As kids we were raised to be honest. I am finding it very difficult to lie (pretend) that things are what they are not. My mom's dementia throws new challenges at me everyday and sometimes I'm caught off guard. If she asks a question or makes a statement that is untrue I find it difficult not to correct her. The more she tells lies or misinterprets the truth I learn how to handle it, but when she comes up with something entirely new it throws me as I need to figure out in my own brain how to deal with the new statement without upsetting her. I have never had to worry about thinking on my feet as it's always been easy to tell the truth.
Does anyone have any tricks up their sleeve (almost like an automatic response template) that I can adapt for these situations? It is really difficult when dealing with important matters like her financial commitments and I find it extremely difficult to persuade her to pay bills when they are due as she is convinced that she has already paid them and it turns into a major fight.
Another way to put it is *accepting her reality differs to yours*.
So no discussion on 'untruths'. That way just causes brain pain for you (as you are finding).
Some examples from the tales I hear;
Mom: the cleaning lady stole my purse.
You: we will get it back
Don't discuss it never happened. Vision + memory probelms mean if an object is not in SIGHT - it can get confablulated into being stolen.
Mom: I'm going to stay with Aunt Betty in 2 weeks!
You: how lovely for you
Again, no discussion that this isn't planned or Aunt Betty actually died 2 years back. Just wishful thinking. Find some old photos of Betty if possible to reminisce instead.
Mom: I certainly did NOT agree to (change clothes/visit the Doctor/have a shower/whatever).
You: oh, ok
Needs to feel in control. Let her settle & try again as a brand new request.
Takes 2 to argue. So nod & smile instead. "Oh really? Oh I see. Umm hmm".
My sister's catch-all is "that's interesting".
So educated yourself on being a caregiver to someone with dementia. Start by reading books or Googling “dementia”. “The
36 Hour Day” is great primer for caregivers.
As far as lying goes, you're applying rules of normalcy to a situation that's anything BUT normal. Normal flew out the window when mom started down the road to dementia, and that's the truth. My mother is 94 and has advanced dementia, lives in a Memory Care ALF. So last night she calls me and says she has to 'figure out how to get downtown to a different hotel'. This calls for ME to be a bit of a sleuth. Naturally, I have to 'lie' and make up stories of my own to handle the situation she's created, right? So I tell her to turn on the TV and watch some shows, that I'll call her a cab to pick her up in the morning and take her downtown. She immediately calms down b/c I've 'handled the situation.' I'm not 'lying', per se, but doing what's required to appease a demented mind and calm the situation down. Call it what you'd like; but I call it love and caring. Her mind is gone now; she feels like her siblings and parents are still alive, too, so I tell her whatever I MUST tell her to keep her relaxed and not upset.
Here is a link to an article on the subject of what's known as "Therapeutic Fibbing" to patients with dementia & why it's a good idea:
https://dailycaring.com/why-experts-recommend-lying-to-someone-with-dementia/
For me, the toughest thing is being caught off guard with all the nonsensical things my mother says to me; all the stories she tells & situations she invents. I have to be fast on my feet to come up with something to tell HER in response, and that's a challenge! Dementia creates a whole new set of crazy situations for us to deal with ALL the time, and it's difficult, that's for sure.
I echo what sjplegacy has suggested in getting a copy of The 36 Hour Day which is a wonderful reference guide to dementia. It will help you sort thru the muck and the mire you're faced with right now. Together with getting some sound advice from an Elder Care attorney, that will set you on a path to some kind of plan of action moving forward. Don't discount placement in a Memory Care ALF down the road if/when her care becomes too much for you to handle. I read your profile and see that you're facing stage 4 cancer yourself, and you have a LOT on your plate to deal with. Please make sure to take care of yourself in this process; your life is important here too!!!
Wishing you the very best of luck on both fronts; with your health and with your mother's dementia. If you can, try to just keep her calm, don't argue with her off-the wall comments, and just keep the peace w/o letting things escalate into big fights. I know how hard that is; to KNOW she's making wild statements that you WANT to correct, but it's always a bad idea to do that where dementia is involved. It's a slippery slope we walk with these elders, and I feel for you. Sending you a big hug and a prayer that God helps you through all of the challenges you face.
One word that’s worked for me when mom gets worked up about a future place to stay/car/event ( usually in her mind ) is I say, “ don’t worry, it’s all pre-arranged.” I usually repeat it a couple of times but for us it has worked well so far. Plus this is usually true anyway!
I’ll also nod and say something along the lines of, “ I can see that might be a problem, but we don’t have to deal with it right today. “ She likes that one too.
