - she'll likely remember, since she's living in the past. Nine months after moving in, she threw me with "Can you drop me off at Nana's on your way home?" I had to think quick, glanced at my watch, said it's a little late in the day, not really on my way, so maybe tomorrow? She was okay with that. Much later, prior to thanksgiving, she wondered aloud what her mother might be doing to prepare for the holiday. When she asked if I'd seen or heard from them, I took a chance and said they've gone to FL. I was afraid she'd be angry they didn't ask her to go. She pondered it for a bit, then said something about how they used to do that. Best to change the subject then, if you "passed muster."
As for activity or what to do during the visit, depends on what your mother might like to do - snacks or a cup of tea/coffee can use up some time but allow some discussion. Ask about those "good old days", what she used to do for fun, vacations, who were her friends, etc. I love jigsaw puzzles myself and enjoyed working them with several other residents. I would bring mom over to be with us, and surprisingly she would start pushing pieces around, even got some together or would find one we were looking for! This is NOT something my mother ever would have done.
Always try to "go with the flow", even if she repeats herself or goes off on tangents. Avoid sad topics (deaths, etc.) IF she makes off the wall or wrong statements, don't try to correct her, just go with it and move the discussion along to something else, if you can. It's hard, but taking it one step at a time, finding things that perhaps bring her joy, stick with those. Try other topics or little gifts (nice bunch of flowers, to brighten her day?) Old movies or TV shows she enjoyed, you can watch together.
I only wish we could have had some real one on one visits. Up until about 2-3 months ago, they kept the virus out. At that time, only one staff member tested positive and it never went any further. Unfortunately any visits prearranged had to be with masks and 6' apart. Between dementia, bad hearing and possibly bad vision, it isn't even clear my mother knew who we were. I went in Aug for her birthday. The only thing she really got excited about was the cupcakes and ice cream I brought, but we couldn't share. When I arrived, they took those in to the freezer, for her for later. In Sept the visits were indoor, in a cafe, not the MC, and it was post stroke. I really kick myself now that I didn't break the rules, take the mask off and get up close to her. The next "visit" was Dec, after another stroke and she was beyond capability to communicate.
I am convinced that had she been able to see me without the mask, she'd know me. Staff member told me during chats when my name came up, she'd say "Oh, her and those CATS!"
So, explore and try different gifts and activities while you can. Stick with those that seem to bring her joy or interest. May you have many positive visits going forward! Even just hold her hand and watch the sun set, or whatever is going on around you. Silence can be golden, if done right.
Always best to pass off those who are gone as being busy with whatever they used to be doing. Mom was the last of that generation on both sides, so anytime she brought them up, I'd have to think quick!
Redirecting by asking about those "old" times are often a good way to keep them "thinking" and as a bonus you might learn something you didn't know!
Bring her favorite snacks (check first with facility if OK) and/or beverages. Bring magazines and books with pictures to read together. Bring music that she enjoys and feel free to do a sing along. Simple puzzle or crafts might work if she doesn't have problems with her hands (arthritis).
I totally TOTALLY disagree with your last statement. We don't go visit to make ourselves feel better, we go because WE CARE. WE can still work on making the visit more enjoyable, no matter how far down the dementia path they've gone. My OB refused to go back because he "didn't know what to do with her." Just BE there for the person. If you could have seen her reaction the first time we went when he was here it said it all. She was OVERJOYED to see him (he didn't live locally, so visits were not common.) ALL he had to do was be there. If he cared and used a few brain cells, he would be able to BE there for her. She's in MC, it's not like you have to DO anything, just BE there!!! Just to show up and have her SO happy should have been enough. So she repeats herself. So she can't really carry on a conversation, just f'n sit there!!!
She used to ask about both brothers, have I seen them, or heard from them. I could only say not recently. She eventually stopped asking. Why? Probably forgot them, since she wasn't seeing them. SAD SAD SAD, and I hope that haunts the two of them.
Go on line and find old newspapers from when she was young ( particularly from her home town ). Download articles onto a laptop and take them in and talk about them. Ask questions like who was this, where was this, what was happening during them photo,.
Remember with memory loss: first in, last out. That means they will remember things of their youth while forgetting recent events.
I know it is difficult because I visited a family friend who kept on retelling the same stories no matter how hard I would try to redirect the conversations.
Just make up some kind of white lie. Like her husband is at work. Or her parents are at their house.
