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I have no $$ responsibilities but I also have no $$ for my own future. No help from siblings. They balk at the idea me getting paid. $1K/ month brought up, then reneged. Retroactive seems excessive (2 years full time in August). I've only had a grand total of 12 (24 hr) days off....

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Lin,

Welcome to the forum.

Of course, you aren’t wrong to wish to be compensated for your work in caregiving for your father.

I am sorry that you are doing all of the ‘hands on’ care alone. You’re not alone in this.

Many caregivers do not receive help from their siblings. In an ideal world everyone would do their share but often times this isn’t possible due to various circumstances.

You should be concerned about your own financial future. Do not lose focus on what this means for you in the long run.

How much longer are you planning to continue caring for your father and neglecting your own welfare?

Have you considered placing your dad in a facility where he will have his needs met and you will be free to seek a job that will allow you to earn income to support your own life?

Best wishes to you and your father.
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I firmly believe in being paid for caregiving, if no family is available then the alternative would be paying outsiders for very expensive agency or facility care; paying a family member is of benefit to both parties because family almost always works for a minimal stipend. And when it comes to those whose motives are preserving an inheritance and then counting on that as payment - there may be nothing left because even the best family care giver can't do it completely alone indefinitely, plus why should family members who have done nothing receive equal benefit?
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JimRWeyMA Mar 2023
Agree 100% absolutely!
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Is your own retirement fully funded?

Do you have 35 years of solid SS W-2s?

Do you have sufficient funds in tax-advantaged retirements account to sustain a healthy lifestyle after your mother dies?

Do you have a solid pension from previous employment t?

Will you have a place to live after mom dies? Don't count on he home, which may get clawed back via Medicaid?

Also ask yourself: are you bolstering your siblings inheritance by caring for mom and doing it for free?
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This is absolutely not an unreasonable request. If you're responsible for your dad's bills and manage his bank accounts, you should just deduct a reasonable amount automatically. I learned this lesson myself. I'm the caregiver to my mom, I pay her bills, do her shopping, maintain the house, etc. As my mom's dementia has worsened, I had to cut my hours at my job and took a pay cut. I realized that I could no longer afford the cost of paying for groceries and necessities out of my own pocket. I had to devise a reasonable reimbursement for myself that is more than reasonable. Shame on your siblings for not doing more and offering such compensation automatically. Wish you all the best!
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Davenport Mar 2023
I totally agree!

However, every situation is unique: in my situation, my sibs didn't think I was entitled to compensation since I was living with my mom 'rent-free'. They assumed I'd lived frivolously and imprudently, which was a false assumption. Sadly, my husband had gone off the deep end physically and mentally, and drained us financially, unknown to me. Because of the shame, I never told them the details of our relationship ending.

To complicate things, my mom had the financial resources, but it never occurred to her that simply having a roof over my head didn't allow me to buy groceries, pay for car insurance, gas, medical insurance, etc.

My mom was 91 and had no idea about cost of anything, since she never had worked or lived on her own; my dad had a few good, long careers and invested well.

I couldn't bring myself to beg my sisters or my mom. Eventually I took what little savings I had and moved to a less expensive state (after 50 years in the same state). I barely survived on my savings until I was eligible for SS and Medicare.

Long reply, but again: Everyone's situation is the same, but also unique.
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I don't think it is unreasonable, however, I am imaging that you are living rent free with your father and food is also supplied, that may be the rub. So perhaps a bit less like $500 a month spending money.

IMO, the best option would be for you to get a job outside the home and build for your own future.
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cwillie Mar 2023
Live in caregivers get room and board AND a salary, as well as regular time off (and if those shifts need to be covered that costs extra)- IMO $1000/month is not a huge ask...$12K per year is still well below minimum wage.
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Are you asking us if it is "wrong"? Of course it's wrong!

Now are you willing to do something about it? Or did you just want some validation?
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CTTN55 Mar 2023
YIKES....too late to edit, but I meant to type "Of course it is NOT wrong!"

You SHOULD be paid!
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First things first -- estimate how much dad spent 'caregiving' for you as his child. Got it? Good...you've been paid!!
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LoopyLoo Mar 2023
Sorry, but this stance is wrong. And results in a lot of adult children being drained long before their parent dies. Even more so for women.

Caring for an elderly adult is nowhere near like taking care of a kid. A baby doesn't cuss you out and fight you when it's bath time. You can't lift and carry, multiple times a day/night, an adult like one would a child. You can’t sit an elderly person in a shopping cart at the grocery store or bring them along for errands while they nap. Kids grow and become more self-sufficient. A kid will grow up and leave home. But an elderly parent will not get better or any easier to care for as time goes on.

Not every adult child is able to quit work, abandon their own families, and care for a parent 24/7 or hire aides. It doesn't take long to find posts from people on here who quit their jobs, uprooted their lives, only to find themselves broke in their own old age. It doesn't mean the adult child is ungrateful or mean. 

No one asked to be born. Even if one didn't intend to have kids, they at some point chose to keep and raise them. To put an adult kid in the position of "I birthed and raised you, so YOU OWE ME UNTIL I DIE” or “I clothed and fed you for 18 years without being paid for it, so now you have to care for me as payback” is unfair and selfish. Too many parents consider their kids to be their retirement plan because they feel entitled. Kids shouldn't be born with a job of being the future caregiver. Or shamed when they simply cannot be a 24/7 caregiver when they have their own kids and jobs or health issues. 

