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Other than running errands, getting a haircut, manicure etc., why do I need Respite care? All I'll do is worry while I'm gone.

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I would like to add that respite points throughout each day are life savers. You do not have to live your life around your person’s every need. Some things can wait. There are various ways to make space for yourself throughout the day. Make sure you have a lovely place to sit close to where she spends most of her time. I have a rocker, book shelf, foot stool, so many flowers out the patio door which is two feet away that I feel I am in a flower shop…I bought them small and keep them watered. I keep fresh air flowing in by opening patio door and fans, I keep my knitting and writing close by. Be sure to keep ready to eat meals that you buy or make so you can just pop them into the microwave for her. Don’t take what they say to heart. They won’t remember it later and it comes from a deteriorating brain. Keep favorite treats at hand. Get a cheap little echo dot or other easy player and you just say, I want to listen to NPR news, or slow jazz, or Irish hymns. Use all the gadgets they sell. Monitors the buzz when she is trying to get up, etc. My mother likes the same thing for breakfast every day and I quit trying to make her “special” things…she does not remember what she eats 2 min afterwards. I make sure we have plants of clothes, sheets, required/necessary items so I don’t have to worry about that. I am in a senior building. If in need of friends, I put in some cookies to bake, open the door and put up a sign “come in and share hot cookies from the oven.” Order what you need from Amazon do everything you can on line. Free yourself, for yourself. Find those things that bind you that you can change and do it. My husband vacuums, does laundry, unloads dishes etc. The only thing we agree he won’t do is cook. Yes you need to a whole day sometimes but often you just need your day back…and that is so much more possible than you might think.
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Reply to RetiredBrain
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BELyons Sep 26, 2024
Thank you for that reply. It sounds like you have it down. I am dealing with my husband’s dementia, too and he is a challenge. Trying to learn as much as I can to survive.
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Well if you can't do anything but worry while you're out and about then perhaps "respite" isn't for you.
But for all the other caregivers that I know including myself, respite was/is of utmost importance, as we understood/understand the importance of self care and that we matter too in the equation.
And sometimes respite is just getting away for few hours to get a mani/pedi or going to the grocery store or to church or lunch with friends. Just anything to get away from the hardest job there is and that is caregiving.
It doesn't have to be a few days or a week, but whatever is best for you and the one that you're caring for.
Trust me when I tell you that you will know if and when you need to get away for longer than just a few hours here and there.
And remember that worrying is like rocking in a rocking chair on your front porch. It gives you something to do, but it gets you absolutely nowhere.
So please take care of yourself in whatever ways you can, so you're not in the statistic of 40% of caregivers dying before the one they're caring for from stress related issues.
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Reply to funkygrandma59
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No situation is the same. Most caregivers have more stress than you seem to be having.

I think with most people, its not the actual work as you say, but often dealing with difficult personalities. (in my case, my mom is difficult, there is no way I could be difficult)

That said, while you may not have much of a need for one, you may still need one just as people who are happy in their jobs need a vacation now and then
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Reply to Karsten
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waytomisery Sep 26, 2024
You said it Karsten ,

It’s the personalities that can make it impossible sometimes .
Refusing to believe they need help , manipulation , guilt trips etc .
3 out of 4 of our parents ( hubs and me ) very difficult . We are on the last ( difficult ) one . She may prove to be the worst of the lot . Cooperation would go a long way .
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If you get to the point you really need respite , it is wise for your own health . Your health matters too and respite can help you to continue caregiving (if that’s what you want) .

We send our kids to school , there is always some worry . But we aren’t with them 24/7 . It’s rare to be 24/7 as a caregiver without it eventually taking a toll and caregiver needing respite .

It doesn’t hurt to leave respite as an option in the future . Never say never .

Good Luck .
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Reply to waytomisery
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There is a difference between having a caregiver for a few hours (I would not call that Respite.) and having Respite where you do not have to do any caregiving duties for a week so you actually get a break.
Burn out is real.
This is one of the reasons that people take vacations from their jobs.
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Reply to Grandma1954
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You need alternative caregiver in case you are sick or injured or need to be in the hospital.
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Reply to Taarna
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I think what YOU personally need is as individual as your own fingerprint. It is up to YOU to decide. None of us can know the circumstances, how easy or hard your daily life is, how much personal time you can cut for yourself or how much personal time you even need. This is all up to the individual. I think when we are honest with ourselves we know what we need, know when we waited too long to address it, know when we are OK, basically.
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Reply to AlvaDeer
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Being able to run errands, get a haircut and manicure is of course respite care, but are there other things you enjoy? My respite care was my husband’s four hours in dialysis three times a week and it saved me. I was able to go to my appointments, see friends regularly, go to the gym, find support for myself, etc, which then enabled me to be a better caregiver. I knew he was in good hands, and I made the conscious decision to not worry about him when I was out(which I realize may be easier said than done).
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Reply to MidwestOT
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What exactly will your constant worry fix or change? Honest question. You need respite for your own health. Everyone needs and deserves time away. It’s why the forty hour work week was implemented. None of us are Superman or woman, nor do we need to attempt to be. Enjoy a mental and emotional break, think on other things, be refreshed, accept that worrying changes nothing. I wish you peace
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Reply to Daughterof1930
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If you have a really good caregiver that you trust your loved one with, then you won't worry when you are gone. At first I felt the same way - I worried. Worried my husband wouldn't get the attention he deserved or that the worker would be on the phone or watching TV; worring that I had to be out of the home or the Respite worker would want to leave early, especially if my husband took a nap. But then I got a wonderfully attentive worker who interacted with my husband and attended to his needs. I could take a nap, pay bills, go out, or just relax and read. And it is marvelous. I didn't know how much I needed the break until I got a worker I trusted would care for him and I could truly relax. Please don't sell yourself short. If you worry when gone, please figure out why and address it with the worker or the agency.
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Reply to JanPeck123
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NeedHelpwMIL 5 hours ago
Very good insights. Spot on guidance! Thanks for sharing your perspective and your experience.
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