If it’s a conversation that’s not dreadful I just dive in. The other week she said she was going to have to change the roller skating reservations across the street for the family because it was bad timing for some people - including my father ( deceased! ) who would have to travel a ‘long way’. In this case mom was so matter-of-fact and not upset so I said that was a lovely idea, let’s reschedule. To this day this is one of my favorite exchanges. A roller skating party sounds great!
This will get easier with practice. Frankly I still stumble a lot but unfortunately the practice keeps ramping up. I’m learning to enjoy the better conversations about made-up hotels, airplane trips, and roller skating. Take care and blessings to you!
Mom should no longer be doing her own financial commitments. Someone else should be in charge of all her financial affairs.
There is no sense in starting or getting into an argument with a person with dementia you will NEVER "win"
As to something that she tosses out that takes you off guard simply say...
"Gee I don't know I am going to have to check that out"
This gives her a response to the question or statement and gives you time to figure out a better response. A response that you may or may not actually need. I think you will find many things really do not need an accurate response, answer. Just carry on conversation.
Try to think of it as writing a story. Creative writing in real time.
And when something really throws you and can not come up with a response just change the subject. Simply say..."OH! I forgot...." then start your new thought line. It is not lying it is changing the subject.
As to the financial issues could you get a Paid stamp, available at Staples or Office Depot? Set a monthly date to sit down with her and go through her bills and stamp each one as it is verified as paid. The elderly often see everything slipping out of their control so if you can help her with bill paying rather than taking it away she may be more cooperative.
Concurring with Grandma1954, someone else should be handling your mother's finances and bill paying. Period.
Important thing to remember... Pick your battles...
A little ppwk, little online access and u can be helpful without intrusive until needed. 🙋👍🙂
**Reminder this is my opinion from my experiences. Different things work for different people. The more suggestions the better chance of finding what works for your situation. Good luck!🌞
If she thinks it, there isn't anything you can say to change what she thinks. If she thinks it, it's true to her so let her think it.
The only thing that one needs to be corrected on is their medication but I'm sure there's no problem there because I figure she's not in charge of her own medication.
Ask yourself is it better to be Right or have Peace?
My 96 yr old Dad will say things and I just let him tell the story his way. He is a retired fireman and once he was telling me about 100 fireman were dancing around downtown naked and I just said how did you hear about it and he said I read it in the paper and it was all over the TV. I said no I haven't heard about it and wow Dad, that's crazy isn't it and he saud yes it is and there you go, an intertaining story,
he also told me to not forget to tell my husband and I saud I would.
No Harm Done.
Remember they are in their own little world and unless it's harming themself or someone else, don't worry about it. Let them have their fantasy world.
LIke when you're a kid and believing in Santa Clause, The Easter Bunny and the Tooth Fairy....None of those things hurt me believing and talking about it.
Think of Seniors as big babies or kids.
Most are born in this world wrinkled and bullhead and pooping your pants and if you live long enough, that's how you leave this world
You have some good suggestions in the answers here. Consider them carefully and try to be calm and encourage your mom to be calm.
Prayers and best wishes
Strongly recommend 36 hour day, it is my go to book for coping! Get it and read it. First priority getting your POA in place ( I would not give her one over you, select some one else, she is probably more confused than you realize). And if you are covering her bills bad idea, ask an attorney about the spend down for Medicaid, you not only need to pay yourself back, you should be paying yourself for her care and expenses. Good luck, this is harder than you expect, get some professional advise.
* Be kind to yourself. This is not easy by any means.
* Realize dementia (interactions) is learning a new language. And, the learning curve is intensely fast as there is little to NO prior LEARNING prep time. It happens and families are left wondering / perplexed: How do I DEAL with THIS? (Some call me to assist but not every can do that - of course.)
*Reframe many of your thoughts / words. KNOW THAT IT IS NOT LYING. The key you want to achieve, as much as possible, is keeping your mother calm and emotionally even. Never ever set up responses which result in HER arguing. She is right in how she thinks and believes IN HER HEAD. Period end of story.
This is what dementia 'conversation-ists / inflicted want to do. Argue. It is fear and the brain cells dying so the brain doesn't work as it once did (for that matter, neither does mine.)
* Give yourself "TIME OUTS" - if you mom says something that throws you off, say something like "Well, I never considered that point of view. I'll think about it. Thank you" and then CHANGE THE SUBJECT immediately. Be prepared in how you will change the subject.
* Watch TEEPA SNOW's video / webinars. She is the country's expert on dementia and how to interact with dementia inflicted.
- Buy a book on the topic.
