I've cared for my dominating, perfect mom for 13 years. Brother and sister won't even take her for a week. She listens in on phone calls, my husband and I have to go to our garage just to talk without her butting into our conversations. If I say anything to her,she cries and asks if I want her to leave. She even calls the doctor to verify I'm not giving her wrong doses of medication,then claims that the doctor and I are both wrong, though her prescription says the same thing. She's told family members that we lock her out of the kitchen, denies she did it, then says she might have been mad at me. My family thinks it's funny . . . I'm tired of it and don't know how to make any of this better. Please help with suggestions. I promised my Dad that I'd care for her,and I want to, but I can't take this.
If your siblings think this is so amusing, they need to take their turn caring for her. If they aren't willing to do that, then they need to back you in making this change.
Good luck - you will need to stand firm. But let everyone know your health is threatened by the current situation and you need to get some rest. You can make sure everyone knows you will visit your mom, and that you expect them to do the same.
Carol
And as Carol mentioned above, you have to protect your health. People here used to say that to me long ago and I thought I could do it all. Three years later, I have hit the wall and my health is suffering for it.
Today, call around to facilities that specialize in Alz/Dem care. There are so many nice ones now that look like homes instead of "facilities." Vist a few - you need to see for yourself that she will be cared for.
If the family protests, ask them to "rotate" taking care of Mom. I doubt you will have any "takers." At the very least look into in-home care or adult daycare so you and your hub can get a break.
You posted in this forum because you need to make a change. Start today.
Jennie, dealing with a manipulator and thinking you have to put up with her sick behavior, and with the mocking of other family members, is beyond unacceptable.
I am moving my Mother this Sunday into a residential care home, as Lilliput has described. It is a house in a regular neighborhood with 5-6 other similar people with their own rooms and live-in caregivers. My Mother was in one after her husband died 3 years ago, but was over-medicated and the head CG was a yeller. I got her out, brought her into our home and started the journey of caring for her 24/7, with 2 good caregivers during the day. We got her off of unnecessary medications and after 9 months, she is more alert, but also more demanding and everyone is exhausted from her needing 1 on 1 attention every waking minute. Who can do it? What about everyone else?
Being in this position of caring for my Mother has been an eye opener: I realize that growing up, all she provided was food, shelter and clothing in the way of basic needs. I continued to seek, through my own natural will to survive and thrive, to find my own way. So, I am a late bloomer, but I have a broader perspective and gave my children what I did not receive: nurturing, affection and encouragement. That is what a parent is supposed to do. Isn't that what you do when you love and cherish something beyond yourself? That is a fact, and what they dole out is not love of others, but a sick, self-concern. Please find a nice place and enjoy your life with your husband. God Help Us All.
Next time she asks if you want her to leave say "yes" and start the dialogue. Go out and get brochures of nearby facilities and have them ready to show her. It is time you reclaim your life. You can honor your Father's wishes by finding a good place for your Mother.
This is the fine line so many of us walk. We can only do what they will allow.
My mother is an expert at putting herself in situations that will create a problem. But there's nothing I can do about it. She has a gall bladder full of stones and refused surgery after the mess became infected.The doctor told her he'd check her every two weeks for possible reinfection, but now she's decided it's too much trouble.
What does one do? Nothing. She's not my child. I have no legal responsibility for her. But it will be me who looks after her when she becomes ill again.
time. Taking her to appts., making sure she has food, bringing her to my apartment for meals and games of cards (war) going out to eat, playing slots at the local S.O.I. (lol) shopping, doing her laundry, taking her to get her hair done, etc. etc. Every day asking about money, does she get S.S and pension she is always asking. She does very well in fact, but think she doesnt have money. Mark everything on her calendar for events coming up. Going to try and take her to a senior center to socialize with her own peers, hope this helps. Problem is, what about me. No siblings to count on, but a cousin who is very good with her. Wants to know what we are doing everyday. When I was growing up as a single child, she was never there, always working, even on holidays. Was left alone with the exception of walking to my Grandmother's house. Now she is saying I don't like to be alone. Tip of my tongue is "where were you when i was a child", but she is 90 and guess i have too much respect. The past is the past. I work at home 4 days a week, and I would love to be able to do the things I want to do, but feel too guilty and wonder what will happen if I go out with friends, which is not very often. Guess we have to take it day by day. I know that someday, I will have to place her in a personal care setting, something I dread doing. I feel so lost and I cry at times because I know that I have lost my Mother. I have to live in her world now. (Just venting)
-SS
Yet, I am not willing anymore to sacrifice my own well-being, my husband's privacy in his refuge, and our freedom as middle life adults with a lot of living and working to do. Tough but loving choices are painful.
You might have to wait until YOU can take control of the situation. If she still has any awareness and control of herself, then it's going to be difficult. The thing about Narcissistic mothers, and US, their 'born to be selfless for N's benefit", is that we have been programmed to feel guilty if we don't jump when they say JUMP!
Can you PRETEND that she is someone else you don't know, and don't care about? I mean, anyone who puts up with this crap for 50 plus years ought to be NUMB by now. Right?
Yeah, I'm not either...BUT, remember the self-help philosophies that tell us, "YOU have to change your own behavior, attitude, reaction..." yada yada yada. It takes rebelling, big time.
Yesterday, I placed my Mother in a residential care home. Yesterday, I cried and felt like someone died. Today, I got a call from the owner of the home who said, "Well, she is interesting. Different from anyone we have ever had. ( wha ha ha) She can't be left alone for longer than ONE MINUTE, and someone has to SIT WITH HER AND HOLD HER HAND. We're working on it." uh huh. He also said she did the "I might as well just DIE", ploy, and he said he wasn't interested in talking to her if she was going to play games with him. Oooo, I like this guy more and more.
Of course, dementia is dementia, and bad behavior is her MO when she doesn't get her way. I know, been experiencing it for almost 60 years.
I like my home this way. The energy is calm today, and all the windows are open to air out the negativity. I have to go to the dentist and have skin grafts, but other than that, I'm happy. I will go visit her this afternoon. She has only asked for me once since yesterday, so maybe I'm not that important to her survival after all. Gee, and I put so much of myself into this for the last year. Maybe it's not about WHO is doing for her, but simply that someone, anyone, does for her?
We have plenty of people we can do for, people who love us for who we are and don't take advantage or try to use us up for their own selfish needs. I am sure my Mother does not care that I have been exhausted, or have not slept for almost a year, or have gained 10 pounds from stress eating, or that my husband lets her listen to music in the family room instead of him being able to relax at night and watch the news, and oh so many other things that I am still way too tired to think about.
She was self centered when her children were small, and it never changed.
I know not all elderly people are like this, but dementia brings out the very worst in a Narcissistic personality.
Final Best Answer I can give: Take charge and get POA, if possible, tell the siblings you are done with her ruining your life and tell them to help you find a place. Get her moved and visit for an hour every couple of days. When she starts her manipulations, get up and go home. Do not respond to it--I'll bet you can run faster than she can and get to your car before she could catch you. It will be hard at first, but she will be safe, and it will be good for YOU. The leaving and the running:D
Every day will be better. Good Luck and let us know your progress.
Hugs, Christina