It's fine if an adult child wants to take on the task of caregiving. More power to them. But it's not okay to use one of the oldest guilt tactics in the book. 
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I think retroactive is out of the question. You didn't ask for it then, so that is done. Remove it from your plate.

As to caring for your dad, having no job as a result, we on Forum often see people at the end of such an arrangement, having lost everything.
They have no physical or mental health, no job or job history, no place to live as they were living with the parents, and that home has gone to medicaid clawback when finally the parent had to go into care.
I will tell you that what you are doing is a miserable job description.

I would sit down now with family. I would not ask for PAY as this really would result in your parent having to prove they weren't gifting should they need to apply in near future for medicaid and care placement. I would ask for shared living costs. And you can divide that out your help, your driving them, your cooking and cleaning, shared costs of mortgage and utility costs if they are with you and etc. I would tell the family that you will either GET this or you are sorry but parent will have to go into care within the next six months. That you are resigning and will have to return to work. No meanness, no complaining, just the simple facts. Again, NO ARGUMENT. This is a statement.

The costs of dad being in care will be a lot. But you will be getting on with your life. As you SHOULD be. It is your ONE life and you should be living it.

Tell the family that they have a month to consider, then you will meet and get their decision and begin your plans accordingly.

If their choice is that you continue in care you all go directly to an elder law attorney to MAKE A CONTRACT. This will include costs of respite care, which you will NOW start to research for four weeks a year off. Costs of respite care will come from your Dad's social security and will be paid by the POA out of his S.S. funds.

Good luck. Hope you get back to us on your own choices for your own life. I wish you the very best.
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Remember if Dad pays you... Taxes must be paid. He will need to write out a tax form and then you must claim the income. Back pay... no.
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You do not mention dementia as part of dad's diagnosis.
If dad is cognizant why are your siblings the ones to determine if you get paid or not.? That should be dad's decision.
Begin looking for a place to live. Get a job lined up.
Once you have that give "notice" that as of xx/xx/2023 you are "quitting" your job.

If you do get paid then forget what happened in the past. You need to have a caregiver agreement. Legitimate hours, there needs to be at least 1 more caregiver and you can not work 24/7. You need to pay taxes on what you earn. This will hep you later as that will count towards your Medicare and Social Security when you doo retire. Check the going rate for caregivers in your area and you should make at least what the average hourly rate is for what you do.
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I just have a tough love question for you. Do you consider yourself a slave? Two people cannot live on one person's retirement. Even 1k per month is way below the poverty level. Have you contacted APS about both of your situations
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If your siblings are not caring for your dad or coming by to visit him frequently then why are you asking them about your dad paying you for being his caregiver? Is there a power of attorney? If not, get one this week with your dad appointing you to act on his behalf concerning finance, real estate, business, medical and more. Depending on the state he lives consider a Medical Power of Attorney too. Every state has different laws in regard to a Power of Attorney.  You can usually print out these forms off the internet. Just be sure it’s from the state your dad resides in. Complete the forms and take it to bank to have notarized. Be sure you have two witnesses too. You have several options here. Now if your dad has appointed one of  your other siblings who is not participating in the care  of your dad  then this complicates things. If your dad has Alzheimer / dementia, then something needs to be immediately especially with a Power of Attorney.    
Have you talked to your dad about paying you for caring for him daily? Do you live with him? How old is your dad? Who takes your dad to his doctor appointments? Who picks up his prescriptions & pays them? Who does the laundry? Who changes the bed sheets? Who cooks the meals? Who cleans the house? Who tends to the front & back yard? What about the grocery shopping? Who handles and pay the bills? Where is your mother?
Being a caregiver is a big responsibility. I was my mom’s caregiver for 4 ½ years. I took care of everything. Are you sure you are willing to put your life to the side to be your dad’s caregiver.  There is a lot to consider on being a caregiver. It’s the hardest job you will ever do in your lifetime. Think about all this.
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Ask yourself where are going to be in 5-10 years?
Because many of caregiving jobs are that long.
So, first you have to realize yourself how much time, effort you put into it. And respect yourself and let others i.e, your siblings know all the efforts and sacrifices you make.
How can you do it without thinking about your future I have no idea. Because you have to think of yourself first. Save for future, put money towards your pension.
Are you female and siblings are males who still think of caregiving as women’s work? Or they try to protect inheritance because they think they deserve equal share? The money is Dad’s for his care first and foremost.
Start with respecting what you do and how much you do.
Retroactive pay is not possible, but if you live with Dad maybe free room and board in lieu of compensation for those two years would suffice? Learn art of negotiation by presenting facts, if you cook, clean, take Dad to appointments find out what that cost around you if you hired somebody. Also, what is the cost of respite care? Simple samples: cleaning $100 per week, meals or grocery shopping $70, taking to appointments starts at $100 depending on time required.
Respite care at facility starts at $250 per day.
I would say $1000 a week is fair for 40 hours per week and you need to negotiate as 12 days off in almost 2 years is not acceptable by any standards.
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You should be paid. If not, walk away. If your father needs help, all of you will need to find a way. It is not up to you to give up your financial future to care for your father. The only reason they are reluctant to pay is because it reduces their inheritance. Walk away and don't come back until they can pay you market wage for your services.
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I actually take care of of my 90 year old mom and there's nothing wrong with you getting pay to take care of them
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