If you're there for one hour, maybe you could have lunch together. Or do some crafts together. Don't tell her the truth about her loved ones being gone though.
when my motherinlaw was in memory care we’d walk the halls of the area. One complete walk ... actually a stroll ... took about 20 minutes she’d begin to get a little vague.
it seemed that when we’d sit i couldnt think of anything to talk about but walking we’d talk about ???
maybe you could have a cup of coffee or tea then when done walk for a short time and chat.
and by the way ... people she wants to know about dont die ... theyve gone to the grocery or bathroom or wherever.
Keep in mine how youd feel if everytime you asked about someone you were told that theyd die. Even if she actually doesnt physically remember what you said i really think it hurts her cells. Yes ... i know that sounds crazy but think of your own physical reaction.
"(and as my mother used to joke, she was actually telling the truth!)."
Very clever - lol!
It is very hard to hold a conversation. She says she doesn't have anything to say. She can't remember from 5 seconds to the next. So I do all the talking.
I am glad you asked your question. I can't wait till I am able to go in to see her. The answers were a big help to me.
Snacks, especially homemade, like cookies or muffins may be a treat.
Does Mom watch tv? My Mom (whom doesn't have dementia) loves the game shows. We'll watch and try to guess the answers together.
As others have suggested, when Mom asks about husband parents, etc. respond with a plausible answer and move on.
You may ask a staff member that you like, for suggestions.
Glad that you can see Mom on a weekly basis .
Juse say they are somewhere.
Musing is soothing. Play music that she use to like as a back ground as you talk and do an activity.
Bring a book to read, Games to play like cards, bingo, domino's or whatever she use to like.
She might like to try a paint by number picture.
Did she ever knit?
Bring pictures to look at.
Ask her to tell you a story about something in her life like how she met her husband, what she liked best in school, what she likes to eat, ect...make a big list of questions and things to talk about.
See if ya'll are allowed to go outside for a puc nic.
My 96 yr old Dad always enjoys a foot massage from me.
My Dad also enjoys me bringing him a treat like a shake or a doughnut.
I personally had a hard time talking to my Mom. I was more comfortable talking to the other residents with Mom next to me. She seemed interested in what was being said but not talkative. If she did talk, and I answered she would give me a "what!" look. Why, because her brain had gone on to something else. My daughter though would just let her go and say "nice Mom Mom, oh yeah" She may tell her how her day was going just random things. When M came into the room Moms eyes would light up. When my daughter left, she would tell Mom she was going to work. She seemed to be OK with that. We never said we r going going home.
And your suggestions for your hour long visits are right on the mark. Bring some picture books to page thru like one of flowers or babies or dogs. Snacks you can share are also good and how about family albums to do some reminiscing? Cards, unless they're picture cards, and puzzles might be too much but you can try. If you can load some songs of her generation on your phone, she might enjoy listening to them.
Don't tell your mother that her parents have died. She'll just get to relive that trauma each time she 'remembers' it. Tell her they're 'on the farm' or 'at the house' or whatever, it doesn't matter. Same thing like you're telling her about your dad. Keep the news light & fluffy and keep her happy and not agitated, that is the goal. If/when things get heated, leave. Let her know you love her and you'll talk to her 'later'. Even when I speak to my mother on the phone and she gets upset, I let her know that I'll be hanging up and I'll speak to her at another time. Last night, for instance, she was agitated and telling me how she wanted to throw herself out of her wheelchair & 'break both of her legs' so I felt it would be useless to continue that line of talk, for obvious reasons. When she gets like that, I'm not entertaining the behavior.
It really is a mess, ALL of this dementia. For them AND for us. Nobody wins and we ALL suffer. Try to minimize YOUR discomfort as well as hers. Keep the visits brief and as cheerful as possible. Try bringing some snacks, like you said.......food is the one thing my mother loves. Most times. Unless I bring her hot food which the 'stupid caregivers can never heat up properly and then I have to sit there like a boob while everyone else is eating, waiting for MY food.' So the hot food meals I've stopped bringing. Wing it. If it doesn't work, ditch it.
Good luck. It's not easy, that's for sure
It took me a while to realize that since the Invisible Husband was in reality her first high school boyfriend, my mother thinks she's about 16 years old now. She doesn't think that consistently, as she also knows I'm her daughter, but talking about her parents as though they're dead would be devastating to a 16-year-old girl, so of course I would never tell her they've been gone for fifty years.
I wouldn't try too hard to have planned activities and conversations with your mom. It takes some practice, but just let her reality lead the way and you can have satisfying visits. Just don't talk about anyone as being dead. My mother has lost multiple relatives since her dementia began, and there's absolutely no good purpose in telling her about them. (In fact, I kind of like the idea that they're still with us.)