I am getting so much better at tolerance but just wish she were positive. She has the best of everything care wise. I just feel as if I am considered abusive when I lose it. She always denies this behavior but my in house assistants always have to deal with it too.
I try to go easy on myself. I put up with a lot and I'm not perfect. Really, I'm amazed that I am not mean more often. I think we have to try to not be harsh, but learn to forgive ourselves for the times we slip. We're only human.
Welcome to the Caregiver's Grumpy Gang :D! All kidding aside, I feel your frustration and do empathize. I'm consumed with guilt after I've raised my voice and yelled or scolded my 89 year old mother for doing exactly what you mentioned. Just a quick suggestion for the Heat/AC situation: my mom has some dementia and wet macular degeneration in both eyes, so she's legally blind. But she can see huge print. So I made an 8 1/2" x 11" sign, typing in huge arial font: (color-coded: red for "Heat" and blue for "Cool")
"Push Left HEAT"
"Push Right COOL"
I laminated the sign and used double sticky tape to adhere it to the wall right above the thermostat. She no longer makes that mistake! Yaaaay.
As far as me losing my temper...that's something I have to work on. It's really hard to accept that she's the child now and I'm her "mom". You're absolutely right Jessie - we have to forgive ourselves. We're doing the best (hopefully) we can under extremely stressful conditions. Loving, but difficult.
I have found for me if I use the matron voice then he does what I ask him, but otherwise he just ignores me or openly does the exact opposite of what I have just asked and like the naughty little boy waits to see what I am going to do about it. These days I tend to just ignore it straight back, which is also not a good response. I wish I could be really pollyanna like with him, but this caregiving gig seems to have robbed me of all compassion, and now, like many other people on this site, I have reached that point of just going through the motions because somebody has to.
I do it, too. I am always deeply ashamed and SWEAR to myself I WILL NEVER do it again...but my string gets too tight and *shrieking witch* pops into the scene. I would hate her but she is me and I must learn to love all parts of me.
And forgive myself for being human.
And keep on trying to make that vow I try to make a legitimate one...by one day never having to say it again.
I'm not there yet, I don't think...so far I am..but only until the Witch returns.
Keep your fingers crossed she forgot about me.
I know it is hard for all of us "Care Givers" to figure all of this out. What we need to try to remember is that our parents are going through the last of their years and they are a "child". What we also need to try to do is remember that one day we "Care Givers" will be in their shoes. Hopefully when we come to this point in our lives, we hope and pray that we will have a loving, kind, and understanding person to help us through the last of our years. Please note that I am not coming down on any "Care Giver" who is going through this time in their life. I am just trying to help and share what I have learned from Aging Care. If you will go to God and ask Him to help you, He might not be available to help you right at that moment but He will help you. My prayers and thoughts are with each of you.
Yes, raising your voice comes from fustration, anxiety, being overwhelmed. My Mother also had macular degeneration in the last many years..and so...I had to remind myself that her confusion was exasberated by the fact she couldn't see. And, her hearing was deterioting, another problem that added to her confusion. I as well had to write things in "LARGE" print, and used other magnifying products. However, when you are in the thick of the storm, it is difficult to gather within your mind all of what may be going on. If it's not one issue, its another that crops up...and you are constantly on the defensive to make things just "ok"..and to get some peace. Sometimes, peace is achieved by our human reaction to simple saying "please stop" and your voice may be elavated for this request.
I ofter found that my changing the subject matter, taking a few minutes to sit down and listen, talk, etc. worked. I ofter simply took my Mother for a ride in the car, and/or in the summer, a wheelchair ride. It was good for her, and for me..just to get some exercise and a change of venue.
Don't get down on yourself. Also, if afordable, try to get other good caregivers to spend time with your Mother, a good story teller type person. Allow someone else to entertain, even if its for only short periods of time. If the connection is a good one, your Mother will look forward to these visits. I found that most good caregivers will come from your personal contacts, via friends, neighbors, church..just keep reaching out. I had little to no success with my only brother and his wife, in my outreach for their help. They had their lives, (as they professed) and it was even hard to get them to call on a consistent basis.
Once again, don't beat yourself up for what you preceive to be mistakes. Not knowing anything more, the stress is "real", and there are few people that can withstand on a continual basis, a high level of stress without reaction. Keep things in check as best you can..and start to reach out for more help. You have to...cause it will only get more troublesome. It's not going away.
Good luck. Marco40
When you go back to caregiving, remember that you mom's negative attitude needs to be checked. She might not know that she is behaving this way so like we had to do with our children re-direct the behavior. One of the best ways to beat this kind of attitude is to get her ivolved in any kinds of activities throughout the day. Have you ever thought of day care where there is lots of things to do and others to be with throughout the day??? Most caregivers say that their loved one wouldn't go to day care. Put that mindset away and don't give in. One thing I always tell caregivers is that you are in charge of the situation and you might have to make some tough decisions--some authors in the field of psychology call it "tough love." I am not a psychologist, but I would suggest that you need as they say "take the bull by the horns" and take the opportunity to help not only yourself in the caregiving role, but also help mom too.
Thanks for all you do for your mom--you are a great daughter.
Mom now is 94, has dementia and I stay with her. She's quite hard of hearing and refuses to wear a hearing aid so I have to TALK LOUD just for "normal conversation." When the ODD gets added to these conditions, what we have is her pretending not to hear and/or understand and just generally doing what she can to create reactions and upset people. Don't know how my late father stood it all those years. Everything is a game to her and the games all have one rule: YOU LOSE. She's quite persistent in this, pick-pick-picking until she gets a reaction. Then she seems satisfied and eases off.
This is a work in progress for me. Sometimes I lose control and shout and then feel all yucky. But also I sometimes ACT as if I'm angry, just to avoid a lot of idiotic conversation. For example, Mom likes to pretend she must leave and go to her mother's house, talks about Dad as if he is alive, etc. Lately I've had success with saying really loudly and firmly, the minute she begins, DON'T START !!! So in that case, it's a tactic rather than a reaction. I don't get hooked emotionally and Mom toddles off, thinking she upset me.
I'm not saying the original question necessarily infers the mother has ODD, but whatever the cause for the negativity, do you really think it's going to change at this point? Or are you causing yourself unnecessary stress? What if she just does it to get a reaction out of you?
Feeling like the victim of someone else's behavior is no fun. So what I work on every day, all day, is to develop compassionate detachment -- refusing to knee-jerk react, but continuing to provide affectionate care. And the stakes for me are especially high because attaining equanimity is a spiritual goal as well as behavioral.
Giving up impulsive reactions isn't easy and neither is it simple to let go of attachment to a family member and the desire for harmony. Reality seems harsh when it means looking at caregiving as a JOB rather than a relationship. I had to get over the idea that Mom and I would be roomies and bffs. So, LET HER BE and focus on your own mental health.
Be patient with yourself. You have a monumental task. Take breaks when you can and don't expect to be perfect. Remember you're doing the best you can and that is waaay better than the alternative. Mom was not a perfect mother either, she did the best she could.
For some caregivers, I agree with many of your comments. However, many times the aftermath of a "full day" with other unfamilar people/faces (Day care or in-home agency subsituate caregiver) comes back to haunt you, as you can not control their mind, and what goes on in their minds, and/or their thinking about and ask; "why are you putting me here"..and/or "where am I"...and/or simply .."what are you doing to me"..."where do I live".
"Tough love" didn't work for me, rather made things even more difficult to manage..once again, the aftermath of having to "explain and explain" after she returned, and/or after I would return home from a business meeting.
Depending on the stage of Alzheimer's, it is a moving target, and in my opinion, there is a huge difference between applying "tough love" to a healthy child developing cognitve skills, and an elderly parent that is progressively losing their health and their mind/memory. The elderly typcially (depending on the stage) get more fearful and scared..and bouncing them around with new faces and environments simply exasperated the confusion and fear, which in my opinion and experience was was more crewl and disturbing, for my Mother, and for me to see unfold. In addition, it also depends upon any other physical and/or medical issues; diabetes, physical ability to be transported, riding in a bus for some three hours...all of which was scary to my Mother. Notwithstanding, what was the level of medical care at the Day care center? I didn't like what I saw. Nor was I impressed when seeing so many elderly with their heads in their laps..which was in the social/community room..and/or in the pottery room...where no one was present. The presentation was good; there were pretty pictures on all the walls.
I agree with getting Montauk's Mother involved with daily activities, but depending on any other health issues or concerns..and her level of confusion, simply carting one off to the Adult Day Care Center could be the worse thing to do, for all parties concerned. So, could be "tough luck" versus "tough love". Same thing with a in-home health care agency. Different person here next week (they have a high turnover). A different person doesn't provide for any consistency, which at my Mother's state of AZ was extremely important to maintain and/or to "try" and assure "safety and reduce the fears" she was rapidly developing.. as to where she lived..and "how did I get here".
In over nine years of caretaking for my Mother, I experienced just about everything, and as well, with respect to the heathcare community at large. Some healthcare professionals were good, however, many didn't have a clue (rather perscribed one drug after another) and no "hands on experience". Ultimately, it's the caregiver that has to pick up the pieces after a day at the Day Care Center, and/or even after a valued private caregiver's day. In the end, the caregiver has to make the best decisions possible. An alternative is placement...but I would recommend not to be bouncing someone around. (again depending on other medical issues and level of memory loss/confusion)
Make a decision and/or develop a game plan that in your mind is the best for all concerned. Everyone's situation is unique to some degree, or greater degree, and only you can ulitmately (and after consulting with professionals in the know) come to your own conclusions. Your parent / spouse..is unique to you...and no one else.
Lastly, put your arms around yourself. You are doing the best you can. Marco40
If I yell at my Dad to sit down before he falls down, it's not abuse. He doesn't remember that he is too weak to walk and I'm not going to launch a discussion about the pros and cons of using his wheel chair. Or ask for his logical input! Or wait to see if he falls!
That identifies the issue, and tells her what you want her to do in positive terms.
[[just the facts, ma'am]]
Of course, she might still try to adjust it.
But many elders respond to being told that something is complicated- [-these new electronics can be so difficult!!]
If she continues to mess with it, you may need to get a clear box that mounts over the thermostat, which prevents her changing it. Many businesses, hospitals do this. We found one at Home Depot, I think, for less than $20, and it was an easy installation. Has saved some real hassles.
Mom avoided, voluntarily, operating the washing machine--she simply couldn't figure it out, and, it was too hard for her to get to---aside from the fact that she has avoided doing her own laundry for decades...
Stoves, heating systems, etc. all need to be guarded against an elder's potential for injury or damage. Mom caused a stove fire here...
I thot all it did was make a mess...but, it caused wiring shorts that have been consistently costing between $10 and $20 / month in phantom loads--we didn't find out until we had the landlord remove the stove--I knew it was not working quite right, but, didn't realize how badly, until we got a couple small burners to use, instead.
An elder might want to "fend for themselves" but caregivers MUST continually reassess the elder's level of ability to do so. IF at any time, they are too confused, or make mistakes that lead to dangerous consequences, they should probably NOT be using whatever system that is.
It might be construed as abusive....IF it keeps happening, IF it causes harm to the elder...there are qualifiers.
Elders also can be abusive to their caregivers.
Physically and verbally.
But, there are currently no protections for caregivers who are being abused by elders in their care.
Even protective services will perceive and handle that as abuse of the elder.
That's what we were told.
The only recourse was to get our elder removed from our home.
...if you are smart, you get them moved to a facility withOUT involving protective services.
In cases where caregivers are running short on energy, resources, and ability to cope with the behaviors of their elders, it is TIME to find help.
Help that comes into the home, or, move that elder to another relatives or a facility that can handle the care load.
24/7 caregiving is terribly hard, even when the elder is kinda doing their own care--all the little nuances that cause your household and you, to get disrupted, off-kilter, etc.---you stay awake too many hours, lose sleep, cannot lifet/carry/transfer/cleanup, etc. as well as you used to, and the load brought by an elder in the home increases that.
When it starts impacting your health, or causing you to become financially disabled, it is PAST time to find the elder a better place to stay--it means you have gone beyond your capabilities.
No harm, no foul, no sin, for reaching one's limits--we're all human, and have limits. Going beyond one's limits for too long, is a poor way to be a martyr, and serves no one well.
Get some help!!!
When her doctor added Resperidone to her already large arsenal of namenda, donepezil, and mirtazapine and lexapro, and blood pressure, thyroid, and heart meds, things improved greatly. That, and learning to be proactive, and when I anticipated a storm, to address it in advance with love and firmness, putting my hands on her arms and looking right in her face and saying, "Mom, I love you very much. (she often looks totally, pleasantly surprised, even says, "Really? Oh, that's wonderful!" and her demeanor softens) and then I say, "Because I love you, I am here taking care of you. I'm not trying to hurt you or take anything away from you. I'm trying to help you. So, please, do not fight me. Please do what I ask you to do. OK?" Usually by that point she agrees and cooperates with me. This is on my good days. Other days, I'm too tired or stressed and I still get sucked into the storm and I yell. Or on days when talking with her like I just described does absolutely no good, I have found that an extremely firm, authoritative (which does not come naturally for me) "DO NOT FIGHT ME!" gets through to her and she calms down and cooperates. And sometimes you just HAVE TO have cooperation, like when she is about to drink from the "Wet Ones" container, or when she is about to feed the dog something that would be toxic for her (sigh, I now no longer have chocolate or raisins in the house for that reason), or when she is about to pour her entire glass of orange juice onto her plate full of dinner which I just prepared and which we don't have any more of, or which I am too tired to cook any more of, or when she continues walking on the carpet after I have noticed that she has stepped in dog poop, or when she refuses to let me take off her shoes that have dog poop on them and is now trying to kick me with them, or when I need to get a poopy diaper off her before it gets all over her, and her clothes, and the floor, etc., etc., etc., and I know it is just going to be another titanic battle to get her to take a shower or change her clothes after that.
I feel terrible when I have been snappy, or have yelled at her in anger, and I always try to apologize to her before she goes to bed, if not sooner, (she usually does n ot remember that I yelled, but I still apologize anyway). But I do not feel bad at all when I have had to use the firm, authoritative, even loud tone. I'm sure she used that same tone with me many times in my childhood. I know she even yelled a lot. I remember once she apologized for getting mad and yelling at me, and I said, "That's ok, mom, I'm used to it.", and she looked stunned. And she was a good mom, and I was a good kid. Good parents lose it and yell at their kids sometimes, so, maybe we should go easier on ourselves if we do the same, especially when we remember all that we are dealing with.