* Believe me, I've been studying Teepa's materials for years and doing this work for more years and still get caught off guard. What I (try to) do is take my time and not respond too quickly, agree or REFLECT what you heard the person said as THEY WANT TO BE ACKNOWLEDGED -
- You are acknowledging that you heard them, not that you agree w what they say.
- Some of the 'good' aspects of these conversations is that the inflicted forgets the conversation so they let it go.
* Be prepared to change the subject - this takes practice.
- Role play with a friend, family member, or yourself.
These . . . situations come out in all kinds of ways. I have learned to SET BOUNDARIES on what I will and will not do (to degrees). While not so much a conversation or dialogue, I am working with a hoarder and she wants to 'pull me in to this maze' 'helping her as I do'. While it is a different scenario, we will find our way through - by going through in present time.
If you remember anything, remember this:
1) Do not argue.
2) Acknowledge feelings and words, i.e., "I hear you saying . . . " or "I will consider that" -
3) then change the subject to something pleasant for them.
4) Google Teepa Snow and watch some of her webinars.
Gena / Touch Matters
But one thing I don't understand. She has dementia; why is she in charge of her financials? That needs to be changed. Dementia does not have the capacity to make decisions.
I have to just grin ( privately) and nod . Acknowledge him as a person. And then change the subject. Because it's insult to correct ones elder... To him and it only alienates them. Because they are confused.
The changing of communication patterns is the most frustrating and incredibly challenging thing about dementia so far, to me! Husband, 61 w early dementia, who could juggle multiple businesses and complex tax and accounting tells me big tales of his next big project, an innovative way of doing this or that, starting a new business venture, with no rememberance of the new diagnosis and warning from the doc. We used to be able to logically talk these things out. But now he gets incensed if I question or correct or remind him that that part of life is going away. Last night I had to whisper to him to quiet him down at a wedding because he was talking loud and silly, joking inappropriately, and he acted like I slapped him in the face!
Changing how we talked and planned and discussed things together is SO SO SO hard because it's very different now!
Sorry I digress, I agree the new way of communicating is so strange, and is like learning a new language. I'm praying for you and thanking everyone so much for their ideas , support and letting us just get things off our chests.
I started keeping a journal and it really has helped get all this emotional garbage out of my system between the tears and struggle. Reading the 36 Hour Day.
Compassion and patience, prayers and some therapy is helping me alot. I hope you will be able to view your loved one with compassion and understanding.
Blessings..
At first I "helped" her and used her computer, but as it became more confusing to her, I started doing it from my computer at home. Eventually, I found out that she was throwing away anything she didn't understand, like utility bills and credit-card statements, and I arranged for them all to come to my house.
There's a lot of great advice about going with the flow when our loved ones come out with really odd realities. I used to think my mother-in-law would forget things, and then her mind would stitch together unrelated events and she would come out with a really strange story.
Sometimes when my mom really harped on something, I found it useful to dig a little bit and try to figure out what was really on her mind. When she told everyone she had too much money and wanted to give half of it away, I talked with her about charitable donations, and what kind of charity she would like to support, and I wrote out a couple of checks for reasonable amounts. I showed her the envelopes as I put them in the mail, and never heard about giving away her money again. She just wanted to be generous.
The lies you are going thru right now is related to the disease. I have been dealing with it now for over 5 yrs and its getting worse. I just view it as I am watching a movie because I can't change him. Don't get stressed from it because it will get worse and you don't need that in your life.
Prayers that you find a way for your mother.
As for reacting to untruths, I find it easier to just be noncommittal. I usually say something like, "That's interesting," or "OK (s in I heard you and not as in I agree with you)"... Usually, I try to change the subject to other less contentious topics.
Please make sure to have a power of attorney for finances and a power of attorney for medical decisions which were created by a local lawyer. If you don't have them, you will have more problems managing your mother's needs in the future.
My father would become agitated because he believed he owed money to various fictional people, instead of challenging his view I'd just let him know that I had already written whoever the check - "the check is in the mail." When he called me late one evening saying he needed $660 immediately, I reminded him it was late and the banks were closed but I bring it to him first thing in the morning - knowing/hoping he would not remember the phone call he made. He didn't. Telling him these items were handled calmed his agitation - until the next time.
Sometimes trying to keep them safe from their own actions it is necessary to lie. Honesty is almost always the best policy, but with dementia - no always. Since dad's perception was not true I saw the answer was true for the perception.
I realize with your own health problems this is an added burden, but as much as possible go with the flow and have fun (when you can) visiting her world. Remember to take good care of yourself also. May you and your family be